Thank you for the advice and the kind words. I have been trying to get better and do everything my doctor tells me. I still work full time and I just have "bad" days you know? Sometimes I can do...
Has anyone else had their relationship crumble due to their illness? I feel like I'm constantly explaining myself, hubby making me feel guilty for not doing things (such as going to a bar at 11pm...
I'm on it now.. no problems, although I do have to eat something before I take it, otherwise I'm nauseous. Works really well for me, started seeing results in 2 weeks. Hope it works for you too...
Oh wow. I'm sorry I wish I had an answer for you. Where did you press to have his neck jerk like that? If you think this is somehow MS related then he should be scheduled for MRI's. A blood test will...
ChicagoGal - you may want to look into "Rehabilitation Institute of Chicago"- amazing for ANY type of pain, improved my quality of life like you would not believe. Great physicians....
Hi, from my understanding this medication can be increased up to 60 MG, safely. It does work for me when I have spasms that originate in the spinal cord, not muscle spasms. I take 20MG at night....
Hi, Do you have social anxiety? I had major depression (started 10 years ago) where I was not able to be around a lot of people. I felt like everyone was watching me and talking about me. Usually...
Hi, hang in there! Remember medications take a while to work, unfortunately. But you will find the right one for you :)...
Hi, well actually it was obvious that I was taking pain meds because at one point I was so bad my physician gave me 2 weeks off work. I was physically unable to sit or drive.. stand etc. That's how...
Sorry- MRI and if you see lesions they will do a spinal tap for MS. They do blood work to eliminate B12 issues and Lyme disease....
Hi, MS is tested through a brain MRI. I believe there is some research out there regarding pain and the brain. They are now testing some things on Fibro patients, where they experience pain...
Hi Everyone, Not sure if we have every had a discussion about this- how does your family, friends, work feel about you and your pain medication? A few months ago my boss pulled me aside and asked me...
Hi Everyone, I read and was told it depends who you ask (re: dosage conversion), sometimes I see/read/hear 1:1, other times 1:2. Anyway I really didn't have any side effects, just a bit tired for the...
The bra is called the "Ahh" bra- I just got 2, waiting for them to get here!...
Yes! As soon as I get home I put on some super stretchy PJ's (with no elastic). I also have tender points above my breasts and armpits- bra's drive me insane during the day....
I am still on the morphine, have been on it since October 2010, I get the Oxy today. I was just wondering if anyone has personal experience :) If the dose is different it's probably because I have...
Hi, There are medications that do help out there. Have you had an EMG done? They are not always 100% reliable BUT could help you determine if things are getting worse. My neurosurgeon did tell me...
Good Morning Everyone, I saw some remarks on this from a few years back.. Has anyone switched from a "morphine" product to Oxycontin? I am having some side effects with the morphine and since the...
Hi Deb, I too have Myo.. and central sensitization (what some people think fibro is). Get yourself- A great person who works with myofascial http://www.myofascialtherapy.org/ Some simple treatment...
Hi, I have both of your problems. The numbness in the arms was trigger points that were compressing on my nerves. You may want to look this up and try it. I did it for 3-4 days and the numbness went...
Wait your employer lied about speaking with your physician? I suggest you back this up with an e-mail. As in.. per our conversation today, I did not request less hours... If they are lying now, what...
Hi, I am on morphine now with Savella, Neurontin and Baclofen. Have been on diludid, oxy and everything else you can think of. I have a spinal cord disorder as well as something like fibro. There are...
Please research.. there are so many bad things that can happen, esp. with neck adjustments (like stroke!). I went once and it made my pain worse, then I researched and the risk is not worth it....
My condolences...
Sounds like those knots are trigger points :) Happens to me all the time...
Are you on any medication at all?...
Just be honest and tell them that- you don't want to be stuck in pain heading to the ER, or just miserable. Some drugs just don't work....
Hi, Ultram didn't help me, but I was on the 2 together. Maybe ask your doctor is they can switch the Ultram or the Flexeril? They can both be called into the pharmacy, not like a schedule 2...
Yes, MRI brain and neck (MS), blood tests, EMG (thought I had a rare disorder of some kind)... had B12 and Iron checked etc... I would say it's pretty normal to rule everything out, esp things like MS...
Tender points and trigger points are totally different. I can tell you I have both- fibro and myofascial pain. My husband was helping me this weekend and he did the trigger points for me- those...
Sorry to hear that :( So far no problems on it. I am a bit sleepy after I take it, but I think that's good because I have a tendency to stay up really late, No other side effects, the headache is...
Hi, I was wondering if someone could explain what a "tender point" is? I have them all over (temples, collar bone... hips etc) do they ever go away? How do you "improve" them? Thank you...
Hi, This post resonated with me so much. I'm 34 and we are getting to a point in our lives where we need to seriously think about children. I have a progressive neurological disorder which involves...
They can make any pain medication into a topical for the most part. I just started Volteran Gel and it does seem to help a bit, but it really depends what kind of pain you are using it for. It...
Hi, I had a traumatic surgery to my spinal cord and yes, fibro is believed by some to be caused by central sensitization, where your actual chemistry is altered and can lead to your nerves not...
Hi, Anyone on Savella? I'm on day 3, nothing really going on but some headaches, which I had in varying degrees before starting it. Is it working for you and how? I have been on Lyrica (swelling-...
Thank you! Actually I have trigger points in those areas so I get trigger injections in the hips and buttocks now. But I don't have brutitis which is actual inflammation of the substance in that area....
Oh and for an idea of what I go through, I am classic MS symptoms. To the point that they and I were convinced I had MS. I have to say I was NOT relieved to find out I did not because that would mean...
Good Morning Everyone, I went to see my doctor yesterday, and she strongly belives I have developed central sensitization, which she and some believe really is fibro, but for now are 2 separate terms...
I take 20MG at night, but it's generally used for spasticity, I'm not sure if you are using it for that? It did not work for muscle spams for me, I get very severe ones in my right leg from surgery...
I will go get checked out! I just had thyroid and everything else checked out because their suspicion initially was MS.....
After reading these responses I am honored to be part of a group of people like this. You have all inspired me. I will discuss all this with my doctor tomorrow and be very frank with her as to what I...
Wow, so this is pretty common. I have been on the same medications since September, and it only happens once in a while, so I wonder why it would fluctuate like that (if it was the medication). It's...
Hi, I am so sorry you are going through this. Before I was diagnosed I was going to a pain management physician who was horrible, and I saw my fair share of bad ones before that. Mine wanted to do...
Tethered cord is a neurological disorder of the spinal cord. The cord is pulled down by fat and can't move. So when you move it stretches instead of moving with you. It can cause nerve damage. People...
Yes, I have this in my upper back. The medical term is contracture and it means shortening of the muscle. You could also have adhesions. Adhesions can be gently massaged away, concracture needs to be...
Oh, this is "jaw trigger points" http://www.triggerpointbook.com/examples.htm...
This could be- Trigger points! I have them on both sides, and they are horrible. You can massage that area gently on both sides. 20-30 strokes per side, and you should see some improvement in 2-5...
That's kind of what I have. There is a definite burn vs. "electrical" I associate with nerve damage. My legs are electric pain up to my knees.. then everything else FIRE/burn I have HORRIBLE...
Oh you have Chiari? I don't know if you know this.. but I have tethered cord... a "cousin" of yours! I was just tested for Chair, but nothing :) I will go over to that forum also, and as for the...