Thanks for the reply. It helps to be able to talk to other people about this. I called my GI and he wants me checked for C. diff. My narrowing is just proximal to the reconnection site. If you don't...
I am new as in haven't really posted much before but signed up to the forum a while ago....
Hi I am new here and I have a few questions about issues that I am having post resection. I had my first bowel resection in June 2010, a stoma revision in July and the stoma take down in August of...
It should show if there is an abscess there. CT is a great tool. I still have all of my bowel so the 3 bottles were a must. I am an X-ray tech. I do x-ray, CT and mammography. I love my job!! but...
I have had this done 3 times. It is very easy. I had it done in three different facilities and two were the same prep. So i am thinking that it is the common of the two that I have had. What I had to...
I am so new to all of the CD stuff. I have had it for a long time, but only diagnosed in spring of 07. But I already have a bad stricture in the terminal ileum and a fistula at the time of diag. (was...
I guess I just need to suck it up. Thanks for the advice and thanks for reading. Just needed to vent and just want to help myself get better. I guess I just need to work around these bumps in the...
I got a call from my boss today on my day off. (Sorry but I also need to vent) I work at a hospital in a department that works around the clock. I have asked not to be placed on midnight or 12 hr...
Yes I think that sedation is a big help. I think that you are more relaxed when sedated and less likely to fight the scope. I don't think that they would have made it 5cm on me without sedation!! It...
Do you need to see a high risk OB when you are pregnant with CD and on remicade? I do not have one in my area the closest is 2 hours away and so is my GI....
Thank you all so much for the good advice. I will talk with my GI and rhemy to see if I can do the same. Thanks again!!!...
One last thing most ins companies do not pay for this. If you want it done and so not have a prior condition like bleeding it will most likely come out of pocket. I think that it ranges between 1,000...
I feel your pain. I hosted a Halloween party which is a yearly thing for me. I thought that thing would go great I was a week out from my Remicade infusion. What a disaster. I was kicking myself in...
HuskerFan how long did it take for the Remicade to kick in? I am new to the Remicade world and I am starting to feel better but still have a lot of bad days. I started in July of this year. Thanks...
I would have to agree. The virtual colon is a screening tool. I happen to do CT and do this exam. It is a good tool if you are unable to have a colonoscopy. Like if you have a bleeding disorder, but...
Thanks for the info!! Sounds like you have had a long rough battle with this fun fillled disease! Hope that you can resolve you new issuse. Best of luck!...
I agree I am sure that most of my issues have been adressed in the past. But thanks to the people who did respond!...
Thanks I think that I may have to have that tested. I had that done a few weeks before the infusions started. I did not know about the 4 week test. Thanks!!!...
I am very interested as well!!!...
Eggs casue me cramping and some nausea, sugars make me poop and some abd discomfort happens with it, dairy has to be the worst by far. I get intense pain and nausea I never vomit but i can't get to...
I know that I have heard that stress can make symptoms worse. I know that from presonal experiance that when I am stressed or very active with a project my bowels become very active. I try to stay...
I have a stricture as well maybe that is why I start to feel like I do 6-7 weeks out. I guess I just have to be a pain in the you know what . Then maybe I will get some help and some answers! thanks...
I am so new to this whole thing but the more that I read the posts the more I want to know about Remicade. I started it in July of this year, and I am sad to say that I am clueless when it comes to...
[b] my infusions after reading the other posts. The last time that I had my infusion the nurse had no clue what rate to even infuse my pre meds nor my remicade. I had no idea that the rates could be...
I was told not to take oral birth control because of the risk of Pulmonary embolism. From what I was told the risk doubles. What, if you don't mind me asking, did you do for birth control? I also...
I am going through the whole baby thing also. I have not become pregnant and can not begin to imagine the pain that you are going through. I was told that if I wanted to have a baby that i would need...
Thanks for the input. It does seem that the patient always knows more about the disease and meds than the MD does. I do get medicated before hand. I am the only one in the facility that does. And...
Every time I have a Remicade infusion the next day my chest and neck hurt to touch. There is also swelling in these areas. Has anyone else had this problem? My abdmomen also cramps a lot and I get...
I have a stricture in my terminal ileum and let me tell you it is no fun. Due to the stricture I have developed a fistula from my distal ileum to just above my sigmoid colon. Strictures can be...
I am on remicade and looking to get pregnant. One doctor told me not to be on Remicade during pregnancy and one told me to stay on it. Help!!!! How far into remission were you before pregnancy?...