Hi luv2ride, My hubby has some of the same symptoms you have, only his ds/dna came back slightly elevated, so all the rheumys he has seen including the mayo clinic dismissed it as Lupus. But we are...
Oh I forgot to ask you from what I have read Lyme runs in cycles and it says about every 4 weeks it will flare because the bug doubles? He has felt really bad for at least 4 weeks, where usually he...
Traveler & Cat111, Thank you so much for your input!! I have a print out of LLMD Joseph B already and there is a ton of great info in it....thanks for the link. And I agree there is a ton of...
Hi my husband has been fighting something since 2007 and has been to 4 rheumys including Mayo clinic, infectious disease dr, endroconologist, neurologist, 2 lyme Dr's one being at Envita. There...
Hi Chutz, I checked out the site you attached for university hospitals....unfortionatly there is not any in AZ....everywhere else but here....oh well, thanks for you help anyway! cookiemoster1...
Hi Donna, No my husband did not have any side effects from going off of Lyrica....he did it over about a week of gradually decreasing his dosage. He was taking 50mg in morning and 50 mg at bedtime....
Thank you all for your replies...
Hello, Just wanting to get some feedback from anyone who has used or is using savella....I have read conflicting reviews on it. I know every person reacts differently, but it also mentions high blood...
Hey Laura it is cookie monster1 I have not been on in a while, but I did reply to you a few months ago never heard back from you Hope you are doing ok! Would love an update and to reconnect....
Hi, I have not written in a while. An update on my hubby he has been to 4 rheumys and the mayo clinic, the dr at Mayo thinks he has fibro. Have not had any luck finding a good rheumy tho :confused:...
H i Laura, I actually responded like 2 weeks ago and never heard back so I thought something might have been wrong. I hope your new med works for you.... As far as my hubby he went to his apt and...
Hey gonuts.....have not heard from you in a while is everything ok?...
PattyLatty, that is great....I am so happy you found a rheumy you like....he sounds great....can you ship him to Phx, AZ so my hubby can borrow him LOL :) That is awesome that he spent so much time...
Hi my hubby has been to 3 rheumy's so far and it so far they are all smug, have no bed side manner at all and don't want to listen.....you are lucky if they spend 5 minutes with you.....are they all...
went to 3rd rheumy a few weeks ago and he said he did not think it was lupus or fibro, so just gonna treat the symptoms....perscribed him mobic (has not taken it yet tho) and upped his lyrica to...
Hi Laura....I know I have been busy. My hubby had his apt and this rheumy said he does not think it is lupus or fibro, he just wants to treat the symptoms so he perscribed him Mobic (he has not taken...
Hello I usually post on lupus, but I was browsing and noticed a thread about having flu symptoms. My hubby has been feeling terrible for a few years now, he feels like he has the flu all the time,...
Hi Frankie, Do you mind if I ask how your symptoms started and as it progressed what your symptoms are...or did have they ever changed? How are you doing with the meds you are on....are you feeling a...
Frankie09, thanks for your feedback....much appreciated....glad your meds are working for you and hope you continue to feel better cookie...
From what I understand the heat effects lupus.....does anyone know if it heat or being in the sun? Does high humidity have any effect? And I assume the cold does not bother it? Oh and what does the...
Hello gonuts, sorry to hear about things with you and your husband.....is he supportive of what you have going on with you? (if I am overstepping let me know) Hope things get better for you guys!! I...
Hi alienwife, Thanks for your comments!! my hubby gets that feeling like his insides are crawling and jumpy also....he got it sometimes before he took lyrica tho. but he says he feels that way for a...
Hi spangie, thanks for the info....i was aware that lyrica was to treat fibro, but I was under the impression that it would also help with the pain he is having??? I know it won't help with the flu...
Hi Shanno.....just wanted to see how your pain clinic apt went? Your wedding is soon right? cookiemoster1...
Hi gonuts....he is 46.....I understand what you are talking about he patted his baby girls bottom the other night to put her to sleep and he said he could hardly move his hand after.....just from...
Hi gonuts....yes I remember you started lyrica also, he is taking 50 mg 3 times a day. It seems to help his joint pain at times and the tingling too....maybe it will just take a little longer to kick...
My hubby has been on Lyrica for week now and he is still having alot of pain in his joints and still feels like he has the flu all the time, still tingling from head to toe also...the lyrica seems to...
Hi imabitdizzy, I agree with what all the others have said....one more suggestion would be to get copies of all your labs and any test they run for your personal file....I have found that most of the...
welcome jelynn22, I am so sorry to hear about your diagnosis. my hubby is on lyrica right now....he has not been diagnosed yet tho, going to see a 3rd rhuemy next month /community/emoticons/sad.gif...
thanks gonuts.....this forum is great and i am soooo glad i found it.....maybe we can all help each other through our symptoms and what our docs are doing for us. talk soon cookiemoster1...
Hi supernat, welcome to the forum....I am pretty new and so far it has been great for me I hope it is helpful to you also. I agree with Ginny it does sound like Lupus but it could be one of many...
Hi gonuts, I am sorry to hear about your diagnosis.....but keep your head up hi Laura, these AI are controllable and once your doc gets you on the meds that will help you from what I understand...
Hi gonuts, I am sorry to hear about what is going on with you.....don't be scared or nervous.....hopefully your rhuemy will figure something out. Remember you don't have to do what they say....not...
My hubby gets tingling in his entire body pretty much 24/7 and his pain is pretty much in all of his joints but not in his spine....thanks again for your all your thoughts and advice.....thanks for...
Shanno, congrats on the wedding...that is awesome!!! The docs will get you there soon I hope....just keep on trying. I know the ANA can be related to many AI diseases but what about the dsANA (double...
Thank you for all your replies....this sight is great and I am so glad I found it!!! Hopeing someone can help with a question. My hubby's dsANA came back at 15 and <10 is normal and his ANA came back...
Thanks for your responses....... Jo forgive me....but what is AS? Yeah, hopefully this Dr will actually help cause it is terrible and I feel so helpless not being able to do anything other than surf...
Hi....this sight seems really great and helpful! My husband has been having problems with a lot of symptoms for a few years....he has been to 2 rheumies a neurologist and going to a new rheumie next...