well, I don't think there is anything I can say that will make you feel better, so let me just say, you are not alone! my name is Jenna, and I am 22 years old and have lost 4 close friends to this...
Casey, I am 22, and I am dealing with exactly the same thing! all my life I felt like everything was under control, but the older I get the more often I find myself compleetly overwelmd! when I am...
well, no it isn't a big deal compared to your other surgeries. I have had all the same surgeries you have had (and a few more) some times the scinus surgreries hurt more that other times, but usually...
I am on 20 different medications when I am healthy, some are inhailed, though most are pills. it is difficlut to tell exactly how many pills I take each day because I take 3-6 with everything I eat....
hey my name is Jenna. I would love to help in any way I can. I am 20 and have sufferd hard from CF all my life. I have been thinking about writing a book myself. more of an autobiography, an old...
I don't think there is a CFer in this world who can honestly say that never in their life have they ever skipped a treatment. that being said, I DO NOT make a habbet out of it. I used to skip...
hey everybody, I am 20 years old and have what you might call a severe case of CF. I have always been very sick with my CF, the longest I have ever been outside the hospital was 5 months, my hospital...
hello, I was diegnosed because of meconimileus as well, I have a very short smal intestine because of it. I am now 19, 4'9", and 83 pounds. keeping wait on is very hard, and somthing I have to think...
hello, my name is Jenna, I am 19 years old, I also have been verry sick from CF since the time I was born. you are welcome to talk to me any time you want, I know alot about CF, and all the different...
all I can say to "does zitho work?" is YES YES YES!! I have been taking zithro for about 3 years now, they have been the healthyest years of my life! I still get sick, and my baseline PFTs did not go...
okay, I cryed while reading your poem. mostly because it looks so silimer to poetry I have written. there is nothing like telling somone you have CF, and the only thing they ask is "when are you...
it. I have what you may call a severe case, I learn about[b] every part of it, and can prity much say I am a CF expert. so I don't know if my problem has anything to do with CF, but I can't sleep. I...
sounds like a fun trip, rmember to take enough of all or your nedications, and make sure you stay in places that will acomidate them, I have never had much trouble with meds on trips. however I will...
hey mellissa, I live in Colorado, I am out of the hospital now, only a week this time, it is usually 2 weeks, but I am doing IVs and 4 treatmetns a day at home so I can get back to school. I would...
oh goodness yes I felt the same way. I am now 19 and still have my monents! I have alwyas been very heavily effected by CF and have had several resistent starnds of psudimonis (sorry I don't remember...
hi Melissa, I am 19 and I was diegnosed when I was only a few months old, I have been in the hospital a lot my entire life and I can remember a time when we were allowed to hang out together. I had...
you can email interview me if you like, I am 19 and have CF. I don't have a lot of time but my email address is [email protected] , I will try to get back to you as soon as I can....
it is compleetly normal to be scard, I've been there, I am there. I too am getting sicker by the week, I know I will be going into the hospital on friday, and that it will only help me for a little...
I have just turned 19 and I am in my first year of collage. all my life I have been very agressave with my CF, I am just one of those people who if I miss my night treatment I wake up unable to...
I think I have to agree with everyone who has posted a responce so far. as somone with CF I can tell you that there are 2 big fears when meeting and telling new people about CF. First is that they...
Lauren, I know the feeling, I am 18 (almost 19) and the other day I was carded for a PG 13 movie!!! it drives me nuts! I am at collage and have moved out of my parents house. I go places and...
I am a girl with CF, I am 18 years old, 4 foot 9 and 85 pbs. I just started college. I not only have a difficult time meeting guys who belive I am 18, but when I do, they usually turn and run the...
I agree Tayra, as bad as things get, there is always somone worse. I didn't mean to give the wrong impression in my comment, as much as I hated the vest, it was a savior for me. the treatments I did...
wow, tayra, your childhood sounds limiler to mine, I had scinus prblems too. my mom prity miuch diegnosed me too. the only thing I would worry about is that when I was really sick and had thick...
yes you can have fals negatives, infact a false negatice is much more common than a false posative. the sweet test is the easyest way to diegnose CF, however there is also a blood test, the blood...
butter butter butter. is somthing has enough butter on it, it can't passably be bad, and is very good for anyone with CF. but maybe I am just strange that way. I have a book called "creative foods"...
I hated the Vest, I used it for 4 years, the vest wasn't invented untill I was 10ish. it was loud, it made me itch, I couldn't hear things, I couldn't talk to people, and I was shaking so much I...
let me start by saying how lucky your sun is to be able to be clueless, I was never given that chance, I have always known the sevarity of my disease, I spent most of my childhood in the hospital...
I have the deltaF508. that is the most common mutation, while I have sever symptoms I treat very agresavely, I spend an hour every day doing treatments and breath in some of the most descusting...
Mike, I can relate to you in many ways. sometimes you just need to know there is somone else out there who holds out home. an optomistic CF pashent seems to be hard to find theese days. when I was...
I am 18 years old, I was diegnosed with diabeties the summer after my 7th grade year. I know I had been diabetic for a while before that, I was always angry, and could get violent. I really didn't...