hi You may have refered to one of my posts..If he now has pilmanary hypertension and is having to get thoracentesis,,,,he may have a process called hepatopumanary syndrome. A diagnoses of hps will...
hi jeff, Ar first I thought you were a raving guy full of amonia build up// Then I see ya say start downing antioxidants..........I see you did ya research.......we have just started a nutrition...
Glad to share with you.......just tell him you think he has hps an pls do an echocardiogram with contrast and a Tc99MAA perfusion study........Alot of ppl think Drs are some sort of wizards that know...
Mer, hepatopulmanary syndrome is the dilitation of pulmanary arteries in the cappulary stage. 2 methods can test for it. An echocardiogram with contrast which will show right to left blood shunting....
Im so sorry im just starting this with my wife. shes older but i could be like you soon... Im from NC also....Morehead City.....If we can help pleade ask we arent far......Wayne/Cindy...
In another thread I mentioned that UNC wanted us to consult a Pulmonologist for evaluation of Pulmonary hypertension. Now I see why. This Dr is a good hepatologist... he is really looking for...
Glad you got your transplant so fast.........ope all goes well..............Glad Blue Cross did so well with you perhaps the will with us............
Anyone had esp with this? I work fulltime 60k a yrs job have Blue Cross ins.......Since Cindy was diagnosed with ESLD we are now owing bout 15k in copays.........can we get any help??? So far 2...
Now we add another Dr....... UNC called today... they have an appointment set up with a Pulmanary Specialist....our hepatologist wants her evaluated for Pulmanary hypertension...... And the dr is in...
We are aware of all these delays in medicare medicaid........some suggested we get a divorce on paper as I make too much money to qualify....
Admemdum, Sad thing is even though we made the Disability happen the laywer will still probbally want his 25 percent even though he never got us a hearing.............
A good sign, I fprgot to tell you all we did have a good thing happen last week....Weve been trying for disability since early summer. I friend said to write our congressman Walter B Jones. We did...
Exhausted, Thanks for the post.....Were exhausted ourselves. Been at hospitals 14 hours today. Started out at 700 at my hospital getting 2 units of blood,then drove 40miles to the gastroenterologist...
Well we had a great thing happen 10 days ago... We got a call from UNC saying a pt cancelled his appointment an if we could be there the next AM we could have his appointment or else 6 to 8 months...
After being Diagnosed with ESLD a month ago...2 Paracentisis in a month one Blood tranfusion.......Still a MELD score of bout 14........We ve gotton better with Duiretics....... and life is...
To make things worse weve waited for 3 weeks for the Transplant Center at UNC Chapil Hill to call as thats what the Gastroenterologist said would happen...........We called UNC they said we have no...
Not wanting to change the topic.....I just wantined to let you all know where our didease progress is now...We thought all was better after Cindyd 2nd Paracentisis....The Dr increased her Aldectone...
Went in today for our 2nd Parracentisis...only 13 days ... 6 liters today. Electrolytes were all normal.......that was good...hope the Aldectone boost will keep fluid off.... 150 Aldectone an 40...
Update calle d the doc tonight to try an get dosage increased he increased the Aldectone to 150 and wants her in monday instead of wed This is good..........
I agree I think her lasix should be 80 an her aldectone at least 100.........She already gained 7 lbs since the paracentisis on the 28th.we probbabally will need another paracentisis on the 12th when...
ATM shes on shes on 40 Laxix 40 Aldectone plus potasium an vasotec....
Thanks all for you advice..I have one question....after her 1st Paracentisis on 10/28/08 Aldectone was added to her meds.....Shes still full of fluid.......We only drained 6 liters that time..........
What do you mean by several years of happy healthy living/?....Have you experinced this?.... I we go thru all this red tape surg an reduced quality of life to get a liver we want more than "several...
Any one her had exp with DD after being sent for transplant?...
Were faxing every med record we get to our SS/DD laywer as soon as we get em............. laywer says we may get DD much faster now that shes been refered for a Liver Transplant...
Thanks Judy, All is just sinking in at this point and go through with the Transplant Interview process.......but my god.thats gonna cost thousands just with all the diagnostic tests that UNC has to...
Hello all, This is our 1st post. Id like allo to know that Im a Radiology Technologist...who has worked in Interventional Radiology for the past 20 yrs. Though Ive performed hundreds of Paracentisis,...