I am now only on 5mg and I am still up half the night, I am afraid to keep on taking the Temazepam becasue of getting addicted to them, and actually they dont work much anymore for me anyway now!!...
Thankyou for all that info, do you or anyone know what is the UK equivalent of Fastin?? Kerry...
Thanks for your replies, and yes I have definately got the moon face, thats the worst of all , I look awful, but as I am now symptom free and can even tolerate saled(I had a subway yesterday) I am...
/community/emoticons/nono.gif Hi to all of you, please can someone tell me what Fastin is?? I have read about it in another post, and also can I get it in the UK???also what can I do to lose my...
Was only in hospital for 8 days, then not had any symptoms at all since I came home. Still on pred (tapering) and pentasa. Kerry...
Thanks for that reply I would say a week over ....
Hi Does anyone know if it is the pred I am on that has stopped my period this month?? Newly dx last month and been on pred since, but now well overdue a period!!!! never happened before except when...
Hi, I would def inately think you are tepering too fast, I was dx last month and stayed on 30mg for 4 week, then my consultant said that I have to reduce by no more than 5mg per week, I am doing this...
Hi I am newly diagnosed last month, there is lots of support on here and there are some very knowledgeable people who seem to know all there is to know about CD. I have been feeling very strange...
Thanks for all your helpful replies, My doc has said I can reduce down to 15mg of Pred, and then she says reduce a further 5mg per week till I am on 5mg then stay on 5mg for 2 weeks then I will be...
Thanks for all your replies and I am relieved to hear Im not the only one not sleeping!! I am taking the Pred 1st thing in the morning at 7am. I am not too familiar with some of the other meds you...
/community/emoticons/sad.gif This is driving me crazy, I have hardly slept a wink since being on these darned Pred, My Doctor has given me Temazepam but said not to take them all the time if I can...
I was dx with IBS last year, non of the meds worked. Than dx with Crohns Sept 07, I think I have had Crohns for at least 18 months before dx though!!...
Hi everyone, I have just applied for Disability (DLA) any tips on best way to get your claim accepted, they have just written off for more information about me, I am not sure if they have written to...
I had mine out in June 1995, when my son was 6 months old. Had it done Laproscope way, no probs with it I was out shopping the next day!!...
/community/emoticons/confused.gif I am newly diagnosed with CD, and when in hospital at the same time as the dx my period started! but the unusual thing is that it is lasting a lot longer than it...
45 I was dx, but symptoms started when I was 44...
Thanks Vicky, I will mention all these things to my doctor on Tuesday. Kerry...
Oh my god, I am so glad of your reply you must know more than the docs because they never said a word to me about this. I will ring optician again and ask to bring forward my appointment. Thanks for...
Hi I have noticed since I have been dx that I have started to get blurred vision when I read, its not so bad that I cant see, but the more I focus on reading the more blurred it gets. I have heard...
Thanx Christina, Kids dont understand its gonna be hard but Im sure we will get through it. Keep in touch. Kerry...
Thank you Marci, glad you are keeping quite well. I hope I am as lucky as you! I actually feel sorry for my husband as we had such a good social life and now I feel as though I have spoilt it all for...
Thank you both for your replies, perhaps I was just feeling sorry for myself more than I should be! I am beginning to feel a bit more positive each day though. I am not in any pain anymore so I think...
Thank you so much for your lovely reply, I am glad to know that things might get better or that things may not be so bad at all. Fingers crossed for us all. Kerry...
Thank you for your reply, Its nice to know there are others out there with the same. Kerry...
Has anyone in Uk managed to claim DLA (Disability Living Allowance) the NAAC suggests that you try?? I am newly diagnosed Kerry...
Hi I was interested in the smoking debate, The first thing 2 consultants told me was to quit smoking as it will DEFINATELY make my Crohns worse and I may not stay in remission. I have smoked for 30...
Thanks Bunny, your a star. I like to read positive things casue all I have read is negative so far. Kerry...
Hi to all of you out there. I am 45 and just diagnosed with Crohns. I find the whole thing quite frightening. So many questions to ask... and I feel I have so little knowledge of this disease, which...
Hi there I have just discovered this site, I have been diagnosed with Crohns las week after 8 day stay in hospital. I am 45 and have 7 sons(only 3 still at home now. 15, 12 and 9). I am on pred 30mg...