Thanks Connie, I am so lucky to have people to talk to. I am sure some of my sleeping problem is caused from depression. My husband and I are not getting along. He doesn't understand medical stuff...
I am so sorry I have been away so long. I haven't been to well. I think I slept Sept and most of Oct away. I was full of ascites about[b] 12 extra pds. It is mostly gone but watching for any return....
Hi Connie, Sorry I didn't get back to you last night. But I was really upset over my diease. My Liver Dr. called me and changed meds. He brought the aldactone down to 100mg and he did add lasix of...
Hey Connie, I have lost about 2.5 lbs. over the weekend. They are gong to see me on Thursday. The reason they don't want to put me on lasix is because I have osteoarthritis and a long time ago it...
Hi connie, I finally got to the doctor. I knew I couldn't go threw the weekend. So I went up and sat at the office. They saw me and just doubled what I was already on. Call on monday to let them know...
Hi Dany, I have never had good luck with weining off pred with any of these drugs. I have been on this stuff for 16 yrs. My body is falling apart due to it. Jerry's idea of 6mp might work. we tried...
Hi Dany, I have been on them all and I would want to go back to cellcept and then when labs are stable wein off the pred. Cindy...
this is the first time I have had this fluid. I mean my ankles and legs sometimes swell in the heat. And I looked more closely at the diuretic and it is only 100mg instead of four. So yes I would...
Hi Connie, I am on 400mg of aldactone split morn and night. I thought about asking that. But no one has called me back all day. So I will have to find out tomorrow hopefully. It seems to work a...
Thanks child 4 for your info. But what worries me is i am not ready for a transplant, not even close to the end of liver disease nor do I have liver cancer. this is why I am so confused about[b]...
Hi Connie, I have just started with this fluid thing. My liver doctor isn't sure about my liver beig the cause, but I do. The pain across my intire abdominal section is sometimes so intense. Most...
Hi Jerry, Sorry to hear about your flare up. It feels like a roolercoaster sometimes doesn't it. I finally got my levels down. Plus down to 2.5mg of pred. So excited but now I am not feeling well at...
Welcome bulldoglover, I am a Goldendoodle girl, We have 2. I have had AIH for 16 yrs. They immediately told me I had to go off birthcontrol. I already had to beautiful girls. They were 5 and 9. We...
Hi dany, thanks for letting me know you were concerned for me. It means a lot. Yes, We are dropping 2.5 at a time. It's been great. I was down to 2.5 and not feeling well at all. I started to have a...
This wonderful news for your mom and you. Have a great recovery and look forward to hearing how well your mom is doing. Congratulations again!!!!! cj7...
Hi Jerry, I have been reading everyone else's post to you. I can agree with all of them. I have been on all started with Imuran then went to 6mp going to cellcept for years and not because I had...
I was turned down the first time. But my doctor said hirer a lawyer. Well I couldn't afford a lawyer. So I did get a state approved lawyer. Thought I don't have a chance in h..... So we sent in an...
Yes it does stink!!! I am in the same boat with pred and BS. But you still have to keep yourself calm and patient. I know because I have been on pred for 16 years. It has brought my childhood Asthma...
Yes, I was dx with type 2 in January due to pred. I have been up and down on it for 16 years. But I also had higher sugar carrying my second child which was before I had to take pred. for AIM. So I...
You haven't been completely told that is what you have. they just think so. I so remember going through all those tests in the begining. They changed thier thoughts every test they did. Have they...
Hello, Had my new labs on 5mg of pred. They are staying stable so here we go down to 2.5. It has never happened. I would like to stay positive about this only everytime they try to get me off I get...
Jerry, Sorry to here that you are having a flare up. I know it really sucks going up and down on pred. On your medication do you use any generic meds. Or the real stuff like Imuran. I know that I had...
Jerry, It has taken me 16 years to get my levels to where yours is. So I am glad to hear that you have stopped drinking. It is only the best thing you could do. Remember that no one else can help you...
Connie, Thank you so much, I am a little leary about telling people my whole story due to the fact it isn't really good. I wouldn't want to put any doubt or bad thoughts into anyone because they will...
Yes, I am still on Imuran and pred. I also am on a very low dose of prograf, which is used in transplant patients. But they are finding low doses help those who don't respond fully to just the other...
Hello, I was dx with AIH in 93. I had to children about 5 and 9 and worked a full time job. The biggest thing I remember at first was the pure exhaustion. I slept all the time, lost work and needed...