Hello everybody. I hope you are all doing well. Posting in the blind, because I haven’t talked in the forum for a long time; although I do go back and read through these old threads periodically when...
Hi everybody. Just checking in. Every so often I read back through the old posts and it blows my mind seeing what we went through. The selfless people in here helped me so much...The advice I got in...
Wife is doing well. Procedure went fine. She had her first regular meal today. She should be getting out on Monday (at the latest). Hopefully this will be our last experience with hospital stays....
We're in Philly right now for her Heller Myotamy procedure. She is down to Prograf, magnesium and multi's; over a year since the transplant and her new liver is great. Hopefully we will get that peg...
Please forgive me for dropping off the face of the Earth several months ago. This forum was a great source of information and support and I wish there were some way for me to afford pay it forward....
Wife is getting discharged to outpatient care today. She is up and moving around quite well but she will still need some assistance for awhile. We will all be living in a somewhat cramped room at the...
For some reason, my Firefox browser doesn't know that word....
Sorry so long without an update. I have been really busy the last couple of weeks. Out processing the unit in Korea kept me pretty busy non-stop. I had a huge to-do list to complete. I also had to...
Just busy dealing with this Army out-processing bs, and the other to-do list that I wrote. JQ is well; daughter is well. Should be out of here by March 6th....
Yes, she is still at WR. She will be there until I get back from Korea in another 2 weeks, and then we will transition to a nearby Fisher house for 30 days for her outpatient treatment....
I sent my wife a link to this forum; she finally got a chance to read the details of what we've been going through the past month (hard for her to remember much of it). When she feels up to it, I am...
I am saddened to read about your loss. I haven't had much time to venture through the other forum posts yet; I had no idea what you were going through. You have been so selfless & supportive of my...
Back safely at my home in Korea. I've found I prefer flying in an Air Force cargo C-17 over a commercial flight any day, and it appears my daughter does too. Wife got the roses and was ecstatic....
No worries, I am over it... My wife has this great sense of humor. That's what attracted me to her in the first place. She has these stitches now, and she noticed it really hurts now when she laughs....
Kinda irritated; I ordered Valentine's Day roses for my wife yesterday, and paid a quite a high premium for the promise that they would arrive today. Was really hoping they would show up while I was...
Flight should leave around noon. JQ just had another botox series and CT today and they say her stomach looks normal. They are going to keep up with the botox for now and see if any results come from...
Thank you. Yes, water blisters. Inner ankle; both were originally about the size of a baseball. I hope they heal up soon. Flight is only 50% full, so I should have no problem sneaking the car seat...
Connie, could you please leave a link to this new thread at the very end of the last one? I have a few close family and friends following here as well and I am not sure if they will all know where to...
Guess I missed all of that. All of the changes are starting to come slower at this point. Wife is doing better each day. She is now able to stand up just fine. She is still feeding through the NG...
She cannot drink or eat much of anything, due to her achalasia. It seems to come and go. The doctors don't want to take a risk, due to her dietary and drug requirements for her recovery. I stressed...
Will be going back to Korea shortly; should get tickets in the next day or so. Everything has been worked out on both sides of the world so I will be back in time to join my wife when she is...
I am uncertain how things will work for her as an outpatient. I wonder if any home health care is covered at all. I will have childcare available during the day if we need it. I always did the...
Things are going well. Came back to Bethesda on Tuesday. Wife is fatigued and feels sick much of the time, but the doctors say it is normal for her circumstances. They put her back on a feeding tube...
Things are going well at Walter Reed. Wife is ecstatic with the care she is receiving there. The doctors want to get her achalasia fixed ASAP so she can begin eating normally again. She is having...
Still waiting to find out details. They moved her by ambulance last time and me by Walter Reed van. I am sure they will make it last minute and well after the check-out time at my hotel. Baby is...
Today the final drain tube came out. All she has left now is an IV line. They're moving her back to Walter Reed in the next day or two (thank God. The nurses there were the best). I didn't realize...
Went to see wife tonight. Neck Transfusion lines and catheter are already out. Jaundice gone and her facial swelling almost unnoticeable now. She had an alive glow that I haven't seen in over 2...
Yeah, not a fan of the prednasone. That stuff messed her up pretty bad when she was in Korea. Just hope she can get in a place soon where she can see her daughter again. That will lift her spirits...
Went to go see my wife. Was perfect timing, because she had just been extubated. She was talking very fast. She was still a little out of it because of the meds. She wanted me to make sure she still...
I called the hospital this morning and spoke with the ICU nurse. She says my wife is stable and doing well. They plan to extubate her this afternoon. I gave the kiddo a bath and have been catching up...
Doc said all is good, whole procedure including anesthesia was around 4-5 hours. CIT time for the donor liver was very short as well. Doc says most everything looks good. He said he is concerned...
Doc just called. Procedure was successful. They will close her up now and then send her to ICU. He says she should come off breathing machine tomorrow. He will call me again hour or so when she gets...
Liver was accepted by the transplant team. Wife just went into transplant surgery. Pray hard....
Thank you Carol. Not sure how I would have gotten to this point had it not been for this forum, especially you and Connie. I have gotten used to seeing lots of tubes already, so a few more wont be...
Phone has been ringing all morning, but doc just called to explain the current, as well as tell me that they may have found a liver. I asked him by that, does he mean they have found a donor and the...
Got an early call from the hospital today. Wife was having trouble breathing last night, due to excess fluid putting pressure on her lungs. O2 Saturation was down. They transferred her to the shock...
Little one is doing well. Just got her started back on rice now that we are settled again; she was going through formula like crazy. I'm looking into local nanny listings to see if I can find...
Good news today. I woke up early this morning and got to the hospital in time to meet the doctors while they were doing their rounds. Met the transplant doctor, the Hepatologist, transplant...
David, Yes, she had a liver biopsy several weeks ago. They were unable to determine anything from it at the time. There seem to be a lot of cases just like my wife's recently. This has been an issue...
Carol, not sure where your last post went, but I was able to read it before it disappeared. I will try and get in touch with more people tomorrow and find out who the nurse coordinator is. I never...
Carol, I sent it again, to your email address in your profile. My sender name ends in 74 and from Yahoo. Might have filtered to spam?...
Went to hospital. I was told that my daughter couldn't go up because no minor policy due to influenza outbreak. Got agitated and protested loudly and then was told actual policy was that permission...
Thanks again so much for all of the prayers and encouragement. Carol, I sent you an e-mail. My wife transferred to the University of Maryland Medical Center last night. I have found a good place for...
Well, news apparently changes every day, depending on which doctor I talk to. Her transplant doctor actually thinks that her liver failure is a chronic condition (first time I've heard that.) Based...
We made it to DC. Flight was uneventful. Little one slept the entire flight and my wife remained stable. They kept her intubated as a safety precaution. We arrived at Walter Reed and shes been in...
Well, today was better. I discovered the "do not disturb" feature on my iPhone and activated it at night unless its a call from the hospital. I have also told a few other key people that I write...
Thank you all so much. Don't have a lot to say tonight. Nothing much has changed. Some local Army people brought me lunch, and some other Army people brought me dinner. Everyone was really cordial...
Stayed in the hospital all night last night. Wife remained incoherent. Blood pressure did stabilize and INR dropped back down to 7's due to transfusions. Doc sounded suddenly more hopeful than she...
INR is at 9, MELD is 37. Liver is shutting down. She was incoherent the whole time I was there. They moved her to ICU. D.C. is out of the question now. Doc said the best case scenario is that they...
Well, not so good news. Wife's INR kept going up and they also mentioned ammonia. She vomits anything she tries to eat. INR was up in the 4's today. I notice she seemed a little different and not so...