Having lost my husband to ESLD at the end of May, I feel that some aspects of this liver forum are not based on “Healing Well” but rather on nit-picking. I recall how desperate I was for information...
My poor John put up a valiant effort, but lost his battle with ESLD on Friday night. He passed away at 9.50pm. I feel so lost and sad right now. God bless each and everyone one of you on your journey...
Hi Mick, I sympathise with the vertigo - its the only thing I can really relate to in your list... I get it from the planes going to and fro to Adelaide and especially from the lifts in the old...
Hepmom: Thanks for the link to the RPA guide for liver transplant - I thrive on information from all sources and experiences, so although we have a similar publication from Flinders, I will read that...
Thanks everyone for your good wishes.... Mike, Hubby had to go through an evaluation process with the following specialists/tests before being listed for transplant in South Australia:...
Hi Sue, Yes they do give him albumin when they tap him. Hubby has been having a rough trot lately, again.... He went into hospital for tapping on the 27th April, and since then has been in ICU twice....
This wonderful news brings a tear to my eye. Keep healthy and strong for the recovery ahead. Best wishes to all xx...
I'm so excited for Jerry, its fantastic news. Here is hoping for a speedy recovery xx Thanks for your kind words about waiting, Pam. It is so stressful. Hubby has now been admitted into ICU as his HE...
Pink Grandma, is this the missing thread that used to be 'stuck' to the top of the list???...
That's sensational for Jerry..... God bless and good luck xxx I have taken much from your blog site Pam, and tried to leave a message there one day, but it didn't seem to get submitted. I think you...
Oops... Correction..... I haven't read ALL the posts - there are too many, but I hope to do so when I have more time. I have read MANY of the posts, but not all....
Hi Mick & Hep Part 5 participants... I, like lots of lurkers, read all the posts. I don't comment much, I find it takes a lot of guts to talk about ESLD, and often times, I am too saddened by the...
Hi Mamalama.... Sorry I can't help with your financial situation, it sounds awful. Good luck trying to get it sorted out. The system sounds so wrong. Could the lease idea work for you though?? Sandi,...
Early on my hubby was on a low sodium diet, and I avoided giving him red meat from things I had read. His GP only ever recommended the low sodium, saying red meat has not scientifically been proven...
Hi Natalie... Thinking of you all at this traumatic time. My best wishes and prayers for you. xx...
Wow. Of course I can't speak for everyone, but I would imagine a lot of people viewing and posting here are in a fairly fragile state, dealing with a lot of illness, pressure, lack of knowledge, lack...
Hi Connie & Carol, Good luck with the results. I can only image what medical files look like going back to 2005. We have only been dealing with hubbys Hep C and ESLD for 12 months, although he has...
I agree with hepmom. My mum would say 'if you've got nothing nice to say, don't say anything at all' and 'mean what you say, but don't say it meanly'. Great words to live by.... Each of us is...
Hello GardenVariety, As we sit patiently waiting for a transplant for my husband (at least he is on the list now), I read with concern the struggle your Dad is having. I can only wish your family and...
The smell is something else isn't it.... My husband has been in hospital since the 8th February and the smell in the bedroom at home is STILL there. I have been airing out and washing everything in...
I agree, well done....
Latest update is that hubby's polyp was not cancerous so that is good news. However specialists have now determined that his zinc levels are too low. Kidneys still not great. HE still present, I...
Pam, I have been reading your blogspot and am so happy for you both. Your blog keeps me encouraged that there may be hope for us too. Thanks for your honesty in how you felt the stress affected your...
Thanks everyone for your good wishes. Hubby's kidneys were improving but he had ascites tap Monday and he has had little urine output since, so maybe they have gone backward again. The fluid removed...
Hubby is getting more plasma again today, still on terlipressin for his kidneys and will be having a colonoscopy tomorrow. His haemoglobin is too low, and the specialists believe he may be bleeding,...
Hi Connie, Hubby is an inpatient at the medical centre where he has been assessed and listed for transplant. I believe that the terlipressin he has been on is like chemical dialysis for the kidney's....
Thanks for telling me Pink Grandma. I am so sad for Kelly, and for everyone going through this horrible disease. His passing has brought home how mortal we all are, and has brought new fears for my...
Dear Kelly, I am so sorry for your loss. Your fiance was a very lucky man to have been so loved by you. May he rest in peace, and may you have precious memories to look back on. God bless you both....
KellyBelli - how did you husband get on with his kidneys? Are they stable now? Are things OK? My hubby has been back on terlipressin for his kidney failure, lots of albumin and tomorrow they will be...
Thanks everyone for your kind thoughts. Connie, Hubby has not had a drink since June 2010. He has gone through the transplant evaluation and was denied on the 26th Feb, as the social workers thought...
Woohoo! Hubby has been at medical centre since 8 Feb, and has today been told he has been accepted as a liver transplant candidate. He has only had two of the three months worth of counselling, and...
Thanks Connie, It is a huge relief, I just hope John agree's with us. I will now make sure it is his decision at the end of the day. Re his med's, I have typed the names straight off the bottles, so...
Thanks for your reply Connie.... Sorry, his med's are four hourly not every hour. Mostly lactulose 30mls every four hours, but there are is a bit of a cocktail of Spiractin, Frusemide, Bactrim,...
Hubby has been at a medical centre since 8[sup]th February. He was undergoing assessment for transplant. He was denied this on 26 th February. They thought he might be able to be reassessed in 30...
Hi Sadwife... My husband has ESLD and had a very sore back about a month ago, and wound up with kidney failure or hepatorenal syndrome type 1. The only clue he gave me was his sore back, but...
Thanks everyone for your kind messages. Connie, We do have a social security system, but I don't think it will be enough to cover the loss of my current income, and pay the bills and loans and...
RC, Things were getting a bit much for me today, and while I love the idea of 'me' time, I over-think things when I am quiet and still. Instead, today I just had a great big CRY! I was in the shower,...
John was flown out to Adelaide on the Royal Flying Doctors on the 8[sup]th February, and had hepatorenal syndrome Type 1 – his kidneys were failing rapidly. The Doctors gave him terlipressin which...
Thanks everyone for your quick responses. I will follow up the links and advice as soon as I can. Right now, we have had a small setback. John was due for tapping tomorrow and had his bloods taken...
Hi everyone, I am new to using a forum, although I have been viewing this one for several months now, and have finally taken the plunge to create a profile. I have learnt so much from this...