Posting an update in case anyone searches the forums for the question that I posted. Had a successful laparoscopic gallbladder removal. There was scar tissue from my resection, so surgeon had to make...
Imuran kept me well for several years. The blood tests were frequent at first, but I went down to testing every three months. I had very minimal side effects. I was sad when it no longer worked...
I was bottle-fed....
I took Imuran for several years. It did take about 3 months to kick in. I believe I was on prednisone until the Imuran started working. As far as diet, when I’m flaring, everything hurts. There’s no...
I didn’t have pain during sex, but I always felt like something was pulling on my lower right side of my abdomen. It was annoying. Then I had to have an emergency resection and the surgeon said that...
I have to have my gallbladder removed next week. I had several inches of my colon and small intestine removed 8 years ago (Crohn’s related of course). The surgeon will try to remove my gallbladder...
Mine was the same way (he couldn't get past the inflammation where the small intestines ends), but the doctor said it didn't look as bad as it has looked in the past. When he got to that point, I...
I usually flare in the same areas where you have the disease. I had a colonoscopy, but I have a stricture there, and the doc couldn't get through to see it. Then, he sent me for an Upper GI/SBFT. It...
I feel heavy in the gut when I'm flaring. I have described it here before as a feeling like I'm walking around with a bowling ball in my intestines. It's a very sore, achy feeling. I was put on...
I don't know if it was in my head or not, but I do feel much better today. I guess it was just the strong doses that set me back for a few days. The nurse said that I would be tired afterwards....
So, I feel like I got hit by a truck today. I feel very tired and a little achy... almost like I'm coming down with something, but I'm not. Has anyone else experienced this after the first few doses...
I just took my first 4 shots last night. I did take Tylenol afterwards. I feel fine right now. So far, so good!...
I have had several gum disease issues in the past. My gums still bleed a lot. I think it has something to do with the disease because I've always brushed/flossed like I'm supposed to. I have it no...
I've had flares that lasted from about 4 weeks to 2 months. It all depends on how soon I get to the doctor and what he does about it....
I finally got my Humira starter kit on Friday!! We have one child, but are thinking about trying again late, late next year maybe. It all depends on this Humira situation. I'd like to get updated...
I was on heavy doses in the hospital and am down to 10 mg. I didn't gain any weight. The stuff makes me so cuckoo that I don't want to eat. Kinda crazy, I know....
I'm at 103 right now. I do admit, I look pretty sick. I don't like it one bit. I was up to about 118 before this past flare. I was exercising 3-4 times a week, and I had a nice, muscular shape. Now,...
I think this disease is hard on us mentally. It's always such a long, drawn-out, confusing process when we deal with flares. Dealing with the doctors isn't always fun, and you never really know how...
I have a 20 month old. No signs of it yet. We're just going to keep a close eye on her to make sure we catch it early if she does have it. I really hope that it passes her over. I'd hate to see her...
I start out with fatigue. Then comes the nausea and pain. Then comes the low grade fever. It takes awhile for me to get a full blown flare....
I started Imuran about 4 years ago. I was on 75 mg for awhile. I dropped down to 50 mg about 6 months ago. It kept me symptom free for about 3 years....
For those of you who have had a nurse come to your home to show you how to do the Humira injections, how long did it take for you to get a nurse to come? I was wondering how soon I could get a nurse...
I feel heavy like that when I'm gettin a flare. It also hurts when you press down on certain areas. I know it's a flare because it hurts no matter if I eat or not. It sometimes feels like I'm...
I'm waiting to start Humira too. I've had 2 years of crud. Just be glad that you at least have the medication in your possession! I've been fighting to get started on it for a month now, and I'm...
I've read in so many books that stress doesn't affect flares. I bother to disagree. I can count that every flare that I've had has come on after a period of high stress levels. My doctor realizes...
Has anyone else had issues getting their insurance to cover Humira? I have taken several other medications in the past that just didn't keep the flares under control, and the doctor wants to bypass...
Thank you all so much! I think it's funny that I can't wait to start injecting myself... what I would give for relief!...
The fatigue came first when I went through my last flare. I knew something was wrong. I was working out 4 times a week and feeling just fine. One day, I woke up, and all of my energy was gone. The...
For those of you who take Humira, did you do all of your 4 initial doses on the same day, or did you split them between 2 days? Did you have any side effects from taking those 4 doses? That seems...
I was in the hospital getting IV steriods/fluids all Thanksgiving week. I know how you feel about the doctors dragging their feet. Mine was all about starting me on the Humira, but of course, it...
When I flare, I usually have a few days of consistent pain, fever, and nausea followed by a few days of intense soreness. I feel like I'm bruised on the inside. I hate it. It hurts to stand up...
Kasper - thanks for the offer. I'm pretty desperate right now! I would consider taking those extra Humira syringes and going to jail if I didn't have my daughter to look after! :) This illness can...
I'm really just venting right now. I've been flaring for about 2 months now. I've had a colonoscopy and a UGI/SBFT. They found inflammation around a stricture. I was told the the GI was going to...
I met with my GI today, and he wants me to start Humira. However, he was concerned about my stricture, so he's going to check with his rep and find out if it is ok to take if you have a stricture. Do...
Although I was in my early 20's when I had my daughter, I was on 75mg of Imuran (I'm very petite) the entire time, and the medication did nothing to harm my baby. She was born just fine and is still...
I know how you feel! I've been sick for 2 months now. I have an 18 month old daughter who wears me out - even on good days! I do consulting work from home too. I'm always tired, and I haven't left...
Jenny26_1981: I have been on 75mg of Imuran for 4 - 5 years now. I had no problems getting pregnant remained on the medication throughout the pregnancy. My daughter was born healthy. She still is. I...
To Lil1EB81: Thank you. I am worried that the doc's going to put me on all of these other drugs that won't really address the issue. My doc is totally against the surgery too. I don't know what else...
I'm on my husband's insurance. He took a new job last year, and I was so thankful. His old company's employee contribution was going to go up from $300 to $750 a month! The benefits weren't all that...
Have you been feeling ok? I've been in pain on and off for about a year now. My doc found a stricture during my last colonoscopy and couldn't get through either. I went to get a UGI/SBFT and he got...
I was given a Xanax and sedation for my last colonoscopy. I remember waking up and telling the doctor that he was hurting me. He had come to a stricture and was trying to get the camera through, and...
Is there a way they can tell if a stricture is caused by scar tissue or inflammation? A colonoscopy and Upper GI/SBFT has confirmed a stricture. The doctor is thinking of switching me from Imuran to...
I try to tough the pain out awhile before I take pain medication. I only use them when I need them. My GI doctor will give them, but he doesn't want me using them so much that the pain is masked all...
I went through the whole IBS diagnosis twice in the past two years. I'm in pain on/off again. I don't think it's IBS because the medicines that the doc prescribes for IBS don't help worth a darn, and...
I just got scoped earlier this week, and I supposedly have a stricture. I'm going for an Upper GI/SBFT in the morning. I've been flaring on and off for the past 6 months. I'm currently on Imuran, but...
Well, I guess I'm no lady then. I am not going to sit there in pain and hold it in so that I don't do it in front of my husband. I just let it out. I think it's easy for me because one of our first...
You would think the doctors would know! I'm the same way. I'm always ok during the day, but I'm usually tired because I've been up half the night in pain. Maybe our digestive systems slow down at...
Thank you all so much for your comments. It's mentally exhausting because I get hopeful that maybe I'm better and then I have a bad day. After awhile, after many visits to the GI and after several...
My husband and I had a Honda Shadow before we had our baby 18 months ago. I'm not an outdoorsy kind of person, but I did love riding on that bike - even during the hot steamy summer months here in...
I'm in a flare now. Most of my pain comes on at night. I do have some days when I feel just fine and experience just tenderness/soreness in my abdomen. Other days are awful with fatigue and pain. Are...