Hi Beth, I was taking Dilantin and Tegretal XR and getting sick every time I tool them. It was because the neuro I had thought he could stop any seizures with meds. I was overdosing. Call the neuro....
Hello Mamapen, I have complex partials and sometimes I'm told they're a bit different. Sometimes I grab at my cloths or just keep doing someting I was doing before the seizure started. I always smack...
Hello Andrew, I've only been taking Keppra for a few months. I think it's helped more than any other AED I've taken since Dilantin. I have had some side effects that aren't bad. I was pretty tired...
Hi Unsure, Make sure you're supportive of him no matter what happens. Many times a neurologist will stop meds because a pactient isn't having enough seizures. Some people actually stop having them...
I've got type I diabetes and TLE. Low blood sugars can cause seizures but if you have seizures, it raises your blood sugar level. What kind of meter do you use? Are you sure you have it coded right?...
Tamara, If your having these seizures at night, make sure they look into a sleep study. I'm not really sure what it shows but it would be better than being put on meds the rest of your life. I think...
Hi Dragonfly, I live in Wisconsin too. I live in SE WI. I know the Marshfield Clinic and know that they are very well respected. I never dealt with them but my grandparents had all thier specialists...
ttwofour, I'm taking 300mg dilantin 500mg lamictal and 400mg zonegran a day now. I've taken dilantin for about 15 years. The worst side effects I've had from dilantin is discoloring of my teeth and...
Hi Chassie, I was on Depakote about 4 years ago and the only side effect I remember is that when the neuro raised the dose too high I would vomit. I was taking Dilantin also. I may have had other...
Thanks for responding to such a rediculously desperate thread. I'm the first one at this hopital to have this procedure done. I'm at a teaching hospital in Milwaukee but it's not an accepted way of...
I had gamma knife surgery 8 months ago and I know it takes a long time to show full results. I really thought I was getting something out of it last month. I guess I really have. After the surgery I...
Ive been on Lamictal for about 1.5 years. The only side effect I might have had is a terrible headache after taking it for a month or 2. I know it's used for difficult to control seizures but I don't...
I was told about the time betwene surgury and posible control. I also read as much as I could on the subjuct. It was given as a last posibility for me because of my health. They didn't want to do...
I had gamma knife surgery in August of last year. I'm finally showing some of the results I guess. I talked to the neurosurgon last week and he said that he can see some changes in my hippocampus. I...
Hi Michell, I was recommended for VNS in 98. I chose to go thew the surgey program instead. Do you have temporal lobe epilepsy? If you do and VNS doesn't work out you should ask if your a candidate...
Nikki, Your dilantin level is suppose to be betwene 15 and 18 I think. It can be very toxic, the real problem I was told about that is that if you take too much it will actually cause seizures and...
Hi Mary, I'm taking Zonegran. I take 200mg in the morning and 200 in the evening. I also take 200mg of Dilantin and 250mg of Lamictal in the morning and 250mg of Lamictal and 100mg of Dilantin in the...
Hi Mary, From what I understand an epileptologist is required to have two Phd.s. Mine has her's in medicine of course specializing in neurology and intractable epilepsy,and then in neurophsycology. I...
Memeory sucks. I have 3 spiral notebooks and a loose leaf binder in my room. It's to remember when to talk to my kids and get online with them. I would never find a webpage if I didn't have them. I...