Hopefully Foxxy sees this - sorry I didn't get back to you sooner but I've been busy and not feeling well so I haven't logged on in the last week or so. Please go to the NOSSCR website and contact...
I have started to wonder if mold caused my fibro, though I was also in a (small) accident when the pain started and had been taking a medication and under an inordinate amount of stress (those are my...
Donna, if it was me, I would get a 2nd opinion from an attorney of your choosing. It is my personal opinion that there can be a conflict of interest in using a rep hired by the LTD carrier for exact...
Foxxy, what city are you closest to up there? I'm not sure if the one I'm thinking of will drive state-wide. Thanks....
Thanks, I will try to start taking the supplements regularly. Maybe that will help. :)...
Ak angel brings up a good point that underscores the need for hiring a good attorney (unless you're Donna :) and making sure you get your SSDI/SSI even though you have LTD. At some point the LTD...
Deb - because you have multiple severe impairments and NOT "just" fibro, I am not surprised (or in disagreement, necessarily) with the response you got from the two attorneys. If I sense that, based...
Donna, you've only seen that rheumy once - just based off of ONE visit with you, they are already stating that they don't think you are disabled OR that they will refuse to assist you in getting...
4 going on 14! The anxiety I have is awful and should probably be on something for that, but again, am worried about side effects. She bounces off the walls and unfortunately, due to how awful I...
Welcome to all. Kaely, that is great that you got an updated MRI! Objective evidence like MRIs (which one should ALWAYS push for vs. an x-ray, which shows NOTHING compared to MRIs - MRIs are worth...
Amy, what are you on exactly right now? I'm only taking Hydrocodone, as needed (I only allow myself about 4-5 a month) and had horrible neck/back pain/strain for the last two days and needed to take...
Foxxy1028, I am in a unique position of being a Social Security lawyer (for claimants, not the SSA) AND having fibro. And actually from OH, too :). (I am happy to answer any questions I can, but none...
Wait, so question for all of you who were Vit D deficient - IF you took the supplements as directed, did you notice any difference in your fibro symptoms? If so, which symptoms were improved by the...
Yes, I am, Amy and found out via my holistic doctor who was the only one who did a micronutrient analysis of all of that kind of stuff. It cost me a few hundred as my insurance did not cover that...
Thanks, Sherrine, I'll tell them, but they have all been somewhat useless. We'll see. I looked it up a bit and it can be a cardio problem and occasionally (about 10 times a year or less), my heart...
Doesn't it make you wonder if this is how most people feel ALL THE TIME and how productive they must be? I can't even remember not feeling awful all the time......
I hear you - it is a horrible feeling to not be able to manage your household the way you'd like, and to be able to give 110% as a parent. It can really get you down some days. As someone mentioned...
I only get a day like this once every 2 months or so and feel very blessed for it. I actually had some energy and my pain wasn't excruciating at the end of the day so I was able to clean up around...
Amy - I called today and made an appointment. I have seen so many doctors down here. Hopefully this one knows her stuff and can help me. Thanks again! Maybe I'll see you in the waiting room one day ;)...
Look up lipomas - could it be that?...
I feel so sorry for you, Karencat. Would it be possible to have someone come in to do physical therapy or occupational therapy with you? And please tell me that you are already getting Social...
Is anyone else experiencing shortness of breath upon laying down? I don't have it every day, but have had it for at least a year (and have had fibro more than 2yrs). It goes away after about 10...
Thank you for trying, dustinshunny - that is so nice of you! Fibromomof4, that is awesome! I prefer a woman and that is a perfect location for me. I will call her today. Really appreciate the...
Thanks for starting this thread. I'm particularly interested to find out if any of you stopped working for others and transitioned to working more independently or starting your own business so that...
She sounds like a great doctor, dustinshunny. I am in the Miami area. I have seen many doctors, of all specialties, and have yet to find one that seems to understand the nuances of fibromyalgia, not...
Fish- How did you turn it around?...
Hi, Chili9. I do think it gets worse. My symptoms started about two years ago after an accident, and I found this website about a year ago. In the beginning, I actually thought the pain/fatigue was...
It has been a long time since I checked in on this message board. Partly out of denial, and partly because I am so busy and doing all I can to get by each day while feeling so horribly. I wanted to...
Hi, sorry I didn't see this earlier so I could give you some advice sooner (I'm a disability lawyer w/fibro). I'm not sure how a tribunal meeting is conducted but if it's anything like a SSA...
I understand and I'm sure many others do, too. Every day is a struggle, right? And after a while, it just wears you out and you want to give up. I am sorry you are having such a rough time and hope a...
Thanks!...
I hear you ladies. So often, it is a struggle to make it through the day and keep going. It doesn't make it any easier to be with someone who doesn't seem to fully grasp that you are dealing with a...
Hi, Have any of you experience any relief in your fibro symptoms after going on birth control pills? Or, conversely, did the pills make you feel worse? I feel like I've noticed a change in my...
Thanks, Sherrine. Some good info, for sure. Does anyone treat with this doctor who is referenced in the article - Daniel Clauw, M.D., rheumatologist and executive director of the University of...
Been there, done that with the ADA stuff at another job and like Leerisan said, they just find another way to get rid of you by making your life a living hell in other ways to force you out or fire...
I love Sherrine's advice. Not sure if it will work with that type of dr. but it is definitely worth a try. If your insurance is good, I would also recommend going to an ER. I went once when I had my...
Nice!! I imagine you had to exhaust all other options for migraines to get him to try the Botox on you, though, right? I am somewhat adverse to using medications so I wish I could find one that would...
Thanks, Kidz Mom. I think working in a job where you have some autonomy and are not micromanaged is a contributing factor as to whether or not you can avoid problems with your employer as a fibro...
Yes! Having it bad this week, actually. I imagine it feels like what arthritis feels like - a throbbing pain in my hands, worsened with use of them - and I'm only 34. I have actually been wondering...
Thanks for all the great feedback! I am happy to hear that some of your employers have been supportive. I did not fully disclose but have asked to do some telecommuting so that I can rest a bit from...
Thanks for the great info. Is this covered by insurance and who does the injections - your neurologist??...
Interestingly, I was interested in Botox for other reasons and wondering if it would make my fibro worse. Looking forward to the responses - thanks for posting! Also, if you get Botox to treat your...
Hi Mcsemel. I know how you feel as I am the same age and it is very frustrating not to be able to be as active as you'd like when you have children. For me, one of the hardest parts is being in...
Has anyone completely or partially disclosed to their employer their health problems due to fibro? What happened? Were you terminated? Were you accomodated in some way? Was your employer supportive?...
I thought one of you had mentioned that it was more detrimental to carry a diagnosis of CFS for insurance purposes. Does anyone know anything about this? Thank you!...
Starting Cymbalta this week, too. Hope it helps!...
Karen, I bought a new laptop last Black Friday for about $375 (Toshiba) and I bought the iPad 2 16gig, Wifi only, from a major electronics chain for $499 this weekend. So you'll likely spend more for...
Hi, Just wanted to let you all know that I purchased a tablet (an iPad) and am loving how lightweight it is. Like many of you, I have shoulder/arm/neck pain, and handling a lighter device is very...
Hi, Moonsinger, Sorry for your bad experience. Unfortunately, these stories are very common - welcome to today's healthcare system! And the response by the receptionist is indicative of the poor...
I read medical records every day, all day long, and I don't believe I've ever seen that notation in that context - that's a new one to me for an x-ray on the feet. A basic definition, as Chutz said...