Can you ask your current doctor if he can refer a gastroenterologist there? Of course, since you need a referral, you'll have to find a primary care doctor first. There are websites that rate...
Good for you!...
Hi everyone old and new. I have been away for a long time, though I see some of the old-timers on Facebook, which I joined a few years ago. For a while before that I didn't have a lot of time on the...
HI jeanne. Your doctor should be able to see a fissure and treat it effectively. I had a fissurectomy and then a fissurotomy for the same one, but that was before anyone knew I had Crohn's. I have...
Cleo, nice to see you again, and so sorry about your insensitive boss. As I started to read your post I remembered that I had terrible problems breathing when I was extremely anemic and needed two...
Just have a spare moment or two after a hectic weekend with grandnieces, but I, too, seem to have been blessed (or cursed) with a super sense of smell. I read somewhere that one of the first signs of...
Hmm, is there some part of "facilities" that is a bad word? Maybe I am naive, just wondering why it was asterisked. LOL Okay, it's here this time; so it must have been a typo. Please forgive whatever...
I buy the English or European cucumbers. They have no seeds, or very few. And I pare them. I really do love them, too, and can manage them better than lettuce. Had some on a sandwich today....
I remember having to change pews in church because a perfume was so heavy I couldn't breathe. I sincerely hope that I don't offend either with artificial scent or with "natural ones" either. I have...
HI, Ivy. While I guess I can consider myself a long-time CD patient, I was in my forties before I was diagnosed. (I am 70 now.) I suppose I can say that my marriage was a casualty , but it was not in...
Yes, guilty of fatty liver, too. It's been noted but no one seems to worry about it; so I won't. I don't drink and I don't digest fat. My guess would be the meds....
Yes, I have both, but I was on a lot of prednisone (60 mg per day) prior to developing diabetes. Trying to follow both diets is tricky, and recently I had a kidney stone removed and have to limit my...
Hi Bible. I am so sorry to hear that the ugly "unknown" has reared it's ugly head again. Was it your gastroenterologist that filled that word in? I feel certain you'd get more attention with a more...
I was so lucky when I needed the B12 shots. At the time I had no insurance (I know, a big no-no for us) because I was working as a nanny. That was a stress-free job, the only one that I could handle...
Yep, mornings are worst for me, too. I've had morning sickness since I was a teen, two decades before the Crohn's was diagnosed, and still haven't given birth. Fortunately, my daughter's birth mother...
Lynn, it's so nice to see you here again. I have really missed this site, but my brother has a big, interactive family and there aren't so many chances to be at my computer. My regular time used to...
Nanners, I agree with you. I just wanted to clarify that I have never asked for dilaudid in any form, but they gave it to me in the ER. This is the first time I've had it in oral form, and that was...
Thank you, FallColors! Do you live in York or nearby? I'll bet it won't be too long before the fall colors show themselves there. You gave me some great advice and I will check it out....
It is extremely rare for me, despite old age, to be constipated. I find that darvocet, or dilaudid if things are really bad, slow me down enough for me to travel an hour without having to stop....
Just wondering, has the doctor checked for a fissure? Usually, with that, the pain comes AFTER a bout of D, though, not before. I am guessing yours is somewhat higher in the rectum. For fissures,...
I'm a fan of dilaudid, too, for when the pain is completely out of control. My family doctor knows and trusts me and I was surprised at the amount she prescribed for me after I was released from the...
Thanks so much, MAG. I used to live in Johnstown, which is much closer to Pittsburgh than York is, and for several years I lived in Baden, PA. If I ever have to go to a nursing home, I would want to...
Hi again! I'm still trying to get back to being an active member here; the older I get, it seems, the fewer minutes there are in each hour, fewer hours in each day, fewer days in each week, etc.,...
Sniper, I have missed you so much, even though I haven't been active for a good while myself. I do think of you so often and pray for all Crohnies every time I have to run to the bathroom; so...
Thank you so much for welcoming back the "prodigal daughter." Nanners, I did Email Sukay and hope she got it. I told her I'd post here when I could. By the way, I meant 11 days ago, not that I was in...
I promised an update, but it will have to be in bits and pieces, I'm afraid. First, though, I want to thank all of you for being so patient and not forgetting me during a long absence. I am reading...
Dear Gail, As a survivor of a mere 25 years since diagnosis, I marvel at your perseverance and dedication. You don't give in to this DD; you use it to empathize with and inspire others. Having been...
I started to experience relief sometime between my second and third infusion, probably around five weeks or so. I was on it for several years. It stopped working for me, but don't worry, that doesn't...
I've had surgery on three hernias and now have mesh in my abdomen to keep things in place. I don't remember having any pain with them. The first one was off to one side and I was lopsided. They fixed...
Hi and welcome, kal. Wow, when it rains it really does pour! Give yourself a big pat on the back for dealing with all this. As for predictions, they're impossible. For me, the first year was the...
Hi and welcome, cici, though I'm sorry the entrance requirements are so demanding. I, too, have as hard a time with fatigue as with pain, sometimes more because I know the pain is real but it's hard...
Randy, sorry. I inadvertently missed your post. Thanks for the invitation; I'll take it under advisement. Stef, I knew people here would understand "poo poo" prayers. Thanks for the name. Mcleaver,...
A while ago we proposed renaming that stuff "Goharshly" or "Goforever." I feel for you. Prayers for a speedy recovery and lasting relief....
I don't eat anything with a gummy texture. Culprits that have caused obstrucitons for me are eggplant, mushrooms, and other similar soft but firm foods. I suppose candy might dissolve before it...
I have diverticulosis, which can cause left-side pain, but it doesn't bother me very often, only if it gets inflamed and turns into diverticulitis. That's happened just once or twice, and antibiotics...
Thanks, lamb, Kitt, Jon, Ides, Susie, teddybear, Mary and Ivy. You are all so kind and patient. Jon, I would have Emailed you; I am so far behind. Ides, yes, Keah and I had a laugh once she found out...
Thanks so much, new friends and old. Matthew, fortunately my tailbone pain is easing now. The neuropathy is apparently from my spine and not due to diabetes. I have decided to be less demanding of...
Hi to old and new friends here. I have been away so long. I posted an apology and update on the Crohn's board, which you can find here....
As some of you may have noticed, I am no longer a moderator. Peter was kind enough to encourage me to stay on even when I was not pulling my weight, and I did so for as long as my conscience would...
Beautiful post, Belleenstein. I, too, am so sorry to hear about your daughter. I just can't imagine anything more tragic. In coming to terms with your loss, you have learned so much, and I thank you...
I have said this before but it was probably years ago. When my daughter (who now has teenagers of her own) was a teenager, she told me that the reason she didn't do drugs or drink alcohol was that I...
I am on 250 now but my doctor says that is the limit. It took that much for me to reach (just barely) the therapeutic level, per the Prometheus test, and, of course, my toxicity risk also rose. So...
I have always had trouble spelling diarrhea, mostly because I hate the word. BC (before Crohn's, that is) I couldn't even say it out loud. I still call it D most of the time. Anyway, I think it's a...
I had a gastroenterologist ask me how to spell Entocort. Best not to sweat the small stuff....
Hi Randy! I didn't forget you, or this forum, but have been AWOL myself lately. I'll write an update soon and also an explanation of why I have resigned as a moderator, but for now I just want to let...
I, too, thought of a ganglion. I had one there, but, fortunately it did not require surgery. I wore a brace for a while....
It goes without saying that all here and their loved ones are in my prayers, sniper. Your wife is definitely included every time I go into my "prayer room" and at other times as well. Thanks for the...
Sniper, thanks. I didn't mean to ***** on your post, it was just a whine. I hate cleaning, always did, even when I was "well." I am happy living with my brother and his family. I'm not giving up...
I had two days of iron infusions more than a year ago, and that worked. My levels are still in the acceptable range. Hallelujah! The eight hours were worth it....
I have been on 200 but the Prometheus test showed it's still not at a therapeutic level. So the doctor upped it to 250, and I have to have the test again next week. I think that's as high as he's...