Welcome! I am sorry you had to find us here, but this is a great group of people. Like others have said, check out Fibro 101, there is a lot of useful info there. I am also from the Pittsburgh area...
This is how a lot of my flares start -- the constant sunburned feeling. It gets so bad that clothing or blankets touching my skin puts me in agonizing pain....
I am bi-polar and gabapentin counteracted my meds, made me very manic at first then very depressed....
I've never thought of the major day (or week) long fatigue was a flare, just a symptom...But now that you say that, yeah I guess that is a type of flare. I have been in that for two days so far,...
My vitamin D level was low, but it is very common in Pittsburgh for it to be. We have a lot less sunshine than other areas, and are right behind Seattle in rain....
I take .5mg of klonopin at night, and have taken it for 8 years. My sleep only started to be disrupted the past year and a half, so the rheumy put me on the ami to help me stay asleep....
Yoga really helped me, and I am planning on getting back into it once my finances are straightened out. Pilates, on the other hand, made me feel 100x worse. I did the "hot yoga" that is done in a 90+...
I have been taking ami to help sleep, but the last week or so I have been waking up feeling insanely exhausted and not refreshed at all, like I was originally. Has anyone else had this issue? I have...
The last two times I was checked I was at 9/18 (After I had been taking meds for it) and before that, 17/18....
My husband had that issue when he didn't get the thin lenses. The thicker lenses cause the distortion....
Well, I've been in a flare since I got home. I am terrible at using crutches so it takes me forever to get anywhere. I fell on the foot they operated on 3x so far which caused agonizing pain. I go...
I didn't do much today, but with the heat, having foot surgery this past Wednesday, and being in a flare since, going to Bingo tonight with my mother really wore me out! I don't feel that...
Is this something I should mention to my doctor when I see him next? I see the rheumy in a week and a half or so....
I just read it can be a side effect of tramadol. I do take that....
Lately when I lay down to go to sleep, the muscles in my legs and feet spasm randomly. It doesn't seem to be at certain intervals or anything, but they will twitch and spasm, sometimes hard,...
I have always been a fast talker, and it isn't even anything emotional I am saying. I could be telling my husband what we are having for dinner and it will happen. I DO usually take a breath...
I haven't brought this up with my Dr, but I have mentioned it to a friend that has fibro and she agrees this is fibro related. Sometimes when I am speaking, I "gulp" mid sentence. It's like my throat...
I just wanted to pop in and say welcome! The group here is very nice, and I am a newbie myself, and feel very at ease with any questions I might have with the group here....
Ok, thanks! I didn't see the ESR test, but the CRP was there and the result was elevated. When I call this evening to check in I will ask some more questions....
Ok, I looked over my bloodwork results, and did some googling, and found out why the rheumy says I have inflammation we need to take care of. My "CRP Acute Phase" was at 10.9, and it is supposed to...
mild ibs...
I am a mixture of AB for personality, O- blood type....
I haven't had finger twitching, but when I lay in a position for a while, my right leg/arm start to twitch. I am not laying on them, so it's not them falling asleep, they just decide to start...
Do you think this is something I should ask my Dr about? Or just let it go for now and treat the inflammation and go from there?...
I'm not sure... they did a lot of blood work, did Xrays... Just decided that I had inflammation. I take naproxen, prescription 2x a day and am on a tapering course of prednisone for the inflammation....
I have been diagnosed with Fibro by a few different Drs. I have been told I do not have arthritis, but I have a lot of inflammation in my neck and back. What else could be causing the inflammation?...
Last night ,when I went to bed, I knew it was going to be a rough night. I couldn't get into a comfortable position in bed, I couldn't fall asleep, and then I had trouble staying asleep. I feel like...
I have a constant "sunburnt" feeling on my legs, and when I am in a flare it gets worse. I also get the feeling of a million spiders running in between my shoulder blades regularly. Is it like any of...
Tried that. he just touches the tops of my hands then. The captain thing.. I am the "Captain" of my "illness ship" and my husband is the "navigator"...
Yes, he is 67 y/o, more fatherly but a great specialist for Fibro in the area and very published on the topic....
I am not a touchy-feely person. Every time I see him, he is touching my hands or holding them, like he is about to tell me I have a terminal illness or something (you know how in movies they are...
as of right now I am starting a tapering prednisone treatment. I go back in six weeks and we will go from there. trying to get rid of my inflammation first....
Last time I was there they just evaluated me, did X-rays, and sent me for blood work. They also put me on naproxen for the inflammation in my neck that never goes away. Today, we embark on the...
I always have unknown bruises... I never thought it could be fibro related, but it has been since the diagnosis moreso......
she knows of my condition but I think she believes it's a joke. today I am hurting so bad that none of my meds are doing much more than taking the edge off. I can't wait till I am off tomorrow, but I...
Unfortunately, no. I work in retail. I am also going to school, trying to finish my bachelors degree then on for a masters, hopefully....
I can't work 7 days straight anymore. I have to talk to my manager about this. I am in so much pain, so exhausted, etc, by the 5th day that I drag through the 6th and 7th. I felt "off" all day today....
He said it was supposed to be mailed, but I haven't received it yet. If I don't have it by my next appointment I will ask for a copy....
Out of two pages worth of blood tests, he called and said "Your Vitamin D levels and ABA (APA?) levels are normal." I feel like he didn't give me the results of a lot of stuff, but we'll see. Maybe...
the fibro had been diagnosed by three doctors now they are just cchecking for other possible issues.I talked to someone this morning and says the doctor wants to personally go over the results with...
I have called on friday, and no one returned my call. I also called yesterday and no one returned my call. I am getting very frustrated....
It is like Lyrica. Lyrica is just a more refined version of the drug,from what my PCP told me. I couldn't take neurontin, it messed with my bi-polarness, but the Lyrica didn't. Neither helped my...
I had blood work done a few weeks ago, and am still waiting on the results. Hopefully tomorrow I will hear from someone and get some results! Is it normal to take a few weeks for results? It is...
I am having foot surgery in the near future. Surgery is essentially a stressor on the body, and I was wondering if this will put me in a flare so I will be in even more pain than just my foot hurting...
I wish I could say I was, but every day at work is getting to be harder and harder and I am needing to take more "rest/sitting" breaks. I didn't get to sit for more than 1-1/2 hours TOTAL yesterday,...
When I have a flare, my whole body feels sunburnt. On a regular basis, though, my legs feel this way, and it rarely, if ever, goes away. Pants hurt. Skirts hurt. Pantyhose and tights? HORRIBLE AGONY....
I do have one leg a little longer than the other, confirmed by a few different doctors, but not enough to need lifts to wear. Maybe this is part of my issue......
It has been going on for a couple of years, but it is getting worse. I don't know if it is a balance issue, or what. Should I make an appt with my PCP or just wait until my rheumy appointment on June...
I have a habit of falling UP the stairs almost daily. If I don't hold the handrail going down, I feel like I will topple forward. Is this a fibro thing or should I discuss with my doctor? I have...
Not a supplement, but I was just put on amitryptiline for sleep, and it has worked wonders. I take 20mg right before bed and I am waking up BEFORE my alarm and feeling refreshed. I don't remember the...