Hello, I haven't been here for quite awhile, and from what I see, it doesn't look like this forum is exactly flourishing, but who knows.... I wanted to comment on your situation, because I had both...
Hi, I haven't been here for awhile, and that may be because I started LDN a few years ago. I can't say it has completely resolved my fibromyalgia, but it has made a major difference. I try not to...
LDN Has changed my life. It’s been about two years now and I believe it has halted the progression of my fibromyalgia. It takes some getting used to, but other than fewer flares, I almost feel jormal...
I can't deal with aspirin either, but I swear by Tiger Balm. I will look forward to trying turmeric oil, however. I wonder if you can make you own?...
I've used oregano oil and olive leaf extract, both of which are supposed to be very good antibiotics, mostly for sinus infections. I've never heard of oregano for pain relief, interesting..... But...
I just read about turmeric oil in another thread here, and rather than bring this up there, I thought I'd start a new thread in hopes of getting even more information. So...what is it? I realize...
Many wonderful posts in this thread. Chutz, yours particularly touched me, as I believe that raising a mentally ill child, coupled with other historic family dysfunctions triggered my fibro. I...
I've taken gabapentin for years, and barely know I'm taking it. However, I don't feel as well when I dn't take it. This recent increase did make me a little loony, but I seem to have adjusted. I,...
I will look forward to what others have to say about this....
I think sometimes doctor are covering their own you-know-whats rather than showing concern for their patients. I've used Tramadol for years, and yes, it can be addictive for some people. And as a...
Joy, I think that is why Prozac was prescribed for Dawn. It's all about Serotonin, and it makes sense that if Paxil adjusts your serotonin, then it will help with your pain. Oh, and Dawn: one thing...
I think we are all, inside, at the age that we felt the most alive. For me, the thirties were wonderful. There is a part of me that is still in my twenties. I remember my dad, at age 93, sitting on...
Oh, well, I don't think any of us should suggest meds for each other, but we can share our experience, as well as what we've heard. Let's see, I think Lyrica has a good reputation. Cymbalta, also....
Prozac--fluoxetine--has been prescribed for chronic pain disorders, but I wouldn't say it's the drug of choice. On the other hand, for people who don't have insurance, it might work and it sure is...
I think we need to be really careful not to diagnose each other here, but I can certainly agree with all that's been said above: it DOES sounds pretty typical of fibromyalgia. I think what you're...
Does anyone know about the cognitive effects of long-term Neurontin use? I ask this because shortly before Christmas, I increased my use of Neurontin--at my doctor's suggestion from 900 to 1500...
I don't remember where I read that either, it was probably in the very early days of understanding about fibromyalgia.... And I agree: everyone here seems very bright, and most of us are hurting too...
When I am "flaring" as I call it, I feel as if my face is burning. When the burn goes away, the flare is usually over. But it seems to me that all of us have similar, yet different feelings that come...
As a matter of fact, Vitamin D deficiency is a major problem for me. Seems like I just can't absorb enough or something. I just got it done, and it was 14. So my doctor prescribed a major dose over a...
Aaaaarrrrrrghhhhhh....... It continues to floor me that every post here, I could have written myself. We're all miserable. I guess in a way it makes me feel less crazy to know I'm not the only one...
This is kind of a stupid question, but is it possible that fibromyalgia can segue into MS? In the last few weeks, in addition to having the word flare I've ever had, I've been really clumsy and...
It's hard to know what symptom to attribute to...what. Dry eyes, for instance, are also connected with aging in general. However, I notice that mine kind of fluctuate, and I might possibly be able to...
When I first started reading about Fibro, what I read is that it generally lasts somewhere around ten years, if that--and that it usually strikes younger women. I am 62, and I have been struggling...
Without knowing how much Gabapentin you're taking, I am surprised that you were told to just stop. It must be a very small dose. I wonder if the problem is not that you need to stop, but that you...
I'm a great believer in Colloidal Silver. I just read that it's good for all kinds of eye problems, so I put a drop in each eye, and it helped a lot more and my eye drops. After all, they put silver...
Is having dry, irritated eyes part of the whole thing? I'm in the middle of the Flare from Hell, and my eyes are driving me crazy. I use homeopathic eye drops--a lot--but this is making me crazy. Is...
Mishell, I just read your post to my husband, remarking "I could have written this." He's an understanding guy, in fact one of the best....but I don't think anyone knows that it's like to be inside...
I think they can't explain things to us because they don't know how, and I think there must always be a part of them that protects themselves from their powerlessness by thinking that we're probably...
In my experience, most doctors--males, at least, dare I say it!--are not comfortable talking about much of anything. I don't know if it's because they are aware that they don't have the slightest...
I had bad arthritis long before I had fibromyalgia. I took MSM and I thought it helped. You don't have to get it at Trader Joe's, although they may well have good prices on it. Vitacost is often the...
Some people go with marijuana, although I suppose if you're not in a state that has legalized it, you're taking chance there. But really, all you're saying here is what we all say. Modern medicine is...
We all have different chemistries. For me, gabapentin (Neurontin) is a lifesaver. Lyrica...meh. Pretty useless. I have heard that Neurontin doesn't work for everyone, but for those it does help, it...
I've only done one really long fast, ten days....and I found, after a few days, that I actually felt far better and needed my meds less and less. I used that particular fast to get off my meds, and...
Jenni, not only do we have much in common, we take a lot of the same meds. I must say, I've never heard of Modafinil, and Lyrica didn't do it for me, but Neurontin does (which make little sense,...
When I was a kid, that's what my father would say to me if I expressed any symptom whatsoever: "Ah, it's all in your head." This was particularly interesting because, as I've mentioned here before,...
I'm sure no one will want to hear about this, but one of the things I've learned to do when I'm having a loooong flare (which I am now) is to fast. Joel Fuhrman, MD, has a great book on this topic...
Central Sensitization. Okay, will do. When I feel better! :-)...
When this sort of thing happens to me, I feel like my brain fog is just getting worse and worse.... My husband just had a terrible time finding the Benadryl, and after looking in all the places where...
I use Tiger Balm, and I swear by it. I find that it is a GREAT analgesic, and will really soothe my miseries for awhile, at least. The main ingredient is capsaicin (red pepper). You can buy it at...
I've been ill for a couple of weeks now, and I finally caved and went to my local urgent care place. They were useless. "We understand that you feel badly, but we can't find anything wrong with you."...
WOW. And once again, I thought I was the only one who felt awful after exercise or sustained activity (such as a day at the mall or a museum or whatever)..... There just HAS to be a solution to this....
I'm not sure where I read it, possibly one of the excellent articles posted here, but I was fascinated to read of the strong genetic component to fibro. I wrote a post at the time mentioning that now...
I first started to get sick one winter when we lived on Lake Superior, way up in Michigan....we rescued a cat and her kittens, and I knew perfectly well I was allergic (I've been tested for that, at...
I saw the thread below about flu-like symptoms, just as I had come here to find out why I've been so sick for going on three weeks: As a fibro sufferer, I have the strange aches and pains, but the...
ak angel, I have to ask: are you in Alaska? I lived there for seven years, love it dearly. I thought I'd heard of all of 'em, but not remron. Can you tell us more about it? I am not thrilled with...
Isn't it fun to watch movies on the privacy of your very own belly! I love my tablet, and I notice so much more detail that way! But I go to sleep most nights with my earphones in, listening to...
This is an interesting thread for me, as my sleep has been TERRIBLE the last couple of nights. I have caved in to using Ambien over the years, but as we all know, we get habituated to it and it...
I too use tramadol, because I can't use NSAIDS. It is my understanding that such meds make you feel better because they take serotonin from your gut (did you know we made it in our guts too?), and...
I have been thinking about this: a journal not just of meds or methods, but how I feel at a certain time, what hurts, how much, what is happening in my life when these pains come....to see if there...
Start immediately on Probiotics and a natural colon cleanser. Your bowels will regulate themselves and you will feel better. I recommend ordering online to save money, but you can get something to...