I would get the sweat test also. The reason is that the CF panel does not test for all the mutations. It only picks up what they are specifially looking for, and thats the most common types. You...
Not to stress you out any more than you already are, but you MUSt not give up just because this child is fighting you. If you cant get this baby to eat or drink then you may end up having an N-G tube...
I have not heard from the forum administrator yet. How long should it take to get a response? alan...
If the blood test is the CF panel, in should pick up the mtation as long as it is one of th more common ones, like the delta F508 genotype. If you get a negative, you should still get the sweat test...
Hi Ann, I can understand you being worried. Wait for the sweat test results. Usually they dont take long at all. If it is done in the hospital you should know within 24 hours at the most. Whatever...
Hi, No I haven't, and I just read the rules page. Thanks. I will do that now. I wasn't planning on posting the article here. It is available to anyone who wants to do a search. You can go to...
Hello, my name is Alan Himmel. I have a 6 and a half year old son with CF. I have been a member of Sharktank for about 6 years, and in fact coauthored the latest research paper you see published...