I was at my rheumy yesterday...and Nana is correct...only half the time do those definitive markers show up...the other half are like me...no definitive blood markers, however positive skin biopsies...
I am allergic to bees...epi pen allergic......
I am in an interesting position at the moment. .... My Rheumy has put me on steroids to try to reduce the inflammation to my CNS and to reduce the amount of pain I am in..(from multiple connective...
all i can say is OH YEAH.... My gait is all over the place...in fact I can only walk on the right side of my husband because if I walk on the left I constantly bump into him cause I drift to the...
It is not uncommon for me to feel that there is something stuck in my throat..whether it is when I am eating, drinking, taking my meds, or having a reflexive swallow. I also have CNS Lupus,...
well, considering I am always on here complaining and asking questions, I thought I might share something that I thought was adorable... I have 2 children 14 and 17 both daughters. One is a freshman...
I am on 40 a day..20 in the am, 20 in the afternoon...it has been 2 days..and here is the punchline...I think I have my very first rash on my face...it has been on my legs, arms, feet, and torso, but...
well I went back for my 1 month followup after the mcd diagnosis and my rheumy decided to put me on a course of steroids to see if we can get me feeling a bit better...this is in conjunction with the...
Hi Everyone, Yesterday I had a rheumy visit and she decided that I needed a course of prednisone.. she wasn't satisfied with my progress. I started it today.. and I am curious...how long until you...
I am so happy to hear that the Plaquenil is helping you and that you had a good visit with your rheumy... I am still on it...still no appetite and no improvement as of yet...but I still have my...
thank you for all the suggestions...since it is 315am while i am typing this I am definitely going to look into all of them...
Lately due to discomfort I have not been able to sleep through the night. I do not want to take any more medication, especially while my body is adjusting to all the new stuff the neuro and rhuemy...
Thanks Robin....I sometimes feel like Alice falling down the rabbit hole with all of this......
I am on anti seizure medication now....I have been diagnosed with a MCTD...and it is effecting my central nervous system...strangely though since I have started the plaquinel my seizures have...
Hey Lawchick, yeah...definitely more tired...and my seizure activity as actually increased since I have been taking the plaquenil...and my aches and pains have increased as well..but she told me it...
Ditto....thankfully I am never out of the house much anymore so I am always near my bathroom...but the same thing...just a dribble not a stream...and in the middle of the night too... I am glad I am...
:shakehead: I am sure that we have all gone through this in one way or another... Yesterday I think I had a seizure...a pretty good one because when I finally got my bearings (I use that term loosely...
Ah the sun....the last time I was in it was for about 20 minutes in early august...my entire body where the sun hit my skin broke out in this horrendous rash... and I felt like I was getting a...
I am so sorry you are having to face this...my thoughts and prayers are with you...sending healing vibes your way...
99% of the time it is on my left side....although there are times where I have it on both sides......
Add me too the list! It is an all too familiar feeling...but I have to say that you described it so well! It still does not fail to surprise me how my body reacts on a day to day basis.....
Hi Fiona, I am so sorry that you had to experience that sensation. I have seizures...and sometimes you don't feel the after effects...especially if they are absent seizures...you check out for about...
I am having the same issues with Plaquenil...I am following the instruction...taking with food and a glass of milk...and I have been having the same problems with appetite..the only time I eat is...
I have been doing both...but I am still feeling the discomfort...I have had to discontinue the voltaren because of the same issue, just amplified.... I will keep trying...thanks for the input...
or you can just handle it the way most do in Jersey (where I live) How the f**k do you think I'm feeling?...
Hi all, I am currently on Plaquenil and I am have some trouble with side effects. Although I am taking it with food as instructed it is causing me stomach pains... Is anyone else on Plaquenil and are...
That is the funniest thing I have heard in a long long time....my tummy hurts from laughing so hard! Thank you...I needed that!...
what I failed to say in my earlier post ( yes the flakiness continues) is thank you! Thank you for you unfailing support Thank you for listening when no one around me could understand how I felt...
Hi all, 2 weeks ago I was diagnosed with a Multiple connective tissue disorder...my rheumy wants to do a lumbar puncture to confirm lupus but has graciously given me 4 weeks off from test after a...
Hi folks... I have posted on and off with my adventures to multiple specialists...and finally we have an answer... drum roll please I have Multiple connective tissue disorder...the rash I got after...
Thank you Fiona...I am just going to have to ride the tide on this one...I really have no idea but they did not think it was a sun allergy I am glad to hear I am not alone in doctors getting excited...
Mornings are always a challenge..first because until you put that first foot on the floor you don't know what kind of day you are facing....and second...if it is one of those days you are right at...
I think the thing that threw me the most with the whole experience was how excited everyone seemed to be that I may have this whatever it is...it was so very strange...like I was a rare coin that was...
I forgot how to cook one of my favorite meals the other day...just forgot the recipe and I have been making it for years...stood in the middle of the yard the other day because I couldn't remember...
Dagger couldn't have been more on point....start small....if you can only walk a half a block...start there...if you can only stretch for 3 minutes do that.... This is not an all or nothing...
I get the icy pins and needles sensation with the buzzing numby like feeling ....it's so hard to explain but I think I know where you are going with this.... yeah...it's an annoying one....
Hi All, The last time I posted I was on my way for a 5 day, 4 night camping trip over the holiday weekend with my family to a music festival in upstate NY. I know I posted about my reluctance for...
Just need to vent a moment... This morning I woke up a MESS!...I needed help getting down the stairs..the pain today is remarkable..I did some stretches, some mild yoga and walked the garden in hopes...
Hang in there Choc... Tomorrow will be a better day : ) Healing Hugs...
Tara, Keep your chin up... when I first started on this roller coaster 18 months ago...I went to my primary and told him my symptoms. He sent me to a neuro thinking I may have ms... I came back clean...
Wow...I am now a human barometer...cool.... Yeah it seems to be the worst when the barometric pressure drops....and extreme temps...whether it's hot or cold.......
Wow...are we the same person? I was diagnosed with Hashimoto's in the beginning of the year and Fibro this week....same symptoms and then some.... I am still in the back and forth to between...
I was diagnosed with hashimoto's syndrome at the beginning of this year. I am on the meds but my levels are going the wrong way....I had a positive ana and was referred to a rheumy who now says I...
We are going to NY State...I am hoping it will stay in the low 80's and low humidity...however if that is not the case I will be popping Advil like M&M's...
Yeah...I hear that all the time from my family, friends, and even my husband. It hurts, but I realize they don't understand......
Thanks Marilyn...I have explained that I may "hang back" a bit...and have asked for a tent apart from the kids with an air mattress so I can sneak back if I have to. The music is mostly in the...
I couldn't agree more moonsinger...I seem to handle the stress when it is going on just fine...it's after when I feel my worst...like I have been run over or I just ran a marathon.......
Hi all.... First I want to thank all of you for such a warm welcome and wonderful advice...It's good to know I am not alone out there... I have noticed (keeping a journal on advice of Rheumy) that...
over 4th of July I am going to a 3 day music festival with my family and we will be camping out...I am terrified to tell you the truth...although my family knows quite a bit about how I feel, I...
Mine started in the hands and feet...neck, shoulders, and arms joined in a couple of months later...chest and hips have decided to join the party recently....but my wost pain is still in my hands,...