Merry Christmas Sandi !...
ML - My hubby first got albumin in the ER when he had his first paracentesis done. He now gets it along with his weekly paracentesis. It is a nutrient that somehow helps to maintain blood pressure....
Wondering if anyone knows if as ESLD progresses does the lactulose not work so well with EH ? He is faithfully taking it and getting the expected results in the bathroom, but seems to still be a...
Connie & Rick - Much appreciation again for your replies. I do understand where you are both coming from - however I was stressed about that with everything going on I decided to stop for a...
ML - Sounds like your hubby and mine are on the same roller coaster ride right now with the kidney problems. Unfortunatley Rick is right about the Drs. being less than encouraging when the cause is...
Sooo Sorry for your loss !...
Many thanks to you all for your thoughts, prayers and support! Mom is here. Laying in bed with him watching TV right now. I screwed up tonight. Went to the store and then stopped at the bar we hung...
Hi all - been a week+ home from the hospital. It's been up and down since his release. His mom stayed for a few days to help out. This was great as I was able to run errands and know that he was not...
WG - I have a 19yr old son who has been on meds since he was about 5 for ADHD - same as ADD but with hyperactivity thrown in. His father ( my ex ) was on ritalin when he was a kid too. The main side...
First of all - Happy Thanksgiving to all ! David came home today, and for that I am thankful ! His mom is here too, and for that I am thankful ! Mom "dave-sat" for a while so I could spend some time...
Thanks so much for the replies and support. It has been huge roller coaster ride this last week. I want to share all that has transpired, but it will be a very long post and I am very tired. I will...
Haven't posted in a while. Been reading lots and getting lots of info. Thanks to all who post more regularly - the info is so educational and so valuable to everybody who is dealing with this. David...
Connie - no they haven't tested for the varicies since he was in the hospital. Figured we would ask about that if RBC doesn't come up. Sue - He is on medicaid so I doubt that they would pay for the...
Thanks once again Connie, He was on iron before - when RBC counts were low which turned out to be from the bleeding from the varicies. Dr. didn't/hasn't ordered updated bloodwork - I planned to bring...
Thanks for the input on the TIPS Penny. Still awaiting PCP's answers on if this is even a possibility for David. We are in Michigan and apparantly U of M in Ann Arbor is the only place that does the...
Emma, My Dave has been drinking alcohol since he was a teenager. He is now 45 and already has ESLD and Cirrhosis. He and I and the rest of our world know that there is nobody to blame but himself....
Sue - that is too funny ! At least you get the White House. Lately he's been watching American Choppers all afternoon and then when the ambien kicks in later - - - We're building bikes !! LOL...
Thank you Sue. Trying to be as proactive as possible. He's gotten somewhat annoyed at times, but overall I know he appreciates me keeping my eyes open. The last time he ended up in the hospital he...
Kinda what I am thinking/doing. He's finally sleeping right now! I am calling doc tomm for the blood test results from yest (hemoglobin and ammonia) will ask about the rash and BP if still low....
Hi Connie - thanks for the reply. No the doc didn't see it yesterday as I did not see it until today. It is on his leg around his knee and looks like lots of red dots. He believes that it is ingrown...
Well - went to Dr. yesterday. Took him off of BP meds. Decided to continue weekly paracentesis for another couple of months. Bloodwork seems improved somewhat. Ammonia was slightly up - 49 and...
Emma PS - Not a silly question at all - my first one to the Dr. as he had not been drained prior to this. Diane & Dave...
From what we were told it was infected due to all the pressure from the fluid pushing normally existing bacteria from stomach, bowels etc. and into the fluid. He has since been taking a once a week...
Gnet - Yes David has been having fluid drained once a week for the last couple of months. Average of around 7-8 liters per week. The radiologist performs the ultrasound to ensure safe entry of the...
That is our plan Connie. Have a lonnnnggg list. Even bringing the BP monitor so we can show him the readings. Thanks again ! Diane & Dave...
Waiting tonight ....... Go to Dr tomm for blood test results and hopefully answers to many questions. Have been keeping close eye on BP. Have cut him down to 1/4 of BP meds that Dr. prescribed. Just...
Thanks Connie & Sandi - we have cut his BP meds in half the last few days. Have been keeping track and BP is still pretty low. Anxiously awaiting Drs. appt on monday to discuss lots !!...
Yes that is the biggest fear that I have right now and each week when we go....
Thanks for the reply Connie. Yes he did skip his BP med yesterday. BP was/is still low - 70's over 40's on the low side. We have an appt on Monday to see his PCP and get results of bloodwork and...
Susie and Rick - can you please tell me what the complications/risks that are involved with the TIPS. My other half has ESLD and has been getting parencentesis done weekly for about 2 1/2 months. His...
Thanks for the reply Connie. We actually on our own have been decreasing his BP meds. First just before his weekly appt. then it has been daily. At this point he is down to 1/2 of what he had been...
Hi all, Been a while since I posted. I've been here reading though. Tomm morning we go for out 10th week of scheduled drainings. I guess I am nervous. Overall, I guess it has been going OK. No trips...
Sandi, I too read through your story with Mike. I am so sorry for your loss. It sounds like you both cared for each other so much ! I want to thank you for your posts/advice on my thread and wish you...
Hi All, Hope everyone had a good Labor Day weekend ! Last week's draining went well, but they took off 6 liters this time. It's time to go again tomm. I guess that I have some mixed feelings about...
Hi all, Thanks so much for your thoughts and advice. Went for weekly INR test today for getting drained tomm morning. He's pretty swelled up again. This is our 3rd routine parencenthesis...
Soooo sorry Sandi !! I have only just started on this forum, but have read quite a few postings and have learned much. I have lots of people to talk to, but not any that really understand all of the...
Thanks Connie and Corrie - just having someone familiar with all of this helps sooooo much. All of his family is out of town. They are a very caring family and come to visit, but I'm pretty much on...
Thanks for your replies. His ESLD is from alcohol. He is on Lasix 40mg a day, aldactone 100mg a day and propanolol 40mg a day. Also sodium and fluid restricted diet. Just got approved for the...
My 45 year old boyfriend was diagnosed back in June with ESLD. It has been a very long couple of months. He has severe Ascites and has been hospitalized for blood transfusions due to bleeding from...