what is it like what is like what is it like 80 or ever 100? how is a 20 yr old live?? how does it feel to walk outside for wearing a picc no oxygen im tired of my life i want to be normal i want to...
Well, i got my test results back. i have good and bad news. Well they found only 1 gene so it looks like im either a carrier only or i have one of the rare genes that the typical test dont test for....
no i didnt. it takes 6 to 8 weeks for the results. im curious. im still waiting on my results from sinus cat scan as well. i should get that back in a few days. i hope it tells why i get so many...
Well first of all, thanks for replying. they are not really concerned with the Fev and fvc numbers it more of the diffuse number. they said with my height weight etc etc etc i should be no less than...
spirometry: fvc= actual: 3.04 predicted: 3.75 percent 81 fev1 actual: 2.10 predicted 3.75 percent: 65 fev1/fvc 69 86 fef25% 2.07 5.97 35 fef50 2.20 4.70 47 fef75 1.18 2.06 57 fef max 2.27 6.24 36...
it helps but i must of misworded the first entry..its went from 110 to 90 to 80..soorry. and the diffusive number im not sure what that is but they said its 60% like i said i dont know what that is....
i have a few questions regarding the pfts. i have had 3 done in the last 5 yrs. my first one the results were: FEV- 99% and the diffusive number was 90% this was done in 2001, jan 2006 my fev number...
Well, I am not getting the Ambry test done cuz of my ins like i told yall before, however, i am getting a similar test done which tests for over 800 genes. the last genetic test i had done only...
White patches/ spots can be from a number of things. I always get these when my enezymes are low or if the vitamins,zinc or calcium is low. but i dont get them on my tummy they are on my legs. i dont...
Thanks for all the advice and just so you know i am going to see a differnt place. i just found out today the place i was going to is not licensed so im going to travel a little more south and go to...
thanks for the replies. yes i am going to a CF center. its in orlando florida. but someone told me the only reason why im having so much problems with them is because im not a "kid" anymore. i dont...
i know i havent written awhile again but its been such a stupid stressful year and im sooooo about to give up. let whatever happens happen..Well about 15 yrs ago i had a aunt With Cf however, they...
Well today i had another doc apt with my GI doctor. I just discovered i have GERD, CFRD,and surgery within a fews months from inhernia from coughing so much. since i have a chronic cough due to my Cf...
hello, hope everyone is doing ok. Well im totally lost. i just got my results back from my 3rd sweat test. the previous readings were 58 and 59 well now its 38. how can this be? what does it mean?...
Well i dont know about ne body else but as for me, i hate talking about Cf even tho i know i have, it took me awhile to even accept it after seeing what it did to my sister. i dont want to be treated...
i have cf and i cant eat drink anything with milk in it. i have a intolernce for milk. i dont like to eat or drink a bunch of calories. i like my weight where it is. i dont wanna be fat ya no so i...
/community/emoticons/confused.gif i have a question for the parents with kids with cf, well today we just found out that my lil baby brother 12 yrs old also has cf, however, my mom is feeling sorry...
has anyone ever sat and thought about what they want to accomplish before they go? what kind of fun things you want to exp.? or just to see? i figured out mine. 1) i want to make sure my son is taken...
thanks. but the docs said they were wrong. its not Artial fibraillation but instead my lungs,so my next apt we are going to talk about our options. my lungs are collasping. but thanks again tricia...
Wow 33 and just diagnoised. You should feel so lucky. i only hope to see that day. hi im 22 yrs old, i was diagnoised with asthma at the age of 10 and told i only had asthma. my sister died with cf...
did your kids have an adnormal liver test result? when they first tested me for cf, i had a pancreatic insuffiency/pancretitis,part of my liver was destroyed,damanged lungs. they recheck my liver...
thanks for the advise burn however, i talked to my boss, he told me sunday that my job was on the line. he said hes got a business to run. can they really fire me for being sick all the time? its not...
Well congrads on going to college. its something i wish i did. but i was stupid and d/o of high school. As far as your Cf, most healthy people dont understand the disease, i lost most of my friends...
i understand your concern, however, does he make HER happy? b/c if he does, itll give her another reason to keep fighting. Trust me i keep telling my dad, just because i have C.F doesnt mean i dont...
Well i found out today why i feel so c rappy. i have developed Af. does anyone no anything about this? all i knwo is it is a heart beat adnormally. i cant find any other info on it. is it dangerous?...
Thanks for the replies. I recieved a phone call today and i know why i been feeling crappy lately. They told me my cystic fibrosis is progressing and because of this i have developed Af. a irregular...
I dont exactly know how to even write this. i havent been doing good at all. i been sick every single week. its getting harder every week. its either a brochitus infection or phenomia. i been so...
Well i been working all most for as long as i can remember. i went from working 6 to 7 days a week down to 2 days a week. Well now im barly working 2 days. im always sick anymore. recurrent brochitus...
hello, this situation sounds oh so familiar. i had to get an abortion about a month ago. all the doctors sort of made me ya no. i do have a beautiful 2 yr old however i was healthy when i had him now...
ok, well my 2 yr son..had a sweat test done..he was high borderline,hes pancreas insuffiency,fatty stools,post for delta f 508..all the same things i go thru and i have cf..well his doctor wants to...
hello there, when i was 13 i lost my sister to cf. my sister and my best friend. she was only 9. the same day of her death 2 yrs following this we find out my youngest brother is a diabetic type 1...
hey there, i dont know if i can be any help but however, greasy stools means like your described, its stringy. you can almost see the grease in the stools. ive always had this but however my docs...
i know and your right about not having to prove to my bf, and everything else yall said, however it was just important to me. i know it doesnt make sense on why the miscarriage is even affecting me...
Thanks lerie, Sorry its just been stressful! i totally agree with ya tho and trust me i cherish the son i have now with everything i have. he means the world to me and i love him with all my heart....
Well this week has been very stressful and now i think im coming down with another brochitus infection(how fun). i just recently gotten over phnemonia, im fighting a UTI, im still in the early days...
Well i just found out today that most likely im heading for another miscarriage. i dont know how to react. i dont. if i was able to carry i woulda had to got a abortion. why cant i have any more...
hello, i just recently found out i was 2 months preg. i already have a 2 yr old,i havent told my bf yet for he doesnt want me to have any more kids. We used protection and i was told i couldnt have...
Well i always cough up some blood but the docs say its just busted blood vessels in my throat from coughing so much and so hard. As for oxygen the docs are thinking about putting me on oxgen only in...
Well first of all, i would think any one who has cf would be offended by this post. Dont you think we think about dying all the time? i have just recently been dx with cf i watch my lil sis die from...
hi my name is patricia. i am 22 yrs old and i have just recently been diagnoised with cf. i have the same mutation my sister did and that is delta f 508 and there was another one i cant remember tho....
[color=red>hello] the mild vs severe cf..[/color]...
well i have primarily been diagnoised. my gi has me on his charts with cf but however he said that the cff has to diagnoise me. i am already on cf meds. i take reglan 4 x daily and i take pancreas...
has smoking made ne ones cf case worse? i been smoking for the past 4 to 6 yrs but am trying to quit now..any good ideas on how to quit? is smoking really that bad if u have cf? what if your in some...
thanks for the reply! i am tryin as hard as i can, but i feel weaker every day and i just want to know for sure ya no what i have..the 10th of this month cant come soon enough. i dont know really...
hi i am new to this board. i had a sister who died at age 9 with cf and just found out at 22 yrs old i have cf. neither one of us thrived well. actually when i was younger i ate all the time. about 6...
[color=red>Hi] my 2 yr old son? i dont want to die. i love living. but im scared. i dont have a lot of support here. im confused. im lost. and well im scared. by the descript ion i have givn u..does...