Have any of your doctors mentioned you may have Ehlers Danlos Syndrome? I have it and it is a rare genetic disorder that many doctors are not familiar with. What happens with EDS is the DNA makes...
You mentioned that you have joint dislocations. This caught my eye because I, too, have joint dislocations along with hypermobility (extremely flexible). I was diagnosed at age 50 with a genetic...
I agree with you to the extent that one is dealing with a type of pain that responds to long acting pain medicine with some short acting for flare ups. The reality is that pain issues are so varied...
It sounds like you could have Ehlers Danlos Syndrome. One of the hallmark signs of EDS is that you are very flexible. I am in my 50's and can still bend over and touch the floor without bending the...
Acheybody - I just took a look at your diagnoses and your list reads like many EDSers that have been misdiagnosed. You may have it as well. Every EDSers has their own unique set of symptoms which is...
Absolutely it does. Dislocations and subluxations occur daily for many of us. Most people never find a doctor who knows about it or how to treat it. Ehlers Danlos National Foundation (ednf.org) puts...
I,too, have EDS. I'm 57yrs. old and have four children. I taught school for 20 yrs. Then EDS stopped me in my tracks. I was going to pain management and was on fentanyl, Cymbalta, norco and baclofen....