From what my daughter's CF center/doctors tell me, CF in adulthood is a fairly new field. CF used to be only a children's disease and the life expectancy was much shorter (5-teens). Personally, I...
Have her doctors evaluated her sinus disease? The doctors we see at her CF Center (her ENT) told me that all CF patients have sinus disease, it will just vary in severity. Our daughter has had sinus...
I am a mother of a five year old recently diagnosed with CF. Her sweat test levels were 69,69, 69 and 71. A gene test was sent to Ambry labratories and they identified a common gene and a very rare...
My five year old daughter was recently diagnosed with CF. Since then we have been bombarded with information about the disease and have done alot of our own research. I am trying to find a network of...
You may look up all CF Centers through the Cystic Fibrosis Foundation- they are all rated throughout the country due to the results of the patients they treat. We use the CF Center in Minneapolis, MN...
My daughter was not diagnosed with CF until she was almost five years old. The only symptom she had as a infant was a persistant, recurrent cough. She thrived- usually in the 75th to 100th...