I think you will like the throw. Stay warm and pain free this winter!! 😂 Glad you liked my quote!...
Hi Luvzminis, I just looked at my Biddeford blanket and it's actually a "throw", not a full size blanket! Lol, it's huge though, bigger than the throw I have by Sunbeam. I use it on the bed during...
Hi Luvzminis, I know what you mean about Sunbeam's settings. It seems the older ones from years past were better. I also have a "throw" size one by them that I wish was hotter. The only other brand I...
Hi Carioke, I used to flare it seems every spring and fall when I was first diagnosed 28 years, and like you was prescribed prednisone on and off over those years. But something changed over the...
Hi Luvzminis, Have you ever tried the antibiotic Z-pak? I just finished a 5 day course and I need to be choosy bc of my ulcerative colitis, and I find it's well tolerated (on that aspect anyway). I'm...
Yes, I get that too. I explained it to my GI as oozing. I usually have to increase my enemas to get that under control. Idk why it happens, if it's lingering inflammation, not fully in remission, or...
Sherrine, you are so knowledgeable, and I just want to say thanks for all the information you provide!! You are helping so many people with your story and sharing of ideas. ☺ I for one am very...
Susie, I didn't know you can rent one! That's what I'm going to do for sure. They are kinda expensive so this will be good to test it out. The heating pads I too have around my neck as I go about...
I'm sorry you are suffering so! I don't know what to offer for advice except maybe to try PT for awhile longer? Oh, and heat therapy.... have you ever tried that? I take Tylonel round the clock as...
Hi Susie, Yes, I had the MRI done and it showed normal wear and tear of my cervical spine (osteoarthritis) with some narrowing (stenosis) and small bone spurs noted. The pain specialist said it's...
I had to get an MRI done before seeing the pain specialist as well. The xrays showed OA of my cervical spine, and the MRI showed narrowing, but the pain can be managed (so far) with heat therapy and...
Hi Luvzminis, I love both green olives and pickles! I love to chop them up with whatever I'm having for dinner, sometimes both together if I can't decide which one to have, lol. I get the olives w/o...
Hi Straydog, Yes I scheduled an appointment, but first I need an MRI of my cervical spine bc that's where it's the worst. I have bone spurs in the neck. No, my rheumy didn't change the muscle...
Even though the forum is not as active as it once was, I still like the fact of searching old threads on topics that may apply to my current situation. It's like a "Dr on Call", sympathy when needed,...
Have you had a recent colonoscopy? Your doctor will be able to tell you where you are most likely inflamed. Everyone is different, yes, with their poops and where they are inflamed. But like Quincy...
I cannot drink regular milk bc I get so bloated and gassy, so I use Lactaid milk (Walmart has their own version a little cheaper). I'm okay with Greek yogurt and hard cheeses, but if I eat too much I...
Thank you Sherrine! 🤗...
Oh that would be great to know how to find a good massage therapist. Thanks. I do have a question about trigger point therapy for anyone using it (Sherrine has mentioned it and it's something I...
I'm not too sure about the rice packs, only bc of recent news about mold spores. Did you hear about that? They said after it's been cooked to toss any remaining bc of dangerous mold spores that...
Hello, Luvzminis, I love heat therapy as well! The microwave gel packs are the best. I also like to use a wrung out hand towel on my neck and then cover that with a gel pack to get a "moist heat"....
Whoa, I'm searching this forum right now about gabapentin, and there is a lot of FM folks with different experiences!...
Hello, I saw my rheumy today to go over my xrays and labs. It shows I have osteoarthritis in my neck which she believes is causing pain to radiate to my shoulders and hands. Interesting. She said...
Wow, that's interesting. I don't care for them at all, blah! I read that a little bit of cinnamon (1/2 - 1 tsp a day) is also good for the memory....
Zoinks (!) that's a lot of ibruprophren. I can't even take children's formula without fearing a flare up/bleeding, but I do when my headache turns into a migraine and I'm desperate for relief. And...
Hi, Imuran would have been a good one to try while on budesonide (or prednisone which was my case), so as you were coming off it, the Imuran could take effect, which is typically 2-3 months....
Thank you Sherrine for the quick response and information. I know my CRP is within normal range, but I'm not sure about ESR. I will definitely ask about that. Also, my report said ANA positive, but...
Hi, I'm new here, from the UC forum, bc I was recently diagnosed with myalgia - unspecified. I was wondering what the difference between Fibromyalgia and Polymyalgia is? And if I were to ask my...
Hi Tired, I'm going to head over to the Fibromyalgia forum......
Hi Tired, I hate those pics of pred face too! Everyone tells me they don't see it, but I think they're all lying! Lol How are u feeling today? You might be going thru a tramadol withdrawal, with the...
Hi Tired, Aqua therapy sounds heavenly! It must loosen and relax all your muscles, I'm assuming like a hot shower does. Nice! So, how long are you going to be on pred? Are you taking it with the LDN?...
Rectal enemas: yes, you could try these. Popcorn: noooooo. But maybe once in full remission you can (if you want to take the chance). I avoid it though and enjoy the puffed corn that comes in a bag...
I did have extreme pains throughout while on Imuran, enough that I thought it had brought on PMR or fibro, and so that's why I went to see a rheumatologist. But it's not that severe anymore. Heating...
Herbgarden, Just wondering how your son is doing. Hope he's gotten over his ordeal and is in a good solid remission....
Hi, What meds are u taking for your UC? My rheum Dr said my pains were most likely from recent pred withdrawal. I had thought it was from Imuran bc it started a few months after taking it. She didn't...
Funny, I just saw a rheumatologist to see about this bc of my ongoing muscle pain these past two months. She diagnosed me with "myalgia - unspecific." She didn't say what kind though. So when I...
I've always had problems with the prep. I tried the Suprep too and couldn't do it. I'm like you, I can't stomach it. Some people say Suprep tastes super sweet and they do well (!), but to me it...
You may want to try hydrocortisone enemas at night, just enough to get the bleeding and under control, then revert back to mesalamine enemas....
When I was first diagnosed, I would flare literally every spring and fall. Summer and winter I was fine. Could it have been from allergies (spring-pollen, fall-molds) that would trigger a flare? , I...
Poopydoop, yes I wonder too about what exercises are safe. Low impact, but which ones and how much at one time. So are you taking prolia? I need to research that one....
Scary!!...
IPoop, I have osteopenia as well, holding steady over the past 13 years (this is my fourth scan), but I just found out my femoral neck t-score is - 2.4! That scares me! My total hip is - 1.4 and my...
Hi, If it's a true flare, then no, it never goes away for me without steroids. Right now I'm using hydrocortisone enemas as maintenance until I'm ready for something else. Rowasa enemas actually make...
Yes, this would be a good time to start something like Imuran (while he's on prednisone) bc it takes several months to start working, and he would be tapering at the same time, so once he's off pred,...
Oh no, I can't believe his Dr is giving up so soon on the prednisone! That doesn't make sense. I would hope your son can get into remission with the Flagyl alone, but with the way you are describing...
That's okay Suttie, many of us use a combo of drugs here - - whatever it takes to stay well and in remission!...
Okay, so maybe give it more time with the Flagyl and prednisone combo, like the Dr said to wait. Easier said than done, esp when your child is in pain!...
Whoo hoo! Good to hear!...
Oh that's good they tested for C-diff. Why was he taking Flagyl?...
Please call his doctor for advice if he's feeling so unwell! Maybe he needs a higher dose of prednisone (60-80 mg) to stop this flare. I've had to before for bad flares. Good luck, and I hope he...
That is good to hear you are doing better. Are you still taking Lialda along with everything else?...