I have not posted in awhile, but I saw this topic and I just had to write! I have had the most uncomfortable, sweaty, frustrating summer of my life. I have Hashimoto's Disease and in early summer my...
Hi Book, There is much TA DO, about gluten these days. Its very misunderstood. Celiac is not Fibro. A lot of people with Fibro are being told to stop eating gluten as a treatment. I have had Fibro 5...
Hello Kagendo, Your post Purpose?, caught my attention. A couple of weeks ago, I also posted a thread entitled - Purpose? I think it's on pg 4 now. I got some great responses from others who are...
Hi Kimliz, thanks for joining in, and again to everyone who posted. I got something of value from each persons thoughts. I can tell you all really can relate to what I am feeling. What you were...
Hi Everyone: Thank you for your kind words and thoughts. I really appreciate you all taking the time to answer my questions and your point of view. I have always been a person who has a difficult...
Hi Everyone, I have not posted in a little while. I am feeling in need of some suggestions and thoughts. Do any of you ever feel you lack purpose? Have you ever thought that even though you can't...
Hi Everyone, I see this thread started a couple years ago. However it caught my eye. I am experiencing scalp pain for about 2 months. It is something new for me. The pain is also above my left eye on...
LOL! AK, my closet the one I want to clean, is going to take a few sessions! It's my clothes closet and it is in terrible need of organization and getting rid of things I no longer need. Like the...
Hi Ak, I started cleaning a closet yesterday! Ha! I didn't do a lot, but I did move some dust around. :) I am happy I was able to help you knowing I understand what you are feeling. It's a darn tough...
Ak, I just wanted to say I really understand what you mean by having too much time on your hands due to not working. I pray every day to find my new calling which will allow me to feel of value in...
Hello, I read the book: From Fatigue to Fantasic written by Dr. Jacob Tietlebaum, about 3 years ago while attending one of his clinics. They recommend the book. The clinic was VERY, VERY, VERy...
Dear Apple, You do not sound like a lazy faker to me! In fact you sound quite the opposite. I understand your feelings of frustration when overwhelmed. Especially during the holidays. It seems like...
Hello Mamanan, I wanted to comment on the purchase of your SAD light. First of all good for you. SAD is a form of depression. Many people do no know they have it, and its often left undiagnosed....
GOOD JOB! Congrats!! I am in the process of reapplying. I was denied twice and went to hearing this past July. The hearing brought an unfavorable decision. I hired a new attorney (my 1st one was no...
Welcome Beadyeye, Saphire380 and sdjen. I read through all the posts on this thread and I think I could relate to all of them in some way. The lead jacket for sure. I also carry a handbag which must...
Dear Neverthought, I remember being just where you are a few years ago. I never thought I would join a support group either. Never thought I would need one. I remember the first person who responded...
Hello and welcome. Yes, I do have smell sensitivity. It also reminds me of pregnancy like bayoub2 said. Foods, shampoos, smoke, gas all can give me nausea in no time. I have a favorite perfumed...
Hi Kitten, I can't offer a lot of advise different than others wrote. It is a difficult thing to make others understand something they can't experience. I can totally relate to how you are feeling,...
Sos, I wish I had a daughter, not that I don't love my sons!!!! But, boys don't get it like girls, no offense!! My son up until this year, (now that he has a serious gf) has not ever offered to help...
Evenkeel, Thanks for addressing my thoughts. I am sorry if I implied everyone is being materialistic. I was not talking about nice families and people who are lovingly buying gifts for their children...
Evenkeel, I am really happy to hear a mans point of view with regards to this thread. It's nice to know that all men aren't thinking about sex constantly and blame their wives if sex isn't going to...
I too struggle with sex. I was sexually abused by my father as a child, so I think I had a rough start. My husband and I had a healthy relationship in this way until I was pregnant with our son. So...
Hello I can totally relate to the overwhelming feelings. I get so overwhelmed I can't even enjoy the meal which has been prepared when its actually all done and ready to eat. All the distractions...
Again Really? Over stuff? I heard on the news, across the country people were being robbed when they left stores. This is insane people... just insane....
Hi. I use HRT bio-denticals and love them. I am currently working with my Dr. to get the dose precise. I am 50 and have had trouble with menopausal symptoms since my 40s. My most common symptoms now...
I have not ever participated in Black Friday. The last thing I wanna to do is going shopping in the middle of the night! All of this is getting out of hand and way too much emphasis on materialism. I...
Thanks to all who read my l o n g post. I realize there isn't a lot any of you all can do about my current situation, but it sure was nice to have people respond and know there are others out there...
Hi Everyone, This is going to be a bit of TMI, but I have to get it out. I the past 6 weeks my household has been under a lot of stress. Lets start with Oct 7th, 2011. My 16 yr old son was arrested...
OMG! I said I hope you are feeling better! I just posted about it and then said it. Man... sorry. I meant feeling better mentally. Our minds are the only place we have any control of how we are...
Hi Myjoy, I can really relate to how your are feeling. I am not a FB fan. I tried it, and it was too much information for me. Being "friends" with people on there just seems so fake. Anyway, I have...
I too feel like I have the flu - 24/7. This is how Fibro started for me. In the beginning I would feel sick and stay home from work. I had no fever or other flu symptoms. Just the fatigue and body...
Sorry, I don't know why the last part is underlined. I didn't mean to do this, I pushed a wrong button somewhere......
Hi, I really feel bad for you. First of all, please do not blame yourself for your illness, or the other surgeries you've had. You did not ask for these things to happen, have no control over getting...
Hi, I also take Tramadol. I take 50mg 2x per day. One when I get up and then another six hours later. For the most part this dosage works ok. It does not take all my pain away, but it's enough to...
Dear Cindi, I was diagnosed with Fibro when I was 47, I am now 50. I started Fibro treatment with a Dr. at one of the Fibro and Fatigue Centers. I was prescribed Tramadol for pain, Klonopin for...
So nice to read all of your posts on this topic. I am so happy you liked the Velveteen Rabbit quote. I just love it too! It helps me soooooo much....
Thank you to all of you for responding to my post. I found all of your replies helpful. There were great suggestions and most of all your understanding of how I was feeling was comforting. I felt...
This is a fun topic, thanks! I love to meet my girlfriends for lunch. Girl time, YAY! I am another weirdo :) who enjoys grocery shopping. I like to take my time, read labels and try to make educated...
Hi Everyone, Just having a rough spot with this subject and needed a place to land. I have 2 boys 24 and 16. I feel like they expect me to be the same person I was before I got sick. I find that I...
"It doesn't happen all at once, You become. It takes a long time. That's why it doesn't happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by...
Hi Crazy and Erie, I color my hair too and I don't plan on stopping anytime soon! Just had it done yesterday. I wanted to add I am really not hung up on my looks or worried about it. It was just that...
Hi Everyone, How many times have you had someone tell you while you tried to explain the illness of Fibro, Well, you don't look sick :) Or But you look good :) I have had this said to me so many...
I too feel the difference in winter as everyone here has described. I have more pain, less energy. I am also a SAD sufferer like Shanbr and I use a light box. When you say you are feeling like you...
Hi Corinne, I recently was tested for allergies to 115 foods. Including gluten. I had been on a gluten free diet for well over a year prior to testing. My Dr. wanted me to try it as with Hashimoto's...
Have you tried Melatonin? This helps me sleep. I understand how hard it is to get sleep with this illness. Pain and sleep just do not go together. I have told my husband so many times how envious I...
Hi and am new to this site also, and I wanted to say hello. I remember when I joined a support group for the first time when I was just dx. It was amazing to find others who understood and huge...
Hello I am new here too. I feel bad that you are being sent to a RA DR. Do you have RA?...
I join the other posters here in saying I'm saddened to hear you are having such a difficult time. I also do not have any new treatments or suggestions. I do have an understanding of how difficult it...
Hello Hope, I am so glad you had fun camping. I wanted to comment because I also love camping! We went on a family trip in August. We tent camp. I am loving the idea of a trailer because then weather...
Hi Femangel, thank you for the welcome! I love your quote about living in the present....