I have a lot of the symptoms of RA and none of the bloodwork. I also have an immune deficiency so I don't make antibodies (what RA tests test) properly. Having said that, I saw a rheumatologist who...
I would be a little cautious about over the counter CBD oil vs from a dispensary - only because of ensured potency. Kind of like vitamins or herbals, I would worry that the strength or purity...
I'm almost two weeks in trying it. I was told by the prescribing doc it would take a month or so. I take CBD oil 2x a day and a THCA oil 2x a day (apparently THCA, while having the THC, the THC is...
Pressure changes definitely kill me. Weather changes, altitude changes. For spring break we go on a 12 hour drive to visit relatives - through a mountain pass. This year I am flying down to meet the...
Wow....I could have written your post. I am in Canada and travelled to a rheumie in another province who had not received my bloodwork from my GP and after poking me and some superficial questions,...
They say the Inuit have a hundred different words for snow....I think there should be a 100+ words for pain. I think of that plastic wrap pain as if I have bands tight around my limbs, especially my...
Wow - you have a doctor who wants to work with you and wants to hear your opinion !!! I had a bunch of blood work done a few years ago. I have a IgG deficiency which makes me not produce antibodies...
I work casual. It gives me so much flexibility and time off when I want if I give notice before the schedule goes up. It is important to me to work because it gets me out, interacting with people,...
Booklvr - I too live in Canada - northern BC. I have had so many thoughts like you going through my mind ! Winters will be the death of me. I am miserable by January, if not before, tired of the pain...
Definitely. Weather is unseasonably mild so the pressures dropped to 99...by tonight they will reach 102. Insult to injury. I had a wicked cold right before Christmas... had to sleep sitting up a...
I am a water fitness and instructor and I teach at a facility where we have a variety of classes, varying in intensity. We do have some hard core classes, some mixed level drop in ones, but also some...
Aack....sorry, but why won't you disclose what your new diagnosis is ? It might be helpful to some of us. I am undergoing investigation for Sjogren's at the moment - I too thought it had to be...
I get different types of bone pain. Sometimes I do get that deep ache, other times its like needles poking in my joints. Yet other times the pain is like I have tight bands around my elbows, wrists,...
I find this kind of pain to be a recurring thing. A good pillow helps - seriously, I have 'pulled' my neck sleeping. I find one that lets you head sink into it is best - so that when you are lying on...
I agree that the weight makes a big difference - extra stress on joints, etc. Exercise is very important though - moving all those joints and muscles - and stretching is super important too. I feel...
I saw my GP and he said I couldn't take Tramadol because it cannot be taken with Ampitryptiline. Last time I ran out of Ampitryptiline I had lots of tingling and my pain shot up big time. That...
I am currently on ampitryptiline for pain and sleep - helps me get back to sleep when I do wake up and seems to quiet those tingling sensations. Like many of us I do not want to medicate because of...
I take amitriptyline in the evenings and have been for about a year. The only real side effect is a dry mouth - but that has diminished over time. I find if I take it a couple of hours before bed I...
Just curious if there are folks out there like me. I guess I have Fibro (rheumie diagnosed)...a secondary thing after a serious immune deficiency called CVID, which I inject plasma regularly to...
I use Elavil and have for several months now. It's not a miracle remedy but it helps. When I first started it I did notice some dry mouth but not so much anymore. I tried a couple of other Fibro meds...
I get that too - when it's really bad. Lying in bed trying hard to relax, waiting for the buzzing to simmer down. Horrible feeling - joints are almost throbbing, have a life of their own ! Sucks when...
I take amitriptyline (Elavil) every night and it helps a bit. It's the only med I take - other than tylenol for somewhat regular headaches. It doesn't make me groggy in the morning and has no side...
I have had a lot of stomach issues over the years. I too have tried Nexium, as well as Prilosec and keep Tums around. Medicine just doesn't seem to cut it (for me).j Now I only use Tums and not very...
The chest thing...don't make me spell it, ha ha... is more than a muscle. That wonderful "grab" that catches you & makes one think about heart attacks - there is a hinge in there somehow, some...
I get those kind of things too. It's not a real muscle pull because that can last for days and is an actual tear in the muscle fibers. I can get up from sitting and the front of my hip pulls - but I...
Just rambling I guess but at this point I can't remember what it is like to not be in pain. Life has become all about managing pain levels...the fatigue and gut problems and what not just add to it....
I agree with Andre - doctors are pretty much trained to dole out meds. Few docs understand a multi faceted approach - diet, activity, rest, & sleep. I have had little success with drugs - they...
Winter is coming....ugh. Winter is when I really go down - I live in a very wintery, cold, snowy climate which is hard enough to stay motivated for anyone, esp. when it stays dark so long (in the...
When I am in a flare I think I look like I have been crying....definitely have those dark circles under the eyes. I have been tested for Lupus repeatedly - all negative - but I can get a mini...
I also live in Canada - the ups & downs of winter are brutal. We have an early spring out west here and it is wonderful (body wise!). In February I went down for a week to see my folks in...
I have some leg issues - try to stretch a lot - helps but that's painful too ! My left hamstring bugs me if I drive too long, my right can hurt up at the top. I have hip bursitis so sometimes the...
Wow - so many folks with IBS. Just like Fibro - diagnosed by exclusion....all those tests !! I have had a lot of them too. Yeah, I am in the same boat. I can mostly manage it by diet but nothing is...
I work out regularly and I stretch ALOT. I think that is key. I walk mostly, teach water classes (mostly on deck), teach weight training class, and run a bit...and do yoga or movement classes. The...
Just starting this....just diagnosed with Fibro after a few years of "is it Lupus" etc. Was just curious about anyone's experiences ? Doc also gave me Sinequan/Doxepin for sleep. Thanks....
I am on subcutaneous infusions of Hizentra (plasma)...have been for a year and a half... for cvid (I have low IgG). That all started with a few pneumonias and an experienced doctor picked this up....
Following another thread... how many folks out there have had a brain MRI and had MS like lesions ? I have them but have been checked out by a neurologist... and had a follow up MRI a year later......
I agree that building up is a good idea. I also find that some days it takes me awhile to get going, to feel good about doing something. Stretch! This is so important - I do a 10 minute stretching...
I wish I had the magic answer for you. I'm 42 & a fitness instructor. Over the last few years I have had may inflammation issues. Sacroilities, shin splints (without even running), calf spasms,...