aww thanks and hugs guys, really appreciate the feedback. much love your way! ~peace~...
howdy y'all! Made our trip back home to sunny cal - where the other half of our family and friends are - trip that sick was wicked hard to recover from but so worth it! Already thinking MEGA clearly...
wow not that anyone is following. but I'm so out of it, my family only wanted to talk to me doc to make sure I'd be well enough for the trip to go back to my Pauls home town. I couldn't remember they...
ya they can't read a biopsy result, lab reports, nor will they educate themselves with chronic hcv turned fibrosis liver disease. All but two family,members think my fiancé and I are ”in fantasy...
news, dad and fiance thing me to the liver doc who couldn't figure out the manifestations I've been presenting are, per hcv advocate on phone and am liv foundation told me they are all huge hcv...
yes, getting care quickly will be fun, but I will be purchasing actual health insurance, not using medi-cal. thanks for the well wishes, I've suffered far too long here with medicare only healthcare....
nevermind, finally got a hold of a local hcv advocate. they informed me the place I've been going to is on the low end of the totem pole, never recommended. was told my hcv should have never been...
hey there, got a serious Queston. trying to figure out why I should see,liver doc before I move. besides I'm sick ave confused and itchy, major weight loss to name a few. Question: can eyes turn...
mama lama, I've the most dedicated fiancé in the world. he went thru hell to get me finally diagnosed. It's my family that is.confused and unaware. one member actually thinks I'm making these decade...
I've heard many of you say that your very spouses left an hcv patient, as the struggle is multifacetted and sometimes have no logical reasoning behind the uneducated. how many of you have had either...
thank you Connie! we have already acquired a house next door to my soon-to-be husbands sister. I've some family nearby, and pauls brother and his fiancé will join us nearby town within a few months....
Connie, exactly! it actually hurts the hernia to talk, and Paul is quite done trying in vane for basic and advanced medical care. Dad is coming with to see for himself, as my family can't believe...
here's the link of the gov-cali hcv plan, http://db.tt/MOHsd4T0 can't find the exact proclamation obama made on hep day 2012, but its on this Web site> http://aids.gov/news-and-events/hepatitis/...
connie: thru so many bouts with ”mystery-complex” medical issues, docs kept thinking mental illness. i was not okay with these bouts myself, thought I was crazy. tried to kill myself, being so dang...
mama lama, my fiancé and me got the chills. i just read your post to him. I've still got the chills... Mike is me too. same exact here, had the EB in the early ”90s was sick one year, but had hep c...
that is where I've been seeking help from, a very large, highly esteemed, reputable university hospital in Chicago. the only logical reason we can fathom forthis lackluster treatment full of...
I'm returning to ask for guidance to find a hep c advocate in illinois urgently please. a m experiencing many extrahepatic hep c manifestations, most scary. been off work and out of college for 14...
Has anyone here ever had grossly swollen lymph nodes from the collarbone to the jawbone caused by their HCV? Has anyone here ever had an umbilical hernia from liver inflammation, hcv, or fibrosis? If...
Connie, Ya, my pleasure. It's hard to think most of the time anymore. Hopefully your ulcer heals quickly - when do they expect you to begin treatment? ~peace~...
Connie, Treatment has been delayed by both a kidney stone and cyst that need to be removed. As I only have pain, and high creatine (sp?) levels, and the kidney is working, they wanted to wait until...
Ya hey there, Been way stressed with boatloads of stuff, I didn't write that lastpost correctly, my writing and comprehension abilities aren't quite up to par. the hcv 1a is a grade 2. Found out...
Hola fellow compadres! Wanted to check in with y'all, it's been a while. Dad had a heart attack while golfing on Saturday and survived the stint procedure and heart attack, they had to go up twice...
Had the trans-jugular liver biopsy on Friday & got the good word in today that my hcv 1a is at a grade 2 (using the 0-4 grading method) with fibrosis. Fantastic news! Treatment for my hcv 1a will...
Carol/Connie, et`all: Thank you for moving my thread, that last one was old & very long as you pointed out. Plus I didn't realize that I had re-posted in a new thread, etc. Smile. Topping off my...
Hey there folks, hope this post finds you all well. Having a liver biopsy next week, need some kidney work done (haha) for a stone removal & eval of a cyst. After all that, I will begin the...
hmmm, I thought that SVR had to do with grading the HCV 1a from 0-4, hence the biopsy to stage pre-treatment. they do that, right? stage the disease before they start the expensive treatment, right?...
Re: Doctors & trust ~ I have been treated like garbage since I became single a decade ago by licensed doctors even though I had fantastic health insurance. I will spare details, it's been a bad 10...
Connie: Ah, good point - You're probably correct. She did say that before she could do anything, that she would need that release for treatment, and gave me 6 weeks to get one. I'm still not sure if...
Ya, the appointment was full of information, doc wanted to know about all of my past drug/drinking episodes, told her that I didn't have a past to speak of... Dunno why all the questions, pretty...
Connie/David: There's so much I don't know about this HCV 1a. Connie: Wow, you had a liver biopsy done today and made it through just fine, and are even posting on the forum, congratulations for...
Going to see my outpatient Hepatologist on Wednesday. I've been doing research & have seen that they sometimes stage HCV 1a to see how much damage the liver has endured, or if there's Cirrhosis or...
Good news & more good news... Hep C Genotype 1a was confirmed today, no more wondering . The good news about that is the University Hospital that I am a patient at does the "three drug treatment" for...
Connie, Thank you so much for your kind forum reply, it means a lot to me believe it or not. Gentle hugs from behind my computer to you. Have a good one. :-) ~peace~...
Here I am posting in the HCV forum partially about other stuff again, but the last part is about my liver - also thought I'd keep you kind people informed of my status, 'cause you seem to actually...
Hey guys - Okay I'm confused about HCV. I've been doing research without knowing much about my own condition except for a few numbers (enzymes & something else)... I've obviously not seen my liver...
David , Is a weedologist . Perhaps he would share his recommendations with you , My guess would be Thai stick or Skunk but I'll leave that up to the expert . A.Ziffle: LOL & yay, birds of a feather!...
Dear Connie & David: Yes, my multiple rib fractures are 5 months old. A very recent ex-ray revealed simply one additional pathological fracture. My doctor ordered a bone density test prior to this...
MamaLama: TY for posting. If/when my severe pain becomes acute (9 on the pain scale), I do go to either my gastroenterologist or to the ER, whichever is needed at the time. I've been reading posts on...
"...Also, since you no longer have a gall bladder, why would you have issues? It's not there, so it would seem that it couldn't be causing pain. (I don't have one, either..." Connie: Exactly my...
DGinSD: Ya, I keep telling my doctors (who ask) that my "liver pain" feels exactly like it did during the few days prior to my diseased gall bladder having been surgically removed back in 1998. Also,...
posting from my android this morning, laying in bed with the severe right upper quadrant pain that just last week now radiates around that side to my upper back. I learned when to take my long acting...
Dear Connie: I failed to mention in the post I just made, that the biopsy ran on the small mass causing that now resolved SBO came back "inconclusive." Thanks for asking....
Good morning folks, I had an appointment with my gastroenterologist on Wednesday, after receiving a phone call from my MD concerning blood work taken during my previous hospitalization for the SBO...
Dear fellow HCV supporters: As it turns out, my SBO (small bowel obstruction) that led to the discovery of my chronic HCV, is a mass and is not scar tissue, as per the biopsy results. My primary care...
Connie: You are more than likely correct. The university hospital that I'm a patient at is giving me free care because I'm low income, disabled and on both federal and state insurance. They are...
DGinSD: Yes, i meant the real nasty kidney infection pyelonephritis. Had two severe cases of it last year and the former hospital I went to for care did not bother to find out the underlying cause. I...
I am shadowcptn, it's been my online id for nearly a decade. Hello everyone, so very glad to have found you all and to be posting here from my home today. The past 30 years have been full of "mystery...