I also used to keep a hairbrush close when I was so itchy. The doctor gave me cholestyramine powder and it worked but I found that it tasted like rotten tang... After I started medications following...
Hi NEKO!! I have AIH (auto-immune hep) and was only diagnosed in the past year. So far I'm doing well with medication, but I do hope to one day be med free! I'm really happy to hear that you are...
Yeah, they cut me, most days I can't even see where it was, it's so tiny now ~Kate...
I don't use a PPI, I'll try taking my calcium supplement later in the day and see if that helps. I see my hepatologist in just over a month, so I'll mention it to him too. When I first started taking...
I had my biopsy done in Winnipeg Manitoba in October 2011 They did mine through my jugular and I was mildly sedated. I now have a 1/2 cm scar where my neck meets my chest ~Kate...
I have been taking prednisone and imuran for AIH since October 2011 and have lately noticed that when I take my meds with a breakfast higher in dairy I have more stomach upset (nausea/diarrhea) but...
Thanks Dany! I started the pred (30mg) on November 2 and went for 2 blood tests before going down to 20mg on November 9 and then 2 more blood tests and then went down to 15 mg on November 16 which I...
Thanks Angie1953!!...
My appointment went really well!!! The specialist was great and lucky for me the DB assistant was NOT there!! :D He said the long term plan over the next several months is to wean me off of the Pred...
The hepatologist had never confirmed the AIH, just my GP had made an assumption that she remitted when the jaundice cleared up the first time. (side note: the hepatologist's assistant is a total...
Thanks so much Dany!! I had blood drawn this morning, and I know they get my results the same day. So he should have accurate numbers for my appointment tomorrow. I wrote down all the questions you...
Thanks for your reply Dany! Yes! I go for blood work twice a week, and my numbers have been coming down nicely. My jaundice has cleared up and my energy has multiplied exponentially. ~Kate...
Thanks Carol!...
UPDATE: I met my hepatologist in August, and after going over my lab work and looking me over (my jaundice and swelling had subsided by the time I got the appointment) the hepatologist's assistant...
Well, I'm off to meet my hepatologist tomorrow!!! I'm nervous... but I have my list of questions that Dany recommended for me to take with me and ask him. I would very much appreciate positive...
My thoughts and good wishes are with Connie!!! ~Kate...
Thanks Connie!!! I will definitely will keep everyone posted! and I am VERY appreciative of Dany's knowledge in all of this... I was very scared thinking I was alone, until I found all of you!!...
Thank you so much Dany!!! I will be sure to keep posting on here, as well as reading more about all of you! I am just so glad I found you all!! ~Kate...
Thanks Connie!! and yes, the specialist is a Hepatologist, apparently there are only 3 in my city (I live in Winnipeg) and I've googled him since the appointment was booked and everyone who posted...
Hi Dany, Sorry it's taken me months to reply... I've been busy with work, and I've been hired by a friend as her wedding planner, so I've been running around getting things organized. I appreciate...
Hi Dany, nice to meet you!! My GP is waiting for me to meet with the hep before they prescribe anything. I've been going for weekly LFT's, my next one is Tuesday. The first blood test they did (on...
Thanks so much Mer! ~Kate...
Thanks Sandia!! It is easier said then done... but I am trying my best to distract myself... Thank you for your support!...
JoBelle, I can relate to your itchiness... I get so itchy sometimes I use the brush I scratch my cat with to try and get some relief, it's usually only temporary though... Good luck in your search...
Thank you Sandia!! I am feeling very welcome here.... I am trying my best not to be anxious while I wait for the specialists phone call... ~Kate...
Thanks David!! ~Kate...
Thanks Pam!! ~Kate...
Thank you very much Emma!...
Hi Everyone, I was just diagnosed yesterday with autoimmune hepatitis. I'm trying to learn all I can about what my life will look like from this day on. I have not met my liver specialist yet, but...