Hello Everyone It's been ahile but I am finally back online. Hope everyone is ok?? I have some good news. Firstly I won Ellie's school appeal and she is going to be staying at her school Sheredes,...
Hello Now im back online I can't keep away. I spoke to Hertford County yesterday and because of Ellie's medical conditions , the letters that have been written may be enough for her to go to the top...
Hello Everyone It has been awhile I know what with moving home in january we have not had access to the internet but hey were back online again. Juat wanted to let you know the great progress Ellie...
HAPPY NEW YEAR TO YOU ALL XXXX Hope you all had a lovely christmas?? Our trip was wonderful, we had such a magical time and I didn't want to come home! We are definately going to book again next year...
Thanks Carla Speak soon. Dee xxx...
Hiya Carla Thank you very much for that message, it was kind words thank you x x Touch wood things are still going good for Ellie she had a small seizure on Monday but it really was small, if I...
Good Morning Sorry for the delay, what a hectic week!!!!!!! It all started over a week ago the girls had a bad cough and I took the to the doctors and they gave them antibiotics. Then last saturday...
Hiya everyone, Just walked through the door it's now 6:55pm. Ellie's sleep EEG went well will post a reply later or tomorrow! The unexpected happened today whilst at hospital with Ellie I had a phone...
Hiya Carla Thank you very much. x I haven't added anything on Ellie's site for awhile I will do this week. It is 9:20pm and Ellie is slowing down, she has a pillow and a fleece blanket on the sofa, I...
Hiya Carla I will keep Ellie up late and get her up early, I hope she does fall asleep. We were on a good run with Ellie she hadn't had a seizure for 2 weeks, on saturday she became quite poorly....
Hiya Carla Thanks for the reply, I will let you know how it all goes and the results. I can't help thinking Tuesday morning is going to be a waste of time, as I know that Ellie will not fall asleep...
Hello I got a call yesterday from the hospital and they want Ellie to go in first thing Tuesday morning for a sleep EEG and sleep observation. I thought they were going to have Ellie in overnight and...
Good evening just thought I would let you all know what is going on with Ellie . We are now on 4ml of Epilim in the evening and 3ml in the morning still, next wednesday we will be increasing the...
Hiya Darren Will keep you posted on what happens with the consultant. We are off to Disneyland Paris, we are going christmas eve and staying for 5 days. I can't wait and neaither can Ellie. Dee...
Hiya Darren, We went to see the consultant the other day and she didn't seem to fazed by what was going on with Ellie. SHe feels that Ellie is stil have the seizures because she wasn't on the correct...
hiya Carla I have had trouble trying to log into my healing well account and sat and wrote a new post to answer Darren the other day and then when I hit post it told me i had to be logged in first,...
Hiya Darren, Your younger than me, the way you write and your knowledge I thought you had been around for years. That is great that your mum spent so much time researching Epilepsy for you, that is...
Thanks Carla I need them believe me. It never rains but poors, I could write a book about my life over the last 2 years you would not believe what we have been through. But we keep smiling and we...
Hiya Darren, Thanks for explaining it, sorry if I sound silly but you did confuse me! I will talk to Ellie about it and see what she says. I am a little worried at the moment, my cousin was...
Virgina, Thank you very much for the repsonse and YES it was a BIG HELP. Thank you for sharing your story with me and everyone on healingwell. Your story is not ublike Ellie's all negative results....
Hiya Darren, Thanks for the respomse, sorry to sound stupid but could you explain a little more??? I kniow auditory aura is something to do with sound and what the brain is experiencing, but could...
Hiya Something I keep meaning to mention but I keep forgetting. Ellie has started waking up after being put to bed any time really from 9:30pm till 5am in the morning. She keeps telling us that she...
Kota Thanks for the message. I am sure it will help and thank you very the suggestion. My uncle said the same to be honest adn said that he had heard something on the radio about someone in the same...
Darren, Thanks fr the message, you really are a great help, perhaps you should write a book! It would be a great seller! UNLESS YOU ALREADY HAVE ONE???? Will keep you posted on what haapens and...
Hiya Carla Thanks for the message. I MADE A MISTAKE..... Ellie's appointment is next wednesday 14th Novemeber, so will have to wait another week. I will be firm with them though and tell them I want...
Hiya Huk, The challening behaviour is obviously to do with teh Epilim. We find it so hard to deal with, we need to sort out a punishment, because there is no way we can send Ellie to her room and...
Thanks Darren, Thats a great help, the doctors do know about the viral thing I mention it every time I go to the hospital I am going to start speaking a bit louder this week. It's monday morning and...
Good Evening Darren, Thanks for the reponse. Can you please explain what Juvinile Myoclonic is please??? I am going to insist on wednsday that Ellie does have a sleep EEG done, because we do need...
Hiya Huk, My 3 year old daughter was diagnosed with Epilepsy about 3 1/2 months ago now and they put her on Tegretol first iof all otherwise known as carbamazipine. First of all the seizures seem to...
Hello another day After the last EEG that Ellie had they did suggest that they would do a sleep EEG but as of yet nothing has been carried out. Ellie has been taken to hospital twice by ambulance in...
Good Evening all, Just wanted to say thank you for all your replies. sorry for the delay, my internet supplier has failed me all week hence the late response. I heav read all response's and I am very...
Hiya, Thank you for the response. I am sorry to hear about your daughter, I thought we had a tough time with Ellie I can understand your pain too. Touch wood Ellie has not injured herself when having...
Hiya Darren Thanks for the detailed response every bit of information is very much welcomed and appreciated and I will take it all on board. If I have any more questions I will be posting thank you....
Hiya Kota, Thank you for the welcoming pst it is much appreciated. /community/emoticons/tongue.gif Ellie was knocked over before her 2nd birthday and cracked her head open on abrick wall and had to...
Hiya, After just reading your post you have given me more of an insight into how my daughter must be feeling when she has a seizure. She can only ever tell me that she has had a fit. I ask her to...
Hiya My daughter has just been diagnosed with epilepsy and I have occassionally noticed her right hand twitching. When she has a seizure it is very severe and very noticable the twitching. But...
Hiya Marji, Thank you for the response and the info. With your son being 19 obviously he can tell you how is feeling and you have been living with the symptoms for 15 years now. I will speak to...
Hiya Darren, Thanks for the response. To be honest I am not sure what Epilepsy she has been diagnosed with, after 2 normall EEG's and a normail MRI scan Ellie's was beginning to fit more frequently....
Hiya Marji, Hope all is well? I was just reading your post. My daughter Ellie, started having seizures at the age of 2 after lots of tests and well over a year later she was finally diagnosed with...
http://www.elliesepilepsy.blogspot.com ) However 3 months ago Ellie was diagnosed with Epilepsy. Ellie continues to have seizures weekly. It is all so new to me and my family. I am trying to find...