I just started taking about 2 weeks ago. So far I am not really feeling any adverse side effects. I think its too soon to tell if its going to help with the migraines but it is definately helping...
Has anyone been prescribed nortriptyline for prevention of migraines? I've been put on this medication to lessen my frequent migraine attacks and also because it will supposedly help out with some my...
I also had similar side affects when tapering from Prednisone. Start documenting your symptoms and I bet you will find a correlation of their onset with your tapering schedule. For me, everything...
I was put on Asacol and Prednisone at the same time. I have been on Asacol since July and have no physical side effects. You will notice that after a while of being on this med your urine will stain...
This is not only limited to pentasa, it's seems to be a mesalamine issue. I take Asacol and the same thing happens. I keep Clorox wipes at the ready. They take off the stains and keep things from...
When I first tapered from the dreaded prednisone, I went through very similar symptoms at about 5 MG and then it got worse once I stopped all together. GI put me back on 20 MG for 3 weeks and then...
Thanks, you guys have really made me feel better. I guess I am still in adjustment mode from taking the occasional aspirin to have a such a varied "cocktail" of drugs everyday. I'll rack it up to...
My favorite as a kid -- a dentist named Dr. Chu :)...
There are a lot of good GI's in the Bay Area. Dr. Jeffrey Aron at CPMC/UCSF is an IBD expert and used to run the CCFA.org. My GI often consults with him. I went to CPMC and was first diagnosed there...
How long after you got off the Prednisone did this stop? I've read it stays in your system a while even after you have tapered. It's good to hear that at low doses you don't feel like you are sedated...
It actually sounds kind of ridiculous when I type it out but is it ever a scary feeling when it is happening. I guess I'll just wait and see over the next few weeks if things get better once I am...
I just visted my GI yesterday and discussed a side affect that I assumed was from one of my meds which my GI said was actually panic attacks. I was a little floored to be honest. Here's what...
I had iron infusions when I was hospitilized. One was through a syringe and the other was a diluted IV. The good news is that I was able to get my iron levels up very quickly. The bad news is that it...
Prednisone did it to me. Lots of random brusing and some of them were pretty nasty. Got better as I lowered my dosage. You should check with your doctor though as its not something to mess around...
Try rinsing after you go. Whenever this happens to me I treat it just like I would treat diaper rash with my kids and it seems to help. Rinse and pat dry (not wipe), put some sort of barrier on the...
They make baby wipes for sensitive skin/newborns that have no dyes or fragrance but they are not flushable. You can also get flushable ones for kids that are potty training. I have used the Kandoo...
I was in the hospotal for 9 days and was put on 60mg of Prednisone. I missed the period that was due about a week after I got out. As soon as I tapered below 40mg it came back on a regular basis....
I was dx with migraines 6 months before I was dx with CD. Though my headaches are triggered by things other than CD (hormones, weather changes, etc.), I have noticed a correlation (if not cause) with...
I'm not sure if it is the one you are referring to but there is a diagram on the Johns Hopkins CD site. Here'e the link:...
Thanks all as always. I will try taking at night tomorrow instead of in the morning to see if that helps out. I'm also glad to hear that feeling this way is probably temporary....
A call out for all of you with more experience with 6MP. I just started 6mp (50mg) and bumped back up to 20mg Prednisone last weekend since my GI symptoms came back when I tapered. So far, I am...
I had issues with anxiety at higher doses of prednisone (40mg-60mg). I would have panic attacks and scary mood swings - lots of anger, crying, sometimes elation, generally, completely nutty behavior....
Thanks all for your words of encouragement and advice. I will talk to my doctor AND my friends and family. It really is hard asking for help and figuring how my life is going to have to change....
Today is a bad day. I don't know if I am going to scream, cry or curl up. I am feeling all of these things and I think that my friends and family are tired of hearing about it. I was finally off of...
I see Dr. Stephen Pardys. He's a very good GI and I have been happy with him. He often consults with Dr. Jeffrey Aron who is supposedly one of the CD experts in San Francisco. He used to be president...
I'm sorry to hear about your son's diagnosis. I too have Crohn's colitis. Here's my understanding at the main differences. Crohn's Colitis affects all layers of the colon, where as UC is just the...
Welcome and I'm sorry about your diagnosis but glad that you found this forum. This is a great place to get support and learn a lot about Crohn's. You should speak with your GI about your treatment...
thanks for all of your feedback. My doc said that I could try any of these but there just wasn't any clinical studies that he felt completely supported the use of any of these but that some people...
I just got back from my GI today and discussed a study I found on Probiotics. We had a good discussion and in the end I decided that I would try them out. He gave me a few samples to get started. I...
I would talk to your doctor about your symptoms as soon as you can - especially the breathing issues. Prednisone is not a drug you can just stop without some supervision so make sure you are not...
I get terrible leg cramps when I flare. They feel like multiple charley horses in both legs (mostly calves for me) at the same time then my muscles would be constantly sore after the actual cramping...