Thanks Keeper, just so frustrated, and a little scared too. More steriods? Probably. It'll be worth it know what is wrong with me. Tell me something, when your crohns is in remission, do you "feel...
Good evening to all. I really really hope everyone is feeling ok! Here's the deal: Went to fam. doc. today. He wouldn't even discuss fibro or CFS. He just said that the treatment for either is...
Love the posts Sniper, it helps!!...
Hi there, Abseely, you're right, "I Wrote That"!! haha I'm more sober tonite, took the ativan for 3 nights, 1 at supper, was calm (and very quiet which is not me) for about 3 hours, started getting...
Good evening to all, I can't thank you enough for all your replies. All my blood work was well with in normal limits. I started the ativan last night, thought I'd start at supper and see how it...
Thanks soooo much for the replys, sorry I didn't give all the info. I have already seen the ENT, he did a scope down thru the nose, looked like "silent gerd". This was 3 mths ago, then the GI doc did...
/community/emoticons/mad.gif Good evening to you all, went to the gi doc today. He was in a big hurry. Here's the deal, blood work of course, should know by monday the sed rate and crp and blood...
Good evening to all, I'll try to keep this short symptoms for years -- since crohns dx has gotten so much worse: fatigue (on the rating scale you posted I may be up to 30), can't concentrate,...
I did a lot of test also, did not have health insurance so we were trying to dx me cheaply! Didn't work, I finally had biopsy of lympth nodes which showed possible crohns, then we did a camera...
What a good question and one we all need to think about . My kids are all grown, but that doesn't mean a serious disease does not affect them. My fam. has been through lots of diseases and deaths,...
Thanks Ivy, going to take this with me to my next appt. Now, who can come up with one for this blasted nausea that never leaves me, just sometimes gets worse?! Could it be the Imuran? Granna...
My GI explained the pred to me as this: It takes a few days to a few weeks for the pred to build up in your system, therefore, when you are tapering, the effects (hunger, insomia, etc) will last a...
Thanks Writer, I also have IBS. Having cramping now. Have been under more stress lately, who isn't?? About the fiber, who knows, haven't been eating so well lately, prob. that is the problem. I have...
/community/emoticons/confused.gif Hi to all, please excuse the gross question coming up, can anyone help me? Last week, I could not have a b.m. I finally took something, I have taken it many times...
about the miralax, it is great! My GI had (has) me on 2 tablespoons twice daily when needed. Like now, but I'm out til town trip tom. It has no smell, no taste, it mixes with anything you drink or...
Thanks for ALL your replies. I do not doubt the dx of crohns, I believe there is something else going on. I plan to start (all over it seems) with the fam. doc. next week. See what his take is on...
Good evening to all, got my blood tests back today, they were both good. The CRP and the Sed Rate were well within normal limits. ok then, now what???? Pain still here, it does come and go. Ear doc...
Writer, thanks so much for the info. interestsing! The blindness part is really scary tho. /community/emoticons/shocked.gif I forgot to mention the "extreme" fatigue I have. Is this too a side effect...
Hi folks, haven't been talking any, just trying to read some of the posts. I have stuff going on, I'm on Imuran right now, no pred. I go on and off the pred fairly regularly. I have been to the ear...
Sorry I've haven't been in touch, don't have access to internet 'cept when my son can let me use his. I was finally down to 0 pred, then I thought I was having a flare-up. Now back up on 10mg per...
/community/emoticons/sad.gif Good morning to you all, I really hope everyone is doing better. On dec 26, doc told me to come down on pred again, to 10mg one day then 0 the next. On andd on. Each day...
Congrats on quitting anyway!! Understand about taking the edge off tho. Tell me this, how did you quit the first time? Help from...........??? Good luck with everything. Merry Christmas!!...
Christmas at the Old Shoe House There was an old woman who lived in a shoe, She had so many children, and loved them all too. She said, "Thank you Lord Jesus, for sending them bread." Then kissed...
/community/emoticons/cool.gif Good morning to you all, have a quick question and update. Went to GI doc last week. Decreased pred to 10mg per day, he hopes to get me off completely soon. Increased...
Judy, my condolences to you and your family. I do know what you mean about the times spent sharing and learning from someone dying. I have sat with my dad, mom, oldest son(he was 33) and mom in law....
Good morning to you all!!! Took dau to OB doc yesterday. Not much change in cervix, she is dilated 1, mayby a little more. She has to continue the med for contractions every 4 hours (terbutaline)....
Hi folks, I'm only on 50mg Imuran right now, with alternating 20mg pred one day then 10mg the next. Hope to taper more next week when I see doc. What scares me is that I read all of you on higher...
Hi folks, just a quick? hahaha question. I just noticed this morning that my pain seems to be going away. It feels almost good!! or at least, almost normal for me. I've been on the Imuran now for 1...
Hi Vid, I'm trying to get on a maintaince dose. Right now I'm alternating days with 20mg then 10mg. Doc wants me to get on 10mg daily and if it works, he'll keep me there indefinately. I think the...
Good evening to all. Here I am,,awake again. Here's the latest. I am finally tapering the prednisone on down. I take 20mg one day then 10mg the next. My pain is trying its best to predcome back. I...
Okay good ppl, lets see here....(I love this topic) Got a job early in the year, they let me go when I had surgery in July, now I'm blessed to spend time settling in the new home and spending days...
Okay folks, as a newbie to crohns, just how imp. is the medic alert?? The only meds I'm on right now is prednisone, imuran, sythroid and premrin, besides cal-trate and vitamin. Is this something I...
Went to GI doc on tues. I stay on 20mg prednisone for at least 2 more weeks because my pain is coming back. As we go along we'll increase the Imuran, right now I'm on 50mg day. The inflamation level...
Hi folks, just read the posts about "being awake". Thought it was just me!! I'll help paint the barn if you all will bring the hammers and help me build a workshop. It won't bother the hubby, far...
Hi Matthew, WOW!! I like the quick response here!!! My Crohns is severe. Alot of the small bowel is involved. It has been the most terrible thing I have ever went through. I hate the fact that I have...
Hello to all, I'm new to this forum. Just diagnosed with crohns in Sept., this year. After 7 months of sooooo sick and pain racked, one surgery (exploratory), and countless trips (boo hooing my eyes...
Hi there folks, I'm new here. New to Crohns disease. How does this work? Is this live chat or what? Someone please tell me so I don't do anything wrong!! Thanks...