Hi Emily I know exactly what you mean I went through the same thing. I am very healthy only been to the hospital twice, but I was also very active and so I always said to myself, hey, i'm running...
Hi Audz, I would do whatever you feel comfortable with. If you think that you should tell your friends go ahead, but you have to know they might take it weird and not be your friend any more. If this...
Hi. Neefafeefa, if you think about it and you have cf that effects the lungs then a Cfers lungs always has an infection going on. That's why our mucus is darker than a person who does not have cf. If...
Hi I was wondering if any one has facebook and if you do if you would like to chat. I have alot of support from my family but, my friends are a different story. I have friends but they dont...
Hi. I'm 20years old and was diagnosed at birth. I have heard people diagnosed in early adulthood so yes you could be diagnosed at 16 but if your muscus is clear or white your in good shape, thats the...
blackdoge I know exactly what you mean about the formula all over. I hate that, it's all sticky and feels gross....
Yea I have talked to a cf nutritionist (sp) but they recommended foods that I don't eat. I'm a fairly healthy eater and they were recommending things with high fructose sugar, alot of diary which...
Thanks for your suggestion $Bach30. Thats a good idea, i always try to eat high calorie foods but i never know how much i'm really taking in. One thing that will be hard with that is that I gravitate...
Hi! Yeah I had a ng tube for 10years. I never liked it though. It always made me feel horrible and I didn't gain that much weight with it. I guess it helped keep the weight I had but for 10 years I...
Hi everyone, i'm 20 years old and I was born with cf. I was diagnosed because I had a meconimileus when I was born. I was wondering if anyone else had this and how their doing with managing their...
Hi vestgirl, I am a 20 year old with cf also. I start zithromax maybe 6months ago, I notices a difference with my sinuses, but its hard to tell what else it is helping with because I am on so many...
Hi Kyle, I'm a 20year old with cf I was diagnosed at birth so if you have any questions or just want to talk let me know. If you have aim you can IM me at sweety8828. My transition to the adult...
I agree being active is a key element in a cfer staying heathy. I am a 20 year old and I was very active in highschool I always felt great. once I got into college I didnt join any sports and I have...
Hi Erica, Sorry about your cousin aswell. I am a 20 year old living with cf. I would be glad to help you learn about cf and answer any questions you have. It's really great that you are raising money...