You are right, Lynnwood, I have had two lupus diagnoses from two different doctors, that is why I am frustrated. My current doctor, the head of the Lupus Center at Johns Hopkins, refuses to diagnose...
Hi folks, I need your words of wisdom. I have been diagnosed with UCTD. I also have Crohn's Disease. I have been seeing a prominent Lupus specialist for about 3 years. I just got my anti-DNA double...
I totally feel your ER pain. A similar thing happened to me last week. I went into the ER after blacking out with severe abdominal pain, nausea and vomiting. Stayed in the ER for 15 hours....they did...
Thanks for the info everyone. Sorry for the delayed reply. I had to go to the ER on Tuesday night because my abdominal pain was so severe that I blacked out and fell on the floor. Fortunately my...
Hi friends, It has been a while. I just wanted to see how many of you have had issues with your Crohn's starting in one place and progressing to another? I was diagnosed with Ileitis 12 years ago,...
Thanks Ides, I was put through the ringer for 6 years before they came up with this latest diagnosis. The only drugs I have been on for Crohns are Prednisone ( infrequently) and Pentasa. No biologic...
Hi friends, Just wondering if there were any of you out there with Crohn's or UC who also have a connective tissue disease? I was just diagnosed with UCTD from one doctor and with Lupus from two...
Anyone else taking Apriso and have severe heartburn or chest pains? I have this issue already and currently take Dexilant, but just started Apriso 3 days ago and have been having horrible chest pains...
Thanks everyone. I am leaning toward MCTD as well, but definitely have more symptoms of lupus right now. Although, listening to each of you, that sounds pretty normal. I live 90 miles from the...
OMG Prophecy111! I could have written your post. The rash you speak of is exactly what I had this summer that totally came out of the blue. It started with raised, red itchy bumps that were on my...
Hi everyone, I usually post on the Crohns board, so this is new to me, although I have been having symptoms of a connective tissue disease for at least 5 years. My recent blood work finally came back...
I get red cheeks, red nose and forehead. This occurs at random, and usually toward the end of the day. Looks like a flushed face and is warm to the touch. I usually run a low grade fever as well....
Hi everyone, I haven't posted in awhile, but always appreciate your feedback. I recently went in for a stomach emptying test, since I was having bouts of extreme nausea, bloating and heartburn. I...
Hi everyone, I am usually posting on the Crohn's disease or fibromyalgia board. Does anyone know if you can be diagnosed with MS after having a clear lumbar puncture and evoked potentials test? My...
Wow. I was going to post a similar question. I just got out of a 4-day stint in the hospital for a horrible crohn's flare. My worst one yet. I was having fevers and joint pain for two months...
HI, I was just wondering if anyone has tried the 6 day MethylPREDNIsolone 4 mg pack for a flare? I have been put on Prednisone before, but for longer periods of time. This one starts out super...
Valerie3 is right! Crohn's can cause gallstones to develop in your gallbladder, leading to gallbladder removal. This is one of the lovely extra-intestinal manifestations of the disease. I had mine...
Hi, PLEASE HEAR THIS!!! Crohn's Disease can cause lesions in your brain, that mimic the lesions in multiple sclerosis. I had the same exact issue a couple of years ago. I was having more headaches...
HI, I live in south Central PA and I drive 90 miles to my GI in Baltimore, MD at Johns Hopkins. It should only be about 45-60 minute drive for you. My doc is one of the best in the country (Dr. Ted...
Wow. Sorry about all of your troubles. I suffer from chronic headaches, which are probably some type of migraine. I'm surprised they were trying to do a lumbar puncture before doing an MRI of your...
Sorry for all of the waiting, Sammies. I know it is excruciating to sit around waiting for a diagnosis. Especially when you can do so much research on the web these days and most of it is information...
Thanks for all of the words of encouragement and help! I went to my internist today to get her take on it all, until I see my gastro on the 22nd. She also mentioned it being possibly connected to...
My ankles began hurting about 6 months ago, but I had been off of Pentasa for over a year. I don't know what is causing it. I had a joint/bone scan that was normal. My ankle hurts when you touch it...
I'll have to say that my GI doc-Dr. Ted Bayless is phenomenal and one of the top in the country, literally!!!! He has written text books on IBD and med students use his materials in their classrooms....
Wow, Jhicks! That sounds just like me! I took Pentasa for a while, but have been off of it for over a year now. I also have pain and swelling in my ankles, severe arthritic pain and stiffness. My...
Hi friends, Just got back some blood work from my Rheumatologist at it showed my LFT (liver function tests) to be elevated quite a bit. My alkaline phosphate was 217 (normally below 126), my AST was...
Hi friends, I am currently experiencing a lot of joint and muscle pain and stiffness after waking and sitting/laying for several minutes. It makes it hard to walk after rising. My Crohn's disease is...
Hi friends, I am new to the arthritis board, but check in with the folks on the Crohn's board more frequently. I am currently experiencing a lot of joint and muscle pain and stiffness after waking...
Hi friends, I have Crohn's Disease and I have recently been diagnosed with "probable" MS from a wonderful group of doctors at Johns Hopkins and am going back this month for 3 more tests-lumbar...
Hi friends, I haven't posted in ages since my Crohn's disease has been in remission, but I am wondering if any of you have multiple sclerosis as well? I have been diagnosed with probable MS from a...
Thank you all for replying! It looks like all of us have a lot of health issues. It's amazing that we are all even functioning on a regular basis. It still say the anti-depressant I am taking for...
WOW! What a great response so far! I can't believe how many of us have the same illnesses not necessarily connected to CD. Weird. I forgot to add former surgeries: tonsillectomy, eye surgery, tear...
Hi friends, First I must say what an awesome community this is! I have used it numerously since my crohns diagnosis 5 years ago. I was curious to take a poll to see how many of us Crohnies have other...
WOW! I was just thinking about checking Healingwell to see if anyone was experiencing the MS symptoms, and out popped Bunnypuckers post at the top of the list. Weird. Anyway, I have had CD for 5...