Thanks Debbie!...
Debbie. We applied to caregiver benefits and benefits for hubby 6 months also the rep we went to in Fl said PTSD will probably b the classification as it is well documented and service connected. Im...
Cable poodle, We have been in Atlanta( lived here in 2009). We have been trying to get him back in the Atlanta VA for 4 months for primary,vision and Rxs. No luck yet. Emory appt tomorrow then...
Yes my husband is a veteran and we have been trying to get him back into VA in Ga. There is a 200 person wait list. I am calling Monday to speak to a supervisor to stress the importance of him...
Connie, I found it! thanks.. Lisa...
Connie, How do I access the Part 2 of my origional post My hubby has Esld HELP Thanks Lisa aka nibseysgirl...
He has been accepted into the transplant program and his hepatologist is requesting and expecting credits up to 25 which they feel is where his conditions should be as far as MELD. 15 is the minimum...
I am so glad your hubby went to Dr. I am sorry your husband is having such a hard time. We have been very blessed to have great police and ER staff here. They are so kind and patient and very...
hi everybody, sorry it's been so long since I posted a lots been going on have had many hospitalizations Michael my husband's MELD score has gone from 11 to 16 this past week he's had his liver...
MRI...
Angie, Hubby was in last wk w elevated ammonia of 111. Increased his lactalose to 4x day and continue the rifaxin 2x daily. Hes still having alot of pain in the living area but he's doing okay...
Thanks Connie....I hope so......
Snoopy, Thanks so much. Have not heard of this. I will be sure to talk to them ASAP. My husband is back in again ...his MELD is now 15 and his Ammonia 111. He got admitted tonight. He is having some...
Connie, I checked into the HMO and the HMO and hospital agree that the HMO we are on is best and they do COVER transplant at Emory as well as one other hospital in GA. I am looking into it again on...
Walt, Thanks so much for your post and info. I totally agree with you.. The love and faith in the LORD are key. I have no doubt whatsover that both my husband and I would be dead if not for HIM who...
Thanks.Connie wil do....
Connie, The HMO is all inclusive not supplement. I am calling all including medicare. Miçhael is oñ Medicaid share of cost in fl and will b in Ga to unless Obamacare qualifiers him for straight...
Thanks Carol. It really irks me how thwy treat ppl differently based soley on insurance. He is getting the evaluation in Atlanta but if anything changed or he gets worse I'm sure his.Drs here will b...
Hi all, Justt wanted to let yall know that my husband Michael went into the hosp two days ago with ammonia levels high again and yesterday he had to have his gallbladder removed. He is doing pretty...
Mrs T... You are your husband are in my thoughts and prayers.. God Bless Lisa...
I am on facebook if anyone would like to add me. I welcome the support, fellowship and friendship... We all need to support and help one and other through this horrible disease and its duration....
Thanks Connie I know I am doing my best as is hubby. I just hate all the indecision...Its so hard. I dont know as far as the radiologist but he said it looked really bad; Like I said I dont have the...
Hi All, Hubbys biopsy is back. Definately cirrhosis of the liver and fatty liver as well. No masses or signs of cancer(Thank God) Meld is now 12. I figured out the MELD score day of admission and...
Awww thanks Connie. I think so too....:)...
We have to bring the script to them but I used all my gas today going to GI so I have to wait til I can finagle something this week......
yes its a fundraising site within facebook....i know weird huh. I think its copyright laws or something. Did you check it out? If so the pic is my husband Michael and my youngest Makayla 16...
i was on that before im not on anything now but stuff cause of my heart attack 4 yrs ago but I think I may call my Dr and ask for an appt to talk with her. Everyone in my house is on some kind of...
I know its just so hard to watch him deteriorate. Im not having a good day today. Ive been very snappy and I dont like it. I feel so bad. Im just so tired and overwhelmed(not physically) I just feel...
Well biopsy isn'tt back yet grrr was so hoping it would be available when we met the DR. Said his kidney function tests looked good, we've been worried cause Michael is having a hard time going, no...
Debbie, Thanks...We see the GI tomorrow. Hope they do blood work at the time and we are praying the biopsy is back. If nothing else a recheck and one on one time to ask ALOT of questions. If you have...
Dave, so I guess there is not typical huh..or rhymne or reason.... thanks for sharing. So happy your well again and here to share with others...Its a great help and support... Blessings, Lisa...
Carol, Thank you so much. I am so glad your husband is doing well and SOBER ..that is fantastic(I was married to two chronic alcholics so I so know that road)ironicaslly my husband Michael doesnt...
Connie, Thanks I am going to check that link out. I hope his meld goes up I cant imagine him having to wait YRS to feel and be better. It scares me how sick he gets now. I know that sounds selfish...
can it take not does it take. Sorry just wanted to clarify.... Thanks...
I have a ?. I know this is kinda a loaded one but in general how long does it TYPICALLY take a person who is having so many ammonia issues to go from a MELD of 11 to a 20 which is what is needed for...
Thanks Connie, He is looking much better and everyone takes note and congratulates him which makes him feel really good and Lord knows he can really use the good feelings and praise with all thats...
Thanks Connie, U are a tiny lil thing lol. I am 5'9. I appreciate the feedback and info. It really does help. Diabetes is a beast we are very farmilar with in our family as our youngest daughter has...
Amy, I have written many places here in Naples that are both small and national and one two places even bothered to reply. It is so hard and frustrating. We really need to get to Atlanta. I am to the...
Oh sorry I forgot to say yes my husband is overweight, he was 388(gained since 120lbs since 2005) and not from diet. Most of it was poor eating habits(OTR driver afterall) but most was water weight...
Connie, Yes it would be and his Dr here even the VA said the trip back and forth would be way to much on his system especially with the swelling in his legs. I think we have made the right decison...
David, Connie MamaLama, We had already started talking about moving back to Atlanta when this all started happening, when Dr thought Atl was best. If we had been aware of any options in Fl we would...
hep93/Connie We have not been told about any places here in FL the Drs here know we come from Atlanta and Boston. They flat out said get back to either one. We are going to Atlanta. We have a strong...
David, My husband barely eats red meat(maybe once a week) and he doesnt use salt at all. Doesnt drink by choice , takes 20g/15ml lactalose(30ml 3-4 x day faithfully) and they started him on rifaxin...
I agree, concrete answers are what you are looking for then I would weigh all your costs and options and go for which works best for you and YOUR health. I would think the biopsy would be the best...
Hi My name is Lisa. I live in FL with my husband Michael and our two kids Mike and Makayla. My husband Michael has end stage liver failure, cirrossis and NASH(My husband has never been much of a...