Thanks. I was a little confused by this as well. I thought they were looking at the small bowel, but they specifically said the distal sigmoid, which I know is part of the colon. In fact, they noted...
Thanks. My doctor has ordered a gastric emptying scan to rule out gastroparesis (radioactive eggs- yum). The MRI report said that the distal sigmoid was collapsed and "poorly evaluated". The nurse I...
Thank you all for responding. Sorry to sound stupid but what is an SBFT? Small bowel___ ???...
I have had Crohn's Disease for about the past 28 years limited to the colon. A year and a half ago I developed severe nausea and stomach/abdominal pain right after my mother died and I lost about 35...
I have had Crohn's for the last 17 or 18 years. This past year I have had 2 major flares that were accompanied by lots of upper GI symptoms, nausea, stomach pain, abdominal cramps, bloody D and a...
I am a 62 year old woman with both GERD and Crohn's Disease. I had a Nissen Fundo in 2002 which apparently became unwrapped about 4 years ago. For the past year I have had severe nausea, heartburn,...
So this may sound stupid but how do they diagnose if the Crohn's is in the small intestine?. I have had CD(Crohn's Colitis specifically) for close to 20 years- classic symptoms: diarrhea, bloody...
I have both Crohn's disease and GERD. I had a Nissen in 2002 which apparently became unwrapped about 4 years ago. I was having issues with intense heartburn and stomach pain on and off and a scope...
I have always had Versed and Fentanyl with my scopes. When I had the most recent one with a new doctor, they used Propofol. It took me a lot longer to come out of it, I felt foggy for several days...
I so understand your frustration. I just completed an endoscope and a colonoscopy plus a zillion other blood tests to rule out celiac, cancer, adrenal insufficiency, c.diff, thyroid and a bunch of...
Its a measure of how well your prep worked and how cleaned out you are. They check 3 areas and the highest score for each area is a 3 so the highest total you can get is a 9. Must be something new...
Had my scopes yesterday and as I expected, it showed only small patches of current inflammation and other patches of scarred areas from previous inflammation, not enough to explain my 34 pound weight...
Thanks for your responses. I found a few reputable web sites that said anything below 50 was considered normal , 50-100 was considered borderline but indicative of some inflammation and/or...
I am seeing a new GI who scheduled an endoscope and colonoscopy (next week) but also ran a bunch of other tests including the calprotectin. The result came back as 96 which was listed as within the...
Thanks to everyone for writing in. Will let you know what they dentist or ortho says. Skyflyerjen- thanks for your comments- you are so right-one of the reasons I wrote in was because I have always...
Thanks. I have e-mailed the ortho again to see if he can recommend something other than the clindamycin. I am allergic to drugs in the penicillin family, but will ask him about the others. How are...
You are so right. Its hard to know whether you feel worse from the Crohn's or from the Pred. During one of my worst flares, I was on 50 mg for almost 4 months then was able to slowly taper. Usually,...
do you mean probiotics? I take those every day and when I was not in the middle of a flare, they only helped a little when I took them with the clindamycin. :(...
All of the symptoms you are describing are very common with prednisone. You did not say what dose you are at but you need to taper very slowly (like 10 mgs at a time every 5-7 days or at your...
I have been in the middle of a pretty bad flare for most of the past year (Have a colonoscopy and endoscopy scheduled for the middle of February with a new gastroenterologist. ) Anyway, I had a total...
I have been on Entocort for years off and on. I generally take it at the first sign of a flare and it has done a phenomenal job of reducing the symptoms (up until recently when I developed a really...
Sounds like "pred brain". I've been on multiple rounds of the stuff over the years and always end up feeling like I can juggle furniture but can't remember people's names or where I put things or how...
Very very sparingly and many years ago- both because they really irritate my upper GI and because I have a blood clotting disorder...
Thanks- That makes sense and is reassuring. My hematologist has run a zillion labs that seem to have ruled out a number of really scary options and the new gastroenterologist is determined to do a...
The pathology report says lymphoplasmacytic.....(lymphocytes and plasma???)...
I went for a consult today with a new gastroenterologist and "Crohn's Disease specialist". She looked at the pathology report on my last colonoscopy last March and was concerned that the report did...
I looked at the box and you are right :( For some reason, they don't seem to bother me and are the only way I can eat a semblance of vegetables, unless I do the blender thing.....Hope you are able to...
While I usually follow the Crohn's Disease forum, I thought I would take a look here as well, since I seem to have major upper and GI issues. I had a Nissen fundo back in 2002 and everything was...
I agree with the eggs, white pasta and white rice, and especially the yogurt. I have had some success with soft honey wheat bread (low fiber). I have also been able to tolerate vegetables in a...
Just got back from the hematologist and he agreed that this is a very complex issue. He has referred me to a gastroenterologist who specializes in Crohn's Disease and immunology who can hopefully...
Thanks to everyone for their support. I see the hematologist next week and he may be able to help reduce the options, i.e. he may decide that given the family history, the biologics are absolutely...
Thanks for the link about the biologics- very helpful. I've looked at some of the posts on the Entyvio. Would love to hear about people's experiences on Cymzia....
I gained the 80 pounds on the Humira- was able to take it off eventually after I went off it....
I have had Crohn's Colitis for 25 years. I had an allergic reaction to Remicade after the second round. Did Humira for 6 months and gained 80 pounds and eventually went into remission. That was 6...
Thanks. Yes- it is still only in the colon. I have a wonderful hematologist and gastroenterologist and they will be consulting. I forgot to mention that I have already previously been on most of the...
I have had Crohn's Disease (actually Crohn's Colitis) for the past 25 years and read this site frequently but have rarely posted anything. I am so appreciative of the information that everyone posts....
Goldy- Everyone reacts differently to these meds I was on Humira for more than a year. It took about 6 months to finally kick in. For me, the joint and muscle pian came on gradually- I had numbness...
Popcorn is like swallowing razor blades; also have problems with nuts, raw veggies and hard fruits like apples and pears...
some antibiotics are much worse on your gut than others. My GI told me to request Levaquin, which is pretty broad spectrum and does not kill your gut. I have had to take it a few times for sinue...
I developed lupus like syndrome after my third loading dose of Remicade. All of the symptoms went away after I went off it. My GI says that only a small number of people will actually have a positive...
Does anyone know if the new drug has a mouse protein in it like the Remicade does?...
I am also in the same place- had a reaction to Remicade and just stopped the Humira 3 weeks ago. In addition to the incredible fatigue and body aches, I had numbness and tingling in my legs and...
Hi- I had multiple small anal fissures. First they put me on a nitroglycerin ointment (designed to relax the anal muscle just like it relaxes the heart muscle)and when I had a reaction to it, so,...
I have been on Colazal for more than 10 years. It works well as a maintenance drug with very few side effects, but if you have a bad flare it is not going to stop it. My experience has been that if...
Ivy6- Northern Virginia. Thanks...
Thanks for writing back. I have been on all of the other drugs, including Imuran, Methotrexate, large, long periods of pred and Remicade. I know I am sort of at that point of last resort, which is...
I am thinking about going off Humira. I have gained 50 pounds since I have been on it, have tingling and numbness in my feet and legs that has been diagnosed as neuropathy, have constant headaches...
I have not posted anything here for a long time but took a peek to see if anyone had written in about tingling and numbness with Humira. I just came back from my second visit to the neurologist. I...
After 5 months the humira has finally kicked in and I am finally able to tolerate some multigrain breads, a few vegetables and some fruit. I have, however, gained 25 pounds since I've been on the...
I remember seeing some posts about people who had gained weight on Remicade. I have gained 17 punds since I have been on Humira. Anyone else out there put on weight with Humira?...