Yes, speaking from personal experience. Had a nice big abdominal abscess that the CT scans kept on missing. I was lucky enough to be in a good hospital where the doctors treated the symptoms and...
I see at costco 60 pills costs $104 without insurance. Expensive, but hopefully within budget to hold you over until you find better assistance or coverage....
I would say it's normal. His body needs time to adjust. Is he also lowering or stopping prednisone because that will make him tired too?...
Part of the theory relates to how Accutane dries out the epithelial layers of the body. It works great for acne, drying out the skin and shrinking the oil glands, but it also may affect the...
I do think resections are common in this situation. I had a bowel abcess that got better with antibiotics, but it was back in 6 months and I had a resection. An abcess will form at badly diseased...
yep. fine for an hour, day, even week sometimes, then BAMMM I'm in a nice flare up for a week....
Prometheus who distributes Entocort doesn't offer patient assistance. Like other said ask your doctor for samples. You can always order from Canadian pharmacies but they will likely be more than your...
It does sound likely to be Crohn's, I'm sorry you had to go through so many years without getting any tests. You will probably be starting some medicines if you are diagnosed and they should help you...
Thank you everyone for your replies. Does anyone know if hypnosis is covered under most insurances, or is it considered "alternative medicine"?...
I've been thinking about getting hypnotized or learning relaxation techniques for some time. I have pretty bad anxiety on my bad days when I have to get into a car or find myself far from a bathroom....
Sounds like the stage 3 Prochymal study? I wish you the best of luck with this new drug. Be sure to keep us all posted on your progress because there are many people here patiently waiting for this...
I never said embryonic stem cells were immoral. I would never say that because I support their research and use. I can see how you interpreted what I wrote as a personal opinion, but I think the...
Hmmm. ___________________________________________ I am sorry, but rule 10....
do you know the location of your intestinal inflammation and how long of a stretch it goes for? Surgical resection is an option it seems. I was in your position, steroid dependent, on Remicade and...
I'm happy to hear your success. Most people who feel well don't post here and it makes it look like everyone with Crohn's is sick all of the time. So there is hope. I know little about stem cells so...
coming from someone who has had severe diseases, I consider Entocort to be one of the milder drugs, maybe just after Pentasa or Asacol and yet can be very effective. It's a steroid but is targeted to...
Redspot, this was a good post. I realize that trials are not finished, but at the same time I hear more anecdotal success stories compared to some approved meds like Pentasa and Asacol, or even the...
I don't understand what the negative side effects can really be. This is an old drug that is safe in high dosages let alone taking less than 1/10th the normal amount. If there are any side effects...
I realize that LDN revs up the immune system and Humira dampens it. While probably not the ideal combination, I would rather not just stop Humira since it's working to some degree. Is there any point...
I appreciate all the suggestions. I will be calling Abbott soon. I'm really hoping they offer some assistance. THE bc/blue shield insurance I am getting is personal choice PPO. I live in PA if that...
Right now I have insurance through my college that takes care of the Humira, but I will be ineligable to renew my policy in July. At that time I will be switching over to Blue Cross/ Blue Shield PPO,...
http://www.medscape.com/viewarticle/567163 you may have to register but it's free. Covers topics like Remicade dosing, switching between biologicals, and comparing mono v. combo therapy....
I missed a year of college when I was first dx. It was only after I started Remicade that I went back to school. Two months in I ended up needing an emergcency resection. I only missed two weeks of...
someone contact me about unused Pentasa bottles I have lying around. I am giving them away....
Don't get my comments wrong, I do support people like you with no other options. I'm also sure that me saying I'm scared of a drug would not influence your decision of trying it. Heck, maybe Tysabri...
it still scares the sh** out of me. If there weren't so many drugs in the pipeline, I would maybe consider this. I'd be interested in hearing from people who failed Remicade, Humira, Imuran, that had...
I have some unopened bottles of Pentasa that I want to give away to someone without insurance coverage. I don't take it anymore. I don't want to break any rules, so I'm thinking maybe I could mail it...
Hi there. I sometimes get back pain when my CD is at its worst, but only as a side effect of bad upper abdominal pain. . Probably a colonoscopy would be the next best test... Why does she think her...
dosing is usually between 1-3mg/kg. 1 mg/kg being on the low side, and 3 mg/kg being as high as you will see in Crohn's. 150mg sounds like a pretty normal dose....
yahh you don't want to rush into tapering meds too fast. It's a hard lesson we all learn. Plus, the Humira can take a month or two to reach full effectiveness....
i would get very verrry tired tapering pred. I didn't notice much until dropping below the 15mg mark. I could barely think and felt like a zombie. It took maybe two weeks to gain back some energy....
I've noticed a pattern whenever I start a new med or raise the dosage of an existing one. For about the first week or two my symptoms go haywire and I feel worse than usual. It happened every time I...
This is a biologic medicine like Humira. It works a little differently but still carries a high price tag. No biotechnology products are ever going to be cheap. Did you know that Abbott has a patient...
There is always a good chance some diseased area was left behind. Then there is the possibility that the meds were controlling areas of inflammation which became reactivated when you stopped the...
i was asking this same question two years ago. First, my personal experience. I didn't improve instantly like some people do. I had a gradual improvement over the course of several months. I was...
were the penn state phase two trial results every published? or is it still ongoing? From what I hear, LDN works very well in many people. I've never taken it, but plan on taking some in the future....
I don't mind Tysabri as an option. The individual has a right to take a chance for good health. But I would definetly try Humira first. I've read Tysabri's trial results online and the numbers...