I am followed by the Mayo Clinic also. Are you diagnosed with complex migraine or hemiplegic migraine. I just wanted to be clear with the stroke risk -- being diagnosed doesn't raise the stroke risk...
In my searching for information on my migraines I came across a clinical trial information website that had the PFO Closure trial on there. It was www.clinicaltrials.gov -- you just type in...
I have tried midrin and it didn't work for me but that's not saying much seeing as MOST meds haven't worked! I am currently taking Topamax 200mg daily for prevention. Do you ever get the "aura"...
I have had several MRIs and CT scans over the years to monitor my migraines along with an EEG to rule out seizures -- which it did. My latest MRI did show "white matter changes" or white spots that...
Thanks for the response! I was on propanolol too a couple years back and DID NOT do well on it either!!! I really have no idea why they want me to try this -- I think they are grasping at straws at...
I have had many -- lost count! My family on my mother's side has a history of these so mine is "familial" due to it being genetic but there are also what they call "sporadic hemiplegic migraine". I...
I am looking for info on using atenolol for the prevention of migraines. I had a consult with a "staff" neurologist to see if he had any ideas on where to go with my migraine situation and he...
Hey there.... I have those too and my neurologist diagnosed them as Hemiplegic migraines -- My arm stays weak for 5 to 7 days afterwards though. Due to the hemiplegia, people that are diagnosed with...
Wellbutrin SR 150mg twice a day...
HEMIPLEGIC MIGRAINES!!! I am diagnosed with them and I too have left sided partial paralysis along with peripheral vision loss on the left side, then pain on the right side of the head - HOWEVER -...
Hi there and welcome. I am diagnosed with hemiplegic migraines and therefore cannot take any of the migraine specific drugs such as triptans and ergots due to the stroke risk. My docs have tried the...
Hi there. I was given trazodone for insomnia - 100mg -- didn't work for me at all. Hopefully you will have better results! --janet...
I was taking fiorcet for awhile to see if they would help my migraines and the #1 thing my neurologist stressed and I mean STRESSED to me was to never take it more than 2 days per week due to the...
Thank you so much for the websites....I found them very helpful and insightful. I am going to the neurologist on June 5th. The neuro I have been seeing is meeting with the new one to discuss my case...
So, Hello Kitty, you have pretty quickly changed your opinion you posted on the hormone balancing thread and I quote "(I think people who use painkillers for migrianes are just drug addicts)" and...
Thank you so much I am going to look at it now! My neuro appt that was supposed to be tomorrow now isn't until June 5th AND they switched docs on me too! AHHHHH!!! But that's what happens at Mayo! So...
Anyone here with any experience? Know anyone who has used these for intractable refractory chronic migraines? Any info, suggestions, or opinions on these??? Thank for your time! --janet...
Hey everyone.... I am wondering if anyone has information or has participated in the clinical trials for the occipital nerve stimulator. It's a neurostimulator that delivers electrical impulses...
I know all too well what you are going through....All I can say is hang in there....I know how it feels to go to the ER and get the looks and the attitudes that you are a drug seeker -- I have been...