My daughter also had two borderline sweat test results and we finally had a fully DNA test to get her diagnosis. Since she has CF, our CF clinic recommended the DNA test for my other two kids (one is...
Melissa, My daughter won't drink pediasure or carnation instant breakfast. I have been adding heavy cream to her whole milk and she's tolerated that pretty well. At this point her only issue is her...
My 19 month old has CF and we were told to remove the humidifiers from our house due to risk of pseudomonas. We're are a humidifier loving family and we're suffering. Are there any "safe" humidifiers...
This is such a difficult time for you. We waited for 9 months through multiple sweat tests and blood tests to get a final diagnosis of CF. Just know that you are not alone. It's been almost a year...
I'm in the same situation with a 19 month old who doesn't want to eat. The only supplement she'll drink is Boost Breeze, so she gets one everyday. I try not to get frustrated when she doesn't want to...