Hello Again, We (I say we like I am going through it!!) made it though the battery of tests and saw the hepatologists assistant last week. She said all the tests looked good except for the MRI shows...
Thanks for the tips and ideas. We did go to get his records awhile back and the hospital charges 1.90 per page and it would have totaled almost 250.00 (which we don't have). When we go to the hepa on...
Hello. It has been awhile since I posted last, but haven't had much to report. My brother finally started the pre liver transplant evaluation process. In the last few weeks he has had a Stress test,...
Welcome Grandpa. For some the glass is half empty and others (like you) it is half full. You have a tough row to hoe but it sounds like you aren't going to let it stop you from enjoying the things...
Hi Raven - My mother was diagnosed with fatty liver. She went in to have her gallbladder removed and they saw that her liver had adhered itself to her gallbladder and they couldn't remove it because...
Just an update. I took my brother to the free clinic at the hospital Thursday. I was suprised at how organized and well run it was. It just so happened that one of the docs that he saw in the ER when...
Allie - I am sorry you are having a tough time right now. I cannot begin to tell you what to do. I am glad your daughter is backing down a bit. It is hard being a 13 year old and hard being a mom to...
As Connie said it must be so hard when the transplant goes well but the infections take them. I am so sorry for your loss too....
Hey Thanks all!! I wrote down all of your suggestions along with what I could think of. It is a free clinic so I am sure I won't have much time and want to make sure I get things covered. I think I...
Hello - I am taking my brother to the free clinic this Thursday at the hospital where he spent a week in October. This is the same hospital where he had his fluids drained and they did every test...
Hi Sue, I just posted on Harps thread about your Red Binder!! I told the person at the Medicaid office he had cirrhosis and the dr wanted him to be evaluated for a liver transplant and they told me...
Wow Shadowghost. That is a great idea. I document 'everything' but am still learning about what to ask for and how to organize it. I am buying my brother a RED 3 ring binder tomorrow!!...
Hi, I can't imagine ever NOT missing someone in your family. I can tell you the intensity and pain lessen but truthfully the missing doesn't. My dad died 6 years ago & I miss him everyday but I...
Hi Harp - I know I am a couple of weeks from your last post but glad to hear things were going well. My brother is being proactive about his eating also. I am in Ohio and we have 2 transplant centers...
Hi All - Just an update on my brother. We did go to Job and Family services and they issued him food stamps which took effect the following week. That is so helpful as he is really trying to eat...
Hi TJ, My mother was diagnosed at 65 with Non Alcoholic Cirrhosis. She went in to have her gallbladder removed and discovered her gallbladder had adhered to her liver (or vs vs) so she could not have...
Thanks Connie. That is a great idea about requesting certain records. duh....why didn't I think of that!! And yes, we are aware about the documented 6 months of AA. It just seems like we can't do...
Hi Harp, Thanks for asking. Since the hospital stay I have been gathering paperwork (birth ceritificate, w-2s, dr reports etc) for SSI. I went last Friday the 6th and filled out his SSI application....
Thanks for the explanations and your thoughts on this. I do know that the disease is not reversible or really treatable other than with a transplant and/or diuretics etc. I guess seeing or hearing...
Harpa (if I may call you that :>) I did read your post. Wow...you are amazing!! I am just so overwhelmed at all there is to do. However, I am not sick and my brother is so the least I can do for...
Hi I am new....and googling all over looking for information. I am more confused now than when I started /community/emoticons/sad.gif My brother was just diagnosed with cirrhosis. He had 6 litres of...