Hi everybody, I want to share this with you all and I hope it will help some of you with Valentine's day just around the corner. As you all know, my 21 year old son has CD, he was dx July 2007....
Wow! This one really hurts... I lost my Mom this year in February to colon cancer. I was taking care of her ever since she was diagnosed (I was there with her when the doctor told her). My Mother's...
Hello everybody, Just wondering, I took a peak and it says to register as a member but it's only for professional healthcare. /community/emoticons/nono.gif I am not sure what to do! Any risks? Thanks...
Hi, a few months ago, I put my son on the Nature's way reuteri, my question is I live in Montreal and it's very hard to find this product. I tried online but nobody is sending it refrigerated. I know...
All drugs containing PHENYLPROPANOLAMINE are being recalled. > >>> STOP TAKING anything containing this ingredient. It has been > >>> linked to increased hemorrhagic stroke...
Bump!!! just to see if anyone has something to say about this!...
bump!...
Hi, I am a mom who's son was diagnosed with Crohn's. So I know how it could be disturbing to hear such a news. When my 21 year old son was diagnosed in July 2007, I took it pretty bad and cryed all...
Thanks everybody, it seems that the opinions are divided on this. Keep well! Sad!...
You might want to use washing soda as a booster to your detergent. I used this on my children when they were small and had "accidents". It works very well and keep in mind that for stubburn messes,...
Hello everyone, I was just wondering if most of you here were put on lots of antibiotics prior to your dx. The reason why I am asking is, after talking with someone who knows a lot about medicine,...
Hi, I too got an error, however, this is the way to get to this page. It seems very interesting and promissing I hope this helps. I am sorry but I don't know how to pot a link, so you may copy and...
Hi, Please check your email, I sent you an iron fortified list of food. I found it very helpful when my son was dx with crohn's and was anemic. I hope it helps you! Sylvie Sad Mom!...
Hi Deese, I am so sorry to hear that your son is having such a hard time. I know what you mean when you say the look in his face makes you sad! When my son was dx with this *******Disease, I use to...
Hi Everyone, I was just wondering if any of you are eating sushi or is this a no-no food for most of you? My son is going out with some friends and they are talking about a sushi night. (It sends...
Hi Joan, I am also a mom of a 21 year old son who was dx with crohn's in July. He is taking Pentasa and the GI wanted to put him on 6mp. We decided to try the natural way 1st. I knew about Aloe Vera...
Hi, You might want to come in Montreal for a day and purchase your pentasa here. You get 240 pills of 500mg/each for 160.00$ cdn. So it might be worth the trip since in your area this is almost the...
My son use to feel the same way. After the doctor gave him iron supplement it went away. Did you get your iron levels checked? Just wondering!...
Hi, I was just wondering, do you get the same reaction with decaf? Just wondering if this could help to get the coffee without the d reaction. Keep well!...
Hi Styx, Same question here. Why my son's G.I. keeps pushing for it and when we questionned him about the benefits of it, his answer was "As a physician, that is my advice to you!" I often think of...
Hi Aimee, I am sure that calamine lotion and oatmeal bath would help, just like when the kids have chicken pox and they get soooo itchy! At least the bath will give you some relaxation time and...
Hi Roni, Thank you so much for your kind words. No we have not tried any diet except avoiding garlic and onions which seems to bother him. I am trying to keep him on a minimum impact on his life. God...
Hi Chris, yes I have heard of the VSL 3 probiotics, they are expensive and I know that some GI doctors are doing experiments on CD patients with it. They seem to be helping people but according to...
Hi pb4, can you tell me when is the best time to take the probiotic Reuteri. I put my son on it after reading about it over and over again and I am sure glad I did. He is also taking Aloe vera gel...
I guess that is the way this disease goes, it seems to be doing wonder for my son. (cross my fingers). Anyhow I am sorry to hear that it made it worse for some of you. However, I am sure that a lot...
Hi Kittikat, I am sorry that someone betrayed your trust and told your secret. Please know that like pb4 said, it is human nature to tell (everybody likes to hear the latest news), this is even more...
I put my son on the Activia yougurt, because it also has probiotics in it. I buy the fat free one whenever possible. Of course my son takes also the probiotics recommended by pb4 (Reuteri prima.)...
Hi, I too had a gallstone and sure enough the thing would not behave. Went to the ER a few times and finallly had an attack that lasted 18hours and the Dr. said enough and sent me for surgery, they...
Good questions, I can't wait to see the results since I have been wondering the same questions. As you all well know, I too am asking lots of question about 6mp, since my son's GI keeps on insisting...
Hi Gelliebeans, I am sorry but I have no idea what could be going on. 1 thing I know for sure is that you have to try to relax and wait before jumping to conclusion (easier said than done!) because...
Hi Nana CC, I am so glad that things are better for you, make the most out of it and enjoy every minute. Sending lots and lots of good wishes your way!!!...
I understand, but how do we know that the meds should be changed, since he is not feeling too bad? Thanks for your repplies....
Hi, You might want to try putting a clock under a pillow or a cushion, he will sleep on it and listen to the sound of the clock which will remind him of his mommy and therefore he will be quiet at...
Hi everyone, could someone tell me what the doctors hope to accomplish when they prescribe 6mp. What is the reason for it, since I am told that it will not stop the D. will it cure aphteous ulcers on...
He had a barium small bowel but we are waiting for the results on sept. 5, next G.I. apt. The stool tests were clear of bacterias and parasites. Is there a blood test or something that confirms...
Hi everyone, I am not sure about what is going on here. My son who was dx with Crohn's after a colonoscopy this month. The colonoscopy showed aphteous ulcers and inflammation of the colon. The doctor...
Hello everyone, As I mentionned on a previous post, my son is taking metronidazole (Flagyl). The doctor prescribe it for 2 weeks, which he will finish tomorrow and it is renewable 2 times. Here is my...
Belleenstein, Wow! what an inspiration you are to me. I am wondering if you please could tell us what meds, natural or traditional, vitamins, diet you are on. Anything else you take that you feel has...
Hi, I just want to tell you that I also have a son (21 years old) who was diagnosed with Crohn's this month. I took it pretty hard, I felt that it was my fault since I game him his genetic, I must...
Okay Aimee, 1 thing I want you to know so you don't freak out when you get there, is that hematology (blood) clinics and oncology (cancer) clinics are together. So if you are asked question by the...
Hi, you should bring it to your doctor's attention right away. If it is your platelets, then you are more at risk of hemmorage since your blood does not coagulates as quickly as it should. When you...
Hi Charlotte, I am sorry to hear that you're not feeling that well. Anyhow just wanted to let you know that there is always someone here to help or a least listen. Anyways I hope this doctor makes a...
Thank you for your replies and yes it is bright red blood, the fresh type, just like when you just cut yourself. Also I do want to keep an open mind about changing his meds, I just feel that it's a...
I am sure the gum will go down the hatch! Please try not to stress too much about this, since stress can cause you to flare. So like the song goes: Don't worry, be happy! Sad Mom!...
Hi, sorry to hear about your dx. Just 1 suggestion are you drinking 8-10 big glasses a day? The medication can sometime cause constipation. Try to see if you increase your water intake if things get...
Thank you for your time, I appreciate the information you are giving me and it does give me a little peace of mind. How long did you take the Flagyl. The doctor gave him 2 weeks of it and renewable...
Thank you MikeB for your reply. I am just wondering since from what I have found so far about 6MP is not very good. Lots of side effects and the risk of developing cancers. I was upset to know that...
Hello everyone, I am new to this forum. I have been reading it for a little while. I was seeking answers for my 1 zillions questions and was surprise to find quite a lot of infos on this forum from...
Hi, from what the pharmacist told me, it takes up to 21 days to be effective but it is not uncommon for it to take up to 30 days. You should keep in mind that you should be getting better during that...
Hi everyone, I'm new here. CheerDad, can you please explain what your doctor meant when he said any weird cancers. Did he mean that he thinks that the combination of Pantasa and 6MP might cause this? ...