Hello, I dont get on here much but i try when i have some free and quiet time. so My daughter will be 4 in march and she was diagnosed with cf when she was 16 months old. She also has the double d508...
My 3 year old daughter is taking 1 pancrecarb ms8 and one ms16 with meals and taking 1 ms 16 for snacks. is there anyway to see how many she is supposed to be getting? she is 31 lbs, but she is...
i am needing some advice on getting my 2 1/2 old to eat more caleries. she went to the doctor today because she has been couging a lot and sometimes vommeting with the cough. he said he x-ray of her...
Gabs Mom Will your daughter drink Pediasure? My daughter drinks 4-6 a day and it is really helping. her doc also put her on Zantac that may help your daughter, it seems to help mine as long as she...
Hi, I wanred to let you know that me and my husband found out in august that our daughter has CF. she was 17 months old. She is doing GREAT!!!! she goes to the doctors once a month. Her lungs are...
My daughter is 2 and weighs 23.5 lbs...
my daughters test was positive and they ran a second to be positive cause it is a disease and they want to make sure it is true. is he going to an acredited cf center? melissa...
they usually get the results the next day or if they write STAT on the order they will have the results within a few hours. the first test i had done they called me the next day and the second on we...
Hello I have a Daughter that is going to be 2 in march and me and my husband just found out last august (2006) that she has Cystic Fibrosis. we were very upset when we found out. but she is doing...
Michaela does z openex and pulmacourt 2 x's a day and we have to do the chest poundings although she never coughs after i am done but they say it is because he lungs are clear. she is doing awsome....
Thank you all for your replys. My Boy Tyler couldn't wait till the 14th to be born i went into the hosp with contractions on the 12th and they did a c-section that day instead of waiting till the...
BOY!!! Tyler will be his name Melissa...
Thanks for you help. She is to drink pediaure 4-5 times a day and she does really good drinking that i just feel like she should be eatting meals also. i took her to the doc on saturday and she still...
Hello Everyone I have a 21 month old daughter that was diagnosed with cf in August and ever since she has started taking the enzymes her eatting has gotten worse. lately she won't eat anything i...
My daughters doc wants her to drink 2-4 pediasures a day which is going pritty good some days she really wants it and some she just doesn't. i just had to take her to the ER sat night cause she was...
thank you momof3boys1girl...
Hi everyone, I am a mother with a daughter recently diagnosed with cystic fibrosis. let me tell you it was really hard at first but now im getting used to it a month later. it just seems like i can't...
Hello, I am a Mother of a 18 Month old and due with another in december. my daughter just got diagnosed with CF. she was sent to a pulminologist. she also had the sweat test done 2 times and both...