Hello. I recently had two bouts of laryngitis and it was caused from inflammation of my thyroid and surrounding tissues. I had all the symptoms of thyroid problems, but my numbers came out normal (of...
Hello ladies...I have a question. Does anyone have a rash develop after waxing eyebrows/lip/face? I have waxed since I was 13 (eyebrows) and now am having trouble when I wax. I get these horrible...
I was wondering if anyone ever gets extreme pain after taking steroids. The last three times I have taken steroids for lupus, when I stop I have the most unbelievable pain all over for several days....
Hello All! I thought that I would update. They have found that I have an enlarged thyroid and that is causing all the trouble. They are running antibody tests for thyroid but not sure which ones....
I had a hysterectomy. The antibiotic is because the doctor thinks I have bronchitis (upper resp. infect.) and now all of this swelling. He said he is not sure if it is pleurisy or inflammation of my...
I am not sure what is going on but I have been having chest pain (when breathing) that turned into my airway swelling. Now I have no voice and cannot swallow very well. Had a round of antibiotics (2...
Welcome amerika420. I am a lupus patient and do not really know what it is like to be a caregiver of lupus. That being said, I have watched my husband for years. I was diagnosed 3 days after he...
Well, I can't speak for your fiancé, but I was loosing my hair while dating my husband and diagnosed 3 days after he proposed. I was scared that he would regret being with me, since I was sick and...
Miss Lupus, I was diagnosed because of the hair loss. It was the only thing the doctors could "see" was a problem. Then they did blood work and all the rest of the weird things made sense. My hair...
Hello Miss Lupus. I had two children after being diagnosed with Lupus. My first pregnancy was easy but he came 6 weeks early. My second almost killed me (was in the hospital a lot) and she was 3...
I have had lupus for many years (almost 10) and the only test that came back for lupus, other than the ANA was the antiSM. Anyway, I just had some blood work done and now they found that I have anti...
Hello Cmac3721. I too have dysautonomia. I have neurocardiogenic syncope and orthostatic hy per tension. So my body fights itself all day long. My symptoms are really bad but getting under control...
Hello and welcome TeresaMarie86. Deciding to have a baby after fibromyalgia is a very hard decision and only one you can make. If you think you are strong enough to deal with the pain and crazy...
Hello Redroom! I too have scalp pain. Mine first happened after I took a Medrol pack after a surgery I had. It was horrible. I could not even lay down, or prop my head up on anything, without extreme...
Thanks for all the information and replies. The doctor that found the CNS involvement is a neuro-ENT (can't spell the correct name) and he does not deal with that type of problem. So, I am going to...
Hello Little Rosie! I have Lupus (SLE) and Fibromyalgia as well. As far as pain goes...I am on Savella and Tramadol. For sleep and pain relief through the night I take Tizanidine about an hour before...
I was wondering what tests your doctors do to confirm a lupus flare. I have been doing some reading and it seems that there are a lot of tests that my doctor never runs. I have been ill for 9 months...
I just saw this post and was wondering if you had found out a diagnosis of what happened. I have been having the same symptoms but I also have extreme pain in my face (entire face) and extreme...
I have in the past...what is the question. I took it for about 3 or 4 years. LupusMomma...
Hello Snue! My husband thought that I needed one...and I kind of have to admit that it has been quite handy. He bought me a Mio brand that was on sale for $25 brand new. I can type in addresses,...
Hello Julie. I am a bit amazed because I just came from my doctor's office and he thinks that I have trigeminal neuralgia. I also have lost the ability to smell and taste of food has not been the...
I don't know if it will help but I use warm salt water and gargle. It helps me with sore throats or irritated throat. Good luck! Glad that you are okay!! LupusMomma...
I am currently having that problem as well as losing most of my hair. I typically wait about two weeks or so before calling the doctor because sometimes the swelling will go away on its own....
I was in extreme pain for 5+ years until I got to try Savella. It is the only medication that helped me feel as though I could "function" again. Before that I tried everything on the...
Best of luck! Have a fun and safe trip down there. :smilewinkgrin: LupusMomma...
I don't know what medication you are taking, but there are meds out there that can cause your symptoms. I had similar symptoms when taking some meds for fibro. My mother took isoflavones (Novasoy) to...
Sorry to hear about your situation. There is nothing worse than those you love, not being able to cope with your new limitations. I came across this story while on the Lupus page (I have lupus,...
Spicy, When to quit working is a big and difficult question. I quit when I could no longer sit, walk, stand, or even lay comfortably. The pain was so bad that I could not breathe without extreme...
I used to use waterproof tape...it is used for bandages (the gauze kind). Sorry I have a little brain fog today. Just put it around the outside edges and it should work. Never had a problem with it...
Thank you everyone for the replies. I am sorry to hear about your situation butternutsquash. I can imagine that it was very difficult to deal with. Perhaps when you get the lupus under control you...
Love the post! Just wanted to say that I use a pregnancy pillow and it works wonders. I got mine from Target (a full body boppy pillow) and it is wonderful. I also saw some on zullily a couple of...
I have had Lupus for 9.5 years (diagnosed anyway) and 6.5 years of Fibro. I have come to accept things and enjoy the life I have now. I can no longer work but I volunteer and take care of my two...
Glad to hear that!!! It is always nice when things go well. Hope that you continue to improve!! LupusMomma :yeah:...
stkitt- I was diagnosed by a neuro-psychologist or neuro-psychiatrist at Indiana University Methodist Hospital. It was 3 and a half hours of testing different cognitive skills and a few...
Hello. I usually check in on the Lupus Forum but today I was told that I have Major Depressive Dementia. I have never heard of this and find it ironic since I am not depressed...at least I don't feel...
Sadikata I know that it all seems a little overwhelming but after it all settles in, you will begin to learn to live with lupus as we all have. The best advice I have is to take it easy with your...
Hello! Sorry to hear that you are having so much trouble. I take Savella and Tramadol. I had no relief from my pain for 5 years until I tried Savella. There are some side effects but none that really...
Shinji I have been passing out, lightheaded, rapid pulse rate, high blood pressure that drops suddenly very low, hands shaking, feel weak after an episode, confusion, bad memory, short of breath, and...
Lynnwood I have not been formally diagnosed but that is what they are leaning towards. So far, they have put me on atenlol to help control the high heart rate and blood pressure but they are still...
I am 33 and my symptoms started when I was 26. At 26 I went from having lupus related joint pain to not being able to walk and barely able to breathe from fibro in a matter of hours. I have never...
Hello. I have been having almost all of the symptoms of Postural orthostatic tachycardia syndrome and wondered if anyone in this forum has ever heard of this or actually has this disorder. I am...
Hello. I am having many symptoms of Postural orthostatic tachycardia syndrome (POTS syndrome) and was wondering if anyone in this forum has ever heard of this or have this condition. I am very...
I am so sorry for your loss. My thoughts and prayers are with you and your family during this time....
Hello and welcome. I know that it is scary when taking medication and trying to conceive but also not wanting to be in pain. My suggestion to you is to see a maternal-fetal specialist before trying...
Hello. I was not sure if I should write something, but I feel like I am losing my mind and having some really bad thought. I have systemic lupus and fibromyalgia. About 6 months ago, my husband and I...
I have been having some odd issues. I started passing out and not remember things that were going on. I also started having a rapid heart rate (126+ bpm) followed by extremely high blood pressure the...
I had surgery about ten days ago and I was wondering if anyone had really bad fibro symptoms after having surgery like I am. My whole body hurts like I was beaten and my scalp is also hurting really...
Hello. I went off the Lyrica about a year ago and found that I had no problems going off. That being said, I tapered off the medication with my doctors help and have never been so happy in my life....
Welcome!! I have the itchy scalp and hair loss. I see a dermatologist for this condition and he prescribes something that I put on my scalp and the itching goes away after a week or so. (I would tell...
I have been tested for osteoporosis and I don't have that. Had a full body scan and that was normal, except my hip. I am only 32 and have not gone through menopause. It is a mystery, but the doctor...