So I went to the rheumy doc and asked him if he still thought I had fibro...he said "I don't THINK you have fibromyalgia, I KNOW you have fibromyalgia"! Guess I was hoping he was mistaken...This...
Hi Scarletribbons What foods would you classify as alkaline? donna...
Thank you! I'm still waiting for ultrasound results and I see my doc next week. Takes a big load off for sure. d...
/community/emoticons/yeah.gif Doing the happy dance now that I have recieved my 6 month post treatment lab results!! HCV RNA PCR QN <43 IntUnit/ml HCV RNA PCR QNT <1.62 LOGIU/ml ALT/AST 25/33...
Oregon probably is not the best option except maybe for our mild summers...unless you like lotsa lotsa lotsa rain 6-9 months of the year! I do love it here tho... I live near portland, anyone here in...
My partner if off work today so I think we will go see a movie to get away from the noise for a bit. They have some sawhorses & plywood covering my plants but it's blocking the screen door in the...
/community/emoticons/smhair.gif I have been feeling especially rough for the past several days and not sleeping well at all. Constant pain & fatigue are messing with me and I feel darkly...
a 'laugh out loud' moment! Thanks, Donna...
Thanks Andrea for all the help, I am thinking of letting my pcp handle things and dropping the rhuemy dr. I am on my domestic partners health insurance (BCBS) so I don't really need medical right...
I am currently on long term dis leave and have been unable to work since last march. My insurance carrier is making me file for SSD and have provided me with an advocator group to work on my behalf....
Hi Connie, well, I guess great minds think alike as I missed that part of your post;) I woke up this morning thinking about this grieving thing and Aaron...I have seen relationships torn apart and...
You're welcome Aaron. I've been thinking about what you said about personality changes and your bouts of anger and I want you & your wife to know that this is perfectly normal. It's alot like going...
I get so annoyed with doctors who think they know enough to pronounce your life expectancy...to say that you will not see your young child grow up is akin to malparactice in my book! As you've read...
Thank you...I called the dr's office but as usual they didn't call me back. I think I will call again tomorrow and just make an appt. donna...
Can my rising fasting glucose #'s be related to the new Rx for Citalopram (CeleXa)? I think it is some sort of insulin resistance issue having to do with my liver disease but someone I know suggested...
I don't feel disabled...just so very tired! This is not the outcome I expected but I've decided to just roll with it and see where it goes. d...
I finished my treatment 6 months ago but have been unable to work for the last 15 months. The long term disability insurance company (thru my employer) is now making me apply for SSDI...they have set...
Day 3 of the festival and day 2 of volunteering is over and I am paying the price for sure! The sun is hot but I just turned my old AC on for the first time this year and hibernating indoors today. d...
I went to the waterfront blues festival in portland on the 4th, volunteered 4 hrs at the caring ambassadors booth trying to get people to test for hep C. Stayed through the fireworks and had to wait...
I was blown away by how uniformed people were! We need a national campaign to raise awareness not some little blurb on the news about the CDC wanting baby boomers to get tested...HCV has killed more...
I have pain in my feet, ankles, pinkie toes, knees, hips, wrists, pinky & ring fingers, thumbs & sometimes my elbows...movement helps the most in the long term but it's a vicous cycle because...
ok, the blues festival darn near did me in, lol. I had to wait for 7 trains before finding one that had enough space to get on and then I actually got a seat...it's an hour ride to my place so after...
hep93, I do have more energy, the problem is now chronic pain & fatigue associated with fibromyalgia...but fibro won't kill ya and hepc will. I still have stage 4 cirrohsis too and stopping the...
Happy Independance day! This holiday (and all year) I will be celebrating my independance from Hep C. I've been carrying this virus around with me for most of my life and now it is gone...kinda weird...
I started out doing chair yoga about 9 months ago for all over body pain due to HCV drugs and graduated to the regular class after only a few weeks. It's a mindful (hatha) yoga style that incorpoates...
http://www.oprah.com/health/Yin-Yoga-Good-for-Joints-Slower-Yoga An interesting case for holding those yoga postures just a little bit longer! Yoga class tonight was good, better than the last...
Thanks and I have made a commitment to my doc's to ride it out so that is what I will do...I don't think my partner quite understands what is going on yet, she asked me why I am icing everything and...
I seem to be on this every other day roller-coaster ride. Today is day 6 of the new med citalipram...I was quite nauseous the first couple days but that is better but now I just feel dopey and...
Standing in a cool shower works well...I've also heared from others that pouring a mixture of distilled vinager and lukewarm water after the cool shower and air drying takes the sting out. Not sure...
I had yogurt and bannanas for breakfast today it's my second fav after strawberries and yogurt ;) I will re-read that info...probably fibro causing the pain, cirrohsis causing the inflamation. Rheumy...
ok, now I'm confused...I thought this was an immflamatory disease. Why then do my joints feel swollen and inflamed? I've also read that removing certain foods that cause imflamation is a good thing....
dor, sorry for how bad you are feeling. during my Tx I drank 1/2 my weight in ounces of water daily...this doesn't include juice, tea ect. when I lapsed on the water is when I felt the worse. I took...
I finished 72 weeks of interferon/ribavarin Tx on Jan 12, 2012. I belive I may have had some symptoms of fibro before hand but I also believe the Tx made everything come to the forefront and made it...
Thank you Robin, I really needed to 'hear' that today. This diagnosis has knocked me down but I have not given up...diagnosed 1 week ago and day 3 on the new med Citalopram. Feeling froggy-brained,...
There is something called Alcoholic hepatitus which is caused by drinking alcohol but that is not the same as hep c... drinking any alcohol with hep c and/or liver disease is like pouring gasoline on...
Hello again and thank you all so much for the kind words and welcome. Getting away from home for the weekend was very good for my overall outlook and am really glad I waited till today to start the...
Hello, I am new 'round here & I replied to another post but was asked to intoduce myself so here I go... I am 47, type 1a, stage 4 cirrohsis. I was Dx about 20 some yrs ago but had my 1st biopsy...
I have cirrohsis & just completed treatment for hepc. This womans condition sounds serious and my recommendation is an ER or hospital. It sounds like your heart is in the right place by wanting to...
I learned alot about nutrition, excersize, pacing myself and testing my limits while on HCV treatment so I feel like this is doable. Unless I am totally incapacitated I won't take any kind of...
Thank you Karen, I will spend some time reading and learning. I felt better after posting...just putting it out there in black & white makes it real and somehow easier to deal with. I'm going to...
me... /community/emoticons/shakehead.gif but I am also working with my local state vocational rehabilitation office to find a pathway back to work. [color="#ff0000">These] As for excersize...yoga...