I've got that joint and muscle pain now and have been dealing with it every since I started my first taper down which I think was about a month process back a couple of years ago along with other...
Thanks everyone! jesse...
Thanks, you noticed. Thank you, mamalama...
Hi Dany, I was diagnosed in 2010 with autoimmune hepatitis, blood work, and biopsy confirmed. I started taking pred 2011d then tapered down and now at 5mg pred a day. My then and now...
Is there anyone who has autoimmune hepatitis and been taking only prednisone and has high blood pressure? If so what BP meds are you taking? Thanks Jesse...
Hey Farmchick, AIH here, and have those aches and pains as well, after a year. I went from 20mg pred to 5mg within a couple of months. Im 48 and found my self in about the same situation. I was...
It started after the reduction. We have discussed the pred / Azathioprine combo and are suppose to revisit the meds after Junes blood tests. I just know Im ready to get off the pred or at least take...
Hep 93, I wish you well and the best, it makes my problems not so bad considering....
No problem, my LFT was 3.6 on a range from 0 to 8.3 Inside that range is normal and when I started tapering down. I started on a large dose for about a week, then a little less , and less etc until I...
hep 93 , how are you doing with ur transplant? I pray for the best!...
I tapered down for two months from 20mg to five. My gastro also my hepa wants to taper down to zero after last visited but soon after changed his mind and wants to do biopsy again bc my blood test...
Thanks to all replys! Thank you!...
Is there anyone who has AIH, male, and on disability due to AIH?...
AIH here too, mine is under control and I take prednisone tapered down to 5mg a day, but I have a lot of aches and stiffness. I saw a rheumatologist nothing but normal wear and tear. I can't believe...
Same here no one understands. I have to tell family no I can't but it goes in one ear and out the other ear. It makes it hard to feel sorrow when they have to go for nothing more than a root canal...
How do you go? about finding someone close to you with AIH....
blood work every 3 months, and he hasn't put the ultra sounds into stages that im aware of. I haven't drank alcohol since the diagnosis (2010). My platelets are low. It took me close to a yr to get...
I ve had a biopsy but not before having a blood transfusion because my platlets were so low. Cirrohsis too. I drink water and real fruit juices or homemade smoothies from real fruit. I watch my salt...
Idiopathic thrombocytopenic purpura that is the answer to the thrombo word from prior post. I had to revisit my research, Ive done so much of that it sometimes feels like it runs together so I have...
Thank you so much everyone! I feel like a burden has been lifted with just hearing what I have heard so far because no one in my family understands exactly what Im going thru with this disorder. I...
Hi, 47 and diagnosed 2010 within 3 months of going to a hepatologist. blood work was way out of whack, couldn't even do the liver biopsy until given a blood transfusion. started on pred 20 mg for a...