Thank you everyone, And i really appreciate this open forum. It really helped our family through this tought time in our lives...
Update: Thursday the 10th we were transferred from kaiser sunset to woodland hills. Dad had severe hiccups for a few days and when we got to woodland hills his order in the computer for lactulose was...
Hi Connie and Carol, Dad has been getting social security disability for about 5 months now. Patients with renal disease and on dialysis can get on medicare early, its an exception. We are in the...
Hi all sorry for not updating til now but I've just been really down about things. I appreciate the prayers and good tips for dealing with where we are at right now. Thank you all. Update: UCLA...
Update: Cardiac Surgeon just visited. Dad's blockage is too much for him to withstand a liver transplant. And with all the rest of his conditions. Failing Kidney, liver, Ascities, overall weak body....
Heya thing, The kidneys have been getting worse over the past few months. And yeah the evaluation has taken that long also. They say this is common when the liver gets real bad. Also the blood...
Hey Barbara, Things are going alright. We haven't made the support group yet. Do caretakers go sometimes without the patients? I won't be able to make it there tomorrow either though. My dad's life...
Update: They've brought my dads sodium from 118 to 129 over the past few days by fluid restriction and giving him sodium IV's every 4 hours or so. He is much more alert. His blood pressure is higher...
Thanks everyone! Will keep you posted...
Hi Syxx, welcome to the forum. My dad has Cirrhosis which was caused by sarcoidosis and is currently trying to get on the transplant list and get a transplant. I'm glad you found this forum as there...
Losing that much weight each week may be too much. I say 1 to 2 lbs a week. You don't want to lose too much muscle mass. You can do this by adding a little more protein instead of carby foods and...
Hi Susan, One tip they gave my dad was to limit his sodium intake to 2grams or less a day. They may also suggest fluid restriction. I also heard something on NPR about how a doctor in San Francisco...
Thanks Connie! I've been here for about an hour and I am already amazed at the quality of care my dad is receiving. This being the liver transplant telemetry department they ALL know about everything...
Update: Bed Opened up at UCLA last night while I was sleeping at home. Dad was transferred there to Transplant Telemetry. My mom is with him right now and says the care he is receiving is great and...
David thanks a lot. hope you had a good one too! Carol - The doctors here @ the Kaiser Sunset(los angeles) so far have been good about explaining everything. It helps that I've become so informed....
You have a great day too Ziffle. Your partners story gives me such high hopes Carol! We did a card cath through Kaiser as part of Kaisers approval system. I'm sure the cardiac consult(one of the 3...
Amen to that Carol. Thanks to you as well. Have a nice day...
Update: So we brought my dad to the hospital on the evening of the 20th because his BP was real low 75/44 and he was feeling vertigo-like symptoms of the room spinning etc. His creatinine jumped to...
Update: chemoembolization appointment cancelled because bilirubin is above 3.0. Now the consultation appointment is bumped to Nov 30th after another liver function test is done(last one was on the...
Barbara, my dad may be doing his chemo treatment on the 20th so he might not be feeling well enough to make it to the class the next day, we'll see. If not, We should be there the following Wednesday...
Took my dad's keys yesterday. No driving for him until he's better :)...
Angie, thanks for making me feel even more welcome here. I appreciate it. This is definitely a roller coaster ride but my dad has always been there for me my whole life and now it's time for me to be...
Connie, I am hoping UCLA does everything from then on also. They seem more on top of things on the coordinator side. I'll ask about it though. I work from 1am to 9:30am and my mom leaves for work...
Also, does anyone have any tips on keeping sodium levels up while constantly having him do #2 with lactulose?...
@Thing it took about 2.5 months and a lot of phone calls! I asked for a list of all the appointments that were REQUIRED and I had to get on the coordinators ass about scheduling everything. Don't sit...
Thank you very much Mama. I will keep this thread up to date with our status. It's great to hear you and your partners story, it gives me hope. Once we get everything setup, and my dad on the list...
Hi everyone my name is Mehran and my dad is battling with ESLD right now. I'm 30 and my dad is 63. He was diagnosed with Cirrhosis caused by Sarcoidosis in 2007. At that time he only had varisces and...
Thanks everyone for responding so quickly and with such care. I'm almost crying reading this. I'll paste a thread for my dad, that's a great idea. As of right now my dad has an appointment with...