I go up to the mountains for skiing and other activities. Ever since my bowel resection a few years ago, I get really really bad gas whenever I am in higher elevations. I live near the coast....
I take the Schiff gummies and have been after trying Culuterelle and some other brands....
I take the Schiff gummies and I am on Inflectra. All good here. I was taking Culturelle and experienced bloating....
Thanks for replying and your support....
I recently had a Magnetic resonance (MR) enterography done as my GI doctor wanted to see if she remove 6-MP from my cocktail and just keep the Inflectra. The scan showed some adhesions between the...
My labs have consistently shown high bilirubin at 1.6, which my GI doctors says is high and needs monitoring. As mentioned in another thread, I'm on Inflectra (8 weeks), 6-MP, Cholestrymine, and...
This forum is awesome. I do have to say that Cholystremine has been a lifestyle saver. After my 2nd resection, I was going multiple times a day because I lost my IC valve. With Cholystremine, it's...
What are your thoughts of safety of the cocktail (Inflectra, 6-MP) when not factoring COVID?...
I had my second resection back in 2017 and since then I've been on Inflectra (8 weeks), 6-MP, Cholystremine and Immodium. Lately, I guess because of COVID, I've been looking into biologics and other...
Thanks for all the informative replies. This is what I am currently doing as it relates to Questran. I take one packet at night before I go to bed then 2 Imodium after lunch. Based on this regimen,...
I had my second resection back in 2017 and after some trial and error, I am taking two Imodium in the morning before breakfast and another two after lunch. Based on this regimen, I usually go #2 in...
6 years after diagnosis, I had my first resection. Then, 10 years later I had my second resection. Throughout that time, I've been on 6-MP. Most recently in the last couple of years I've been on...
For me, coffee (regular or decaf) has been problematic. It's too bad because I love coffee. Also, tea, especially, black or green tea has been an issue. When I water down tea, however, it seems to be...
I had my second resection back in 2017 and since then I've been dealing with urgency and loose stool issues. I've tried many different types of probiotics, but none has made any noticeable...
Since my resection last summer, I've been taking 4 caplets of Imodium daily. It's been helping with urgency issues. I've been taking the Kirkland brand Imodium and it's been working well for me. For...
If this helps with the infusion cost. https://www.janssencarepath.com/patient/remicade/cost-support...
beave - thanks much. Yes, I am taking 6 of the 2mg caplets a day. My GI doctor said I can go up to 8 caplets a day, but I haven't talked to other doctors to get their professional opinions. Now, for...
Last June I had my second bowel resection. About 40 CM of short bowel and a very small portion of the colon. Since then I've been struggling with urgency issues. I've tried a variety of meds,...
Thanks for all the replies. I had my second resection last June (2017). I just saw my GI two weeks ago, and although I mentioned the loose stools, she didn't seem too concerned. I need to find out...
Forgot to add that I have been on and off Immodium. I really don't want to take it, but I have been taking between 4 to 6 daily. It helps to a certain extent, but it feels artificial....
Yes, close calls as in if there wasn't a nearby restroom, it would have been messy. I have not discussed SBS with my GI doctor as she believes that I don't have it (because the length of bowel...
I had my first bowel resection surgery (hemi) back in 2001, which was an emergency one due to severe strictures. Between 2001 and 2017, I had on and off painful cramping and bloating due to intestnal...
The nurse has me take Tylenol and Benadryl prior to my infusions and I've not had any negative reactions. Plus, I can't get the infusion unless I have all sorts of labs done. CBC, WBC, electrolyte,...
Thanks!...
I had my second bowel resection surgery last year in June. The surgeon removed some of my small bowel and a fraction of my colon. Since then, I have been pain-free and been eating to my heart's...
What kind of foods, drinks, and/or supplements help reduce scar tissue formation in the gut area? I understand that inflammation from CD can cause scar tissue, but my understanding is that healing...
Has anyone tried Prescript-Assist Probiotics? Amazon sells it. I am currently taking Culturelle and Florastor daily....
Thanks all for the responses. I tried to switch over to green tea with honey and within a couple of hours, I was running. The next day I avoided coffee and tea altogether and I had no urgency issues....
Does anyone experience urgency issues after drinking something with caffeine? After my first colectomy, I tolerated dairy and caffeine with no issues. I recently had my second colectomy in June and...
Question: Is she on a Remicade generic?...
I've been on Remicade for about a year now. My side effects have been limited to fatigue and occasional mood swings shortly after the session. About a few days later, I feel okay. I'm also on 6MP....
Just wanted to post a quick update. Hopefully it will be helpful for others in similar situations. I am now taking Imodium three times a day. Thank goodness for Costco! Much cheaper! Basically, I...
I had a similar surgery about 2 months ago, except I did not have a strictureolasty. I work full time prior to the surgery and returned to work full time about 5 weeks after the operation. My job is...
Well, it's been almost 7 weeks now since my resection surgery and I continue to have issues. I am now back at work and it's been quite frustrating. Yesterday I had to leave a meeting early because of...
Well, after 3 days of not eating dairy, I continue to have the D. I'm taking Imodium, so frequency is about two times a day (versus 3 to 5 times when not on Imodium). I am praying that this won't be...
Eleanor, thanks. I've been eating yogurt a couple of times a day for probiotics. Prior to the surgery, I ate yogurt once a day without D. I'll cut this out and see if things improve....
Thanks for the replies. It's been tough. For now my GI doctor said to up the Imodium. No response to the bile acid and the soluble fiber questions. Will give it a try....
I am so frustrated. I continue to have watery and loose bowel movements about 3 to 4 times a day. I am about 4 weeks out from my surgery. My doctor recommended that I take Imodium, which I did, but...
About 20 days ago, I had my second resection surgery. The first one was a hemicolectomy whereas this time was mainly removal of my small bowel (about 40 cm). The connection point between my colon and...
Thanks so far. What a great support forum - probably the most effective form of "medication"....
My wife and I are planning to have a baby. I was diagnosed with Crohn's in 2001 and currently I am on 6 MP. I had a resection in 2007 and since then about one to two flare ups a year. What do I need...
Thank goodness I am not alone. It's a bit embarrassing having to go back to restroom....
This forum is great! Really, it is. There is no better resource for battling a disease than an active support group. Okay, let's see here, not sure how best to explain this but I will be frank about...
I have been on 6MP for about 2 years now. No major issues and so far has been the most successful in keeping me in remission. As far as alcohol, for me, some types work better than others. For...
Also, if we can correlate the type of food to a flare up...how long does it take? Meaning, if I ate a hamburger for lunch (and a hamburger causes a flare up), how long do I have until I get pain. Or...
Thanks so much for all the feedback. For the cramp pain...is the pain horrendous? It's really bad for me. I mean extreme main. Once I vomit, the pain goes away after 30 minutes or so. There are have...
My goodness, thank you for all the comments. Really, I appreciate it. Yes, I have had a colonoscopy several times, about once a year now, and the GI concludes that I have CD. Also, yes from the...
I am male in my early 30s. I was diagnosed with CD back in March 2007 and subsequently had a hemi-resection of the colon. Per my GI doctor, the surgery was necessary due to numerous strictures and...
I am currently on 6MP and take the following supplements: coconut oil good bacteria pill freeze-dried vegetable mix (ultimate meal) I have heard some ads and read some articles on the benefits of...
It's Saturday and I feel a bit better. I have been drinking lots of water and taking it easy on the food. I still feel a bit full with a bit of nausea. If my situation worsens then I make that call...