Don't worry about the catheter, they can put that in after you are asleep. Trust me, after you wake up for the first few hours you aren't going to want to get up to pee. It didn't hurt me to get it...
I had my colon removed on September 27, after spending pretty much a whole month in the hospital. I was scheduled for surgery on a Tuesday, and the Friday before the surgeon came in my room and told...
Hi! I was wondering if they make bags for swimming, ones that are maybe a bit smaller and not see through? Also, do any of you wear two piece suits with an ostomy? All I have ever worn are two piece....
Thanks for the info! I was thinking that the smaller bags would be good to use while swimming too? Sorry, I am new to this ostomy supply stuff!...
I would at least call the doctor's office and check. Then at least you will have gotten peace of mind and medical advice from your provider. Hope everything is ok!...
I have just had my colon removed and an iliostomy placed, and I have heard that I can order small disposable pouches to use during sex, but I can't find anywhere to order them from. Do they really...
Hi! I hope everyone is doing well. It's been a long time since I've posted, but I was so sick this winter and spring, that I didn't even have energy to turn on my computer. I have been flaring up now...
While on Entocort, should blood glucose levels be monitored in a non diabetic patient? I know that during prednisone therapy this is important, but what about Entocort?...
I don't have any personal experience with it, but I read a study that found that Lialda had a significant benefit over the placebo in helping improve colitis. If I can find the link, I will post it....
Itching is a common reaction to Dilaudid. Before taking it, try taking an antihistimine first. I get extremely itchy if I don't take a Zyrtec before I get dilaudid. Take care....
I think MTX can deplete your body of folic acid. It may not help the pain in your joints, but might help with your mouth problems. You should call your doctor and ask. Take care....
I am not currently getting Remicade infusions. So far, antibodies haven't been an issue for me. I guess I am just at the point where I am ready to give myself a colectomy or do whatever it takes so...
Nanners!!! Being in pain sucks. I hope you feel better soon!...
Hi everyone! I am looking for some input here. I have been on Remicade twice in the past with about a three year break in between my last infusion a couple years back and my first infusion again this...
I have actually had active bleeding and lots of diarrhea, and a colonoscopy that looked grossly normal. Twice. My doctors were all very puzzled, but both times I was rescoped a few weeks later and...
Yuck, I hate Fleet enemas. I would rather drink two gallons of GoLytely. The Fleet enemas cause me severe burning when they come out, but I am the only person I know that this happens to. Maybe I'm...
Wow, I didn't know that there was now a generic. I was on that until two months ago. For my rx insurance Colazal was a non formulary non preferred drug, so my copay was $80. That is great if there is...
I have had iron infusions in the past. It took almost an entire day for the infusion, but they had to slow the rate down so that it was hardly dripping in my veins at all because I started having a...
I saw my peds GI through age 22 and just recently switched (I am still 22). Honestly, I would stick with the peds GI doctor. I find that many pediatric doctors are so much more compassionate than the...
I am anemic too. As of midweek my hemoglobin was 9, which is down from 10 two weeks ago. I found this out in the emergency room (I went for dehydration). I have obvious GI bleeding though so I know...
Hey, it sounds like we are having opposite problems, lol. My family believes me and is behind me 110%. It is docs I am having an issue with. Maybe we should combine resourses and then we could get...
Actually, it wasn't the er that was the problem. The doc was wonderful and even asked me what pain meds work best for me. It was the adult GI doctor who doesn't believe I am bleeding, along with my...
I itch when I get Dilaudid but I agree with the others that LFTs should probably be checked just to rule out liver issues. Hope you stop itching soon!...
Hi guys, thanks for all the support. I know I'm anemic because my H&H are both low. I got some help from my peds GI doc. She printed out a bunch of pathology reports from my previous scopes. She then...
I have just had the worst hospital experience ever. I am anemic. I ended up going to the emergency room because my resting heart rate is around 130. When I stand up, it jumps to 150 or 160. I was...
Ugh, bras. I hate them too. I usually go to the lingerie department and buy the camisoles with the built in shelf bras. I am pretty small, so it is enough support for me most of the time. I am so...
Hey all I was wondering if going to the er to get fluids would help at all with my anemia. I live on the third floor of my apartment (no elevators), and by the time i get to the top things are...
The pain management doctors here all seem to require referrals. I just don't have the energy to deal with all these offices anymore....
I am so frustrated and upset right now I don't know what to do. I have been having pain issues, and it is getting to the point where I can't function. I called my primary care doctor for a referral...
My pain usually tops out at around an 8. It is better in the mornings most of the time, and by the time I get home from school I can hardly move. All I want is relief....
I have been pretty much flaring up since July. I am in severe pain for at least half the day, almost everyday. I am in so much pain, but none of my doctors seem to want to do anything about it. How...
I got an appointment at the Cleveland Clinic for the end of February. Hopefully I can make it until then!...
I was admitted tuesday to the hospital because I have been in a flare and can't get out of it. I have never received worse care than i did at this hospital. i went through the er, and the gi fellow...
"The goal of life is not to arrive at the grave in a well preserved body, but rather to skid in sideways, totally worn out, shouting holy s*!% what a ride!"...
I was scoped in August, September, and December. It's no fun, but I do it because we need to know what is going on in my gut because I am so close to surgery being my only option to control the...
We had ringworm go around the dorms last year, and we all got antifungal cream from the doctor. Maybe they would do something like that, or if it is bad enough, maybe some pills? Anyway, hope your...
I am in the same boat as you mcleaver. I am starting to bleed pretty badly but am trying to give the humira more time to work. I was thinking about enrolling in a clinical trial if the humira doesn't...
I would call and just have them look at it. I had an infected incisions back in September. They were more tender than other incisions I had had, were red, and warm to the touch. There was also puss...
Hey everyone! I have had two doses of Humira, and I haven't seen any improvement. If anything, I am getting worse. Bleeding more and going to the bathroom more. I am so discouraged, I really thought...
I was wondering how long it took everyone to notice an improvement from humira. i started it last week and i haven't seen a difference yet. i know i still have to get more injections, but was...
I was wondering what kind of pain meds doctors are willing to prescribe for Crohns. I have been having some pretty bad pain, but I'm not sure what to ask my doctor for. Any suggestions?...
I have to start taking Humira because Remicade isn't working for me, and it is my last option before surgery. I had my first four injections, and they really hurt. I was wondering if you can get them...
Hi! I think seeing a counselor is a great idea. There are counselors out there that specialize in helping people with chronic medical conditions cope with the emotional and mental aspects of having a...
When I forget to take something, I call my doctor to check, especially when dealing with steroids. Just my two cents though /community/emoticons/smile.gif ! Take care!...
I was wondering if I really need to be taking my 5-ASA med (Colazal). I am already taking Remicade. I have had several flares over the years despite being on some kind of mesalamine based medication...
Hope you feel better soon! Take care!...
I had a question, I am new to the GYN world. What is a LEEP? Anyhow, I hope that everything is okay with you. Take care....
I get mine done at a hospital, and it usually takes about five to six hours. I think the most time is taken waiting for the pharmacy. They can't mix the Remicade until you are there and cleared for...
Yoga!! You have to keep in touch! I completely understand your frustrations. I also wanted to suggest something for your pain, because I had horrible pain before, and nothing worked to relieve it but...
Hi! I was taking 6 MP, and I flared, so my GI started me on Remicade. Once she started me on Remicade, she stopped my 6 MP. Her reasoning for this was that the doctors are now finding that people...