I have new bruises popping up everyday and I dont know why....my Rheumy said it was low platelets....
Hello, my marriage has been greatly effected by this disease. I dont think my husband understands what kind of pain I am in....and I think he resents the fact that I am not the same person he...
Hello fluterecorder, and welcome! thank you for your reply. Is this Lupus related for you?...
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Hello, I know how scary it is the first time you experience pluerisy. It is not fun at all. I get it alot. Rest and steroids is really all that helps me. Take care of youyrself and I hope you feel...
My main pain is my neck, shoulders and arms. My spine feels like someone is wringing it our like a towel. The meds just make it tolerable but the tenseness never goes away....
Thanks for all the advice and info. I will juat keep trying to add a little everyday to my diet and stay away from berries.....they seem to bother me the most!...
This has been happening to me too but only in my right leg in the calf muscle. It feels like a tight band around it. If I do some heel flexes it seems to help the tightness but not the pain....
Hi everyone, I was wondering if fruit bothers anyone else with IBS? I want to mush to eat fruit but everytime I do I get terrible stomach cramps and gas. Is that normal? Is there anything I can do or...
Take care of yourself and I will be praying for you and Willow. :)...
My health has taken a terrible toll on my marriage. My husband doesn't deal well with illness and sometimes I almost feel like he doesn't believe I am really sick. He has made comments that if he...
When I was 23 I had my gall bladder removed and was told at that time that alot of the symptoms I was having was from the diseased gallblader. But now that I have found out 20 years later that I have...
that site is wonderful....thank you so much for sharing it. It is so amazing to me that 22 years ago when I was dx with Costo no one I knew had even heard of it. I thought the Dr made it up just to...
Hello, I also have Lupus and Fibro. The pain you are discribing does sound like fibro. I experience the same pain and have since my early 20's. Stress and fatigue does trigger my pain alot. You...
thank you so much for the info. I am bloated all the time and I look pregnant sometimes too. I am going to buy some tomorrow...:) I hope it works for me too!...
Thats really funny. I can't stand or sit straight because of the scoliosis. So I guess it was inevitable for me to have fibro and everyone with scoliosis has fibro? LOL...
Hello, this happens to me all the time when I am in the sun. But it usually goes away in a few hours. I just figured it was sun sensitivity....
Well, I think about going back to bed or taking a nap all the time but I never do it. Even when I have an opportunity I don't....why? I have no idea. I am always tired. I usually have a small burst...
I forget it I took my pills all the time. I forget my address and phone number. I also forget where I am going sometimes. I take my parents to their dr appts and I have my dr appt too....and I have...
I us both. I have an electric heating pad I lay on and a couple bed buddies I use everywhere else. I am buying a microwave for our upstairs gameroom so I don't have to go downstairs every hour to...
I fell down the stairs in my house on Monday, but I was already in such a bad lupus and fibro flare I am not sure if I would have noticed if I was sore from it. I was just happy I didn't break...
Hi Lovedbyhim, No, you are not alone. There is always someone here ready to help! I can't take nsaids but I have been told they work better too. If you can take them its worth a try...:) I hope you...
What brought you to Arizona? Sometimes I wonder what I am doing here between the hot sun and the dust storms it really isn'tthe best place for someone like me. I love to swim and I have to wait...
Hi Tammy, welcome and you are at the right place. Sometimes just having some place to go to vent and get ideas from people who are going through what you are is better then medicine.....:)Reading all...
My Rheumy and I talked about whether it was fibro or lupus but we were pretty sure because of all the joint inflammation and the pleurisy kicking in again. But I think both are flaring and now the...
I have had all the symptoms since my 20's and didn't get dx until I was 41. My labs have never been positive for lupus. But my rheumy watched my symptoms and I had every other criteria except the...
I had to give it up because it didn't help my anxiety either. Every day after my 2 cups of coffee I would start feeling anxious and get cold sweats. My pain would get worse too. Since I am caffiene...
I have been in a terrible flare for the last 2 weeks and it just seems to keep getting worse.Every joint in my body is inflammed and hurting and I was starting to feel the pluerisy coming back. So...
Thank you, Chutz...:) I am going to order them now....
Hi Tootie, I am trying to find it on the website.....what is it called? I want to try it right away...:)...
Hi Denise, I know exactly what you mean..:( Some men just don't get it. I have been in a terrible flare with lupus and fibro the last 2 weeks and my Rheumy has put me on prednisone for a while and...
Hi Kathy, I don't have much to add as everyone else here knows so much more then me. But your story sounds so much like mine. When I was in my 20's I had chest pain that started in front and went...
How do you become legally disabled? I have been dx with Lupus and fibro......my Rheumy says that I am disabled and doesn't want me to work. I just don't understand what legally disabled means...:)...
I can't wait until my pool is warm enough to start swimming again! My pain level goes down alot when I can swim everyday. Its really the only exercise I can do. If I could afford it I would heat the...
HI Danielle, I am so happy the heating pad is helping. I love mine so much my husband is jealous of it....lol It really becomes your best friend...:)...
I was wondering if you can apply for ssdi even if you are still working. I had to stop my full time job as an office admin but right now I am a caregiver for my parents who live with us. I am paid by...
Hello, You have come to the right place. I have learned so much here and everyone is so supportive. I am on the Lupus board mostly but I was dx with fibro first. In a 4 year span I gave birth 2 times...
Hello, I was dx with costo 23 years ago. It always seemed to get really bad if I had a cough but the soreness is always there. In the last 2 years I have had pluerisy a couple times a year and once I...
I bruise very easily and alot, but I have never been told it is because of the Lupus. I always have bruises and I don't even know how I get them. Also after my last massage I ended up very bruised. I...
I think what is coming from all of this is that everyone is individual and it depends on the person what they can handle in regards to deep tissue massage. I am always sore for a couple days, but...
my old MT moved to a chiropractors office about 30 miles from me. I wish I could stay with her. The new one today seemed to be trying to be cautious with me. I will see how I feel in the next few...
I have had fine hair all my life. But in the last 10 years it was falling out so much I almost bald. Since I have been on plaquenil my hair has been growing so good. It is still fine, but the bald...
I went to a new massage therapist today and she said that she usually doesn't do deep tissue massage of people with lupus. I have never heard that before. She said that it can cause a flare. I have...
I will be praying for you, Ginny. Take care of yourself!...
Hi everyone, I finally got him to bring a FEW things in from the garage yesterday.....but he hasn't taken anything upstairs yet. I had a nightstand and some boxes that needed to go upstairs and they...
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sorry, here is the web address: www.helenfoundation.com...
a seminar and it said 83% lose all pain and fatigue in days. I went to the website and all it says is a "micodose tratment for pain" . Has anyone heard of this? There are a few of these clinics in...
Thank you all for your help and support. I told him I wasn't going to do anything for him anymore....but I have said that before. Since we have 2 children I have to cook anyway but I won't be doing...
My husband just doesn't understand there are things I can't do. We just moved and he just brought the things that were important to him into the house i.e. the Tv, sofa, dining table and chairs,...