hi arneeb, i see the day your partner passed is approaching. mine is approaching as well. ted passed april 28, 2009 oh how i miss him and need him. i will be thinking of you! be strong and hang in...
hi wilcans, i have been following your and your family's story, and as we all know it is heartbreaking. i have been, and will continue saying special prayers and sending special thoughts to all of...
Yes, yes, yes! Thank you Connie for being you! I was actually thinking of Connie yesterday. May I be as strong as she. Z...
Hi Mama Lama, I am hoping and praying for everything to go well for you two. Step by step, deep breath, another step...you know the drill well. Love and hugs, Zoarie...
Painter, This is fabulous you are on Sov & Riba. I am Geno 3, same as you. I took it for 24 weeks. The virus was cleared in the first 2-3 weeks! The only side effect for me was intermittent nausea....
thanks bblt! smile. zo...
worried, I am thinking you are not getting my full emails or something, as much of what you are asking i had just sent in a previous email. maybe there is a word limit or something :~) which would be...
The Miz, Thank you so much for your note and for "getting it". A lot of goodness coming to both of you. Keep up the good work! Zoarie Worried Daughter, Please refer to my original post for the...
Bblbt, Lots of good info there. Thank you again. I am going to google PSC now. With appreciation, Zoarie...
Hi Worried, Thanks so much for your info. Yes, am aware of the mets. I have always considered myself rather pwell informed on this stuff. My husband died of this 5 yrs ago, and I learned then, more...
That is wonderful news! What a beautiful name. Rey happy for you, Zoarie...
Bblbt, Wow! I am so sorry to hear that. Yes, you are right, a catch 22. I had hep c, now undectable per solvadi, and have severe cirrhosis, then the HCC. I thought the cancer could speed up listing...
Hi guys, i would love to hear your ideas and/or experiences about this: i had my 2nd ablation on June 18. i just had my first post op MRI, and it was really good!! By good, I mean there are not any...
The Miz Yes, feeling pretty good! Thank you! Z...
Hello Everyone, It is soooo good to be hearing abt all the Solvadi successes. It reminds me of the Polio vaccine and the discovery of PCN! I had my "end of tx" blood draw last week and it came back...
Hi Lostson, I have been reading your posts this evening and reading about your Dad's paracentesis, (and other issues) and it reminded me of something. You very well may know this, and maybe this has...
Hey dog! The hepatologists tell me they can still do procedures with platelets as low as 35. I realize you aren't having a procedure but I figure if they can operate, or get in there at 35, shouldn't...
miz, yes, totally understood. i would NEVER let myself die because i didn't have a support person. i can't imagine a more stupid reason to die. the family member i mentioned is for the money to pay...
David, I understand leaving AMA. They freak out because of legalities. I don't feel great about being untruthful to my docs, but I truly feel it is necessary. I will not have another chance to get...
Hey ziff, It is very good to hear more details of your story. I laughed out loud reading the part about your .v.w. falling asleep is a problem. Takes me 4 hrs to get there. Last time i drove off the...
Arneeb, Thank you. 100% correct. Sometimes hearing it from someone else minimizes the enormity of it. Thank you for our input and clarity. Z...
It may be better for me to rent in Durham or CH. yes, of course, money is always the issue. I do have one possibility (with a family member), but it would not be easy and am sure there would be many...
Oh my heart aches for you. For your mother, and entire family. I am so deeply sorry. He will always be with you. Zoarie...
David, sounds good! But, i am not able to move at this point. I'd have to sell my house to move, and I am no longer able to pack, organize, yada, yada yada. No help, on and on. Seriously. But I do...
Thanks Ziff, Always good to hear from you! Yes i have been calling the attorneys. One said she thought she could help me. I will contact her Monday. I didn't know if an attorney could help, the...
Hi Everyone, I recently returned from my 2nd RFA. It was on Tuesday. I am very happy to be home. They are incredibly painful to me. But, this time I have recuperated so much more quickly. I don't...
Dear Scared and Sad, Your posts brought up some things I realized when my husband of 37 beautiful years was dying from Liver cancer. He was at the beginning of HE, had some fuzzy times off and on but...
I know it well. My hasband had it too, twice if I remember correctly. I finally got my call and they want to do another Rfa. It was good to hear from them and have a loan! Love, Zo...
Hi David, mamma lama, Susie sass, the Miz, splash dancer,and worried daughter 2! Thanks for the clarification, splash dancer. I have never had medicaid hem and haw abt any procedure or Rx since i got...
Hi guys, I wanted to ask your opinions on something i am troubled with. My MRI, showing my HCC is back with 3 new lesions and 5 "something's" in the background, was done may 1st. It is now the 26th...
thanks ziff. it is great to rely on your truth and the way you see things. i feel entirely different than i did last year, and H said it is obvious:) i had the scan on may 1. i have been waiting and...
Thank you sandia and ziff for your comments. Ziff i wantd to ask you if i still sound stressed? I think i gleaned that from your welcomed email! I dont feel stressed anymore & didn't even cry when i...
Hi everyone, I have been away from the list for a long time. I have been doing well With my HCC, Hep C, and Cirrhosis until my last MRI. I hope you are all well. I will be around more now to keep...
Hi mamma and mike, Good for u two!! That is exactly how mine was handled. The doc's office delt with medicaid, not me, and it was about 3 weeks before i was approved. Only on my third day. Nausea is...
Hi mama and tony, Thanks tony for the clarification. That is more like what i was told, i just can't remember a damn thing. And i am glad u joined. This is a fab place for keeping current and in...
hi guys, i have not posted for a long time as i was in a deep deep depression. i just started taking a anti depressant and have hopes it will help. the BIG and GOOD news is i got on solvadi and...
The mizz, I am at the enrollment stage with my docs for the same drug. I too felt like u about the cost. What they told me was Gilead had to buy an entire lab for 13 billion dollars to get the...
Deb, My emails make me feel crazier than I thought I was. Sleepy for any confusion. Don't think the first part of my email came thru... My docs told me to take a teaspoon of the old french's mustard...
Oops, sent b4 I was finished. Anyway, the mustard works for me. They said to get the little packs you see at food concessions. I could not find them so bought a small jar. Top of the line, cutting...
ML, oh geeze. i just realized the post i responded to, above, was an old one. i am so sorry! but it is good news to hear no cirrhosis! How does that happen? zoarie...
hi ML, I was so happy to read about Mike's trial with Gilead. What an opportunity! Special thoughts and prayers to you both! Coincidentally I was in to see my hep doctor yesterday. (The local one,...
Yea Ziffie! Very good job! I bet the Captain at UNC had a smile for ya too! I just got my labs from UNC and my AFP is creeping up a little. Now 12 from 3 immediately post RFA. Even with the cancer it...
Hi Deb, You are so very insightful and have such a way with words. You said, perfectly, how I felt about memories after my husband of 36 yrs died. He died 4 yrs ago of Hep C, cirrhosis, and hepatic...
Can those drugs be used by ones that have HCC with Hep C and cirrhosis? won't c my doc till 11/14 to ask him. i think i heard no, but don't remember. zoarie...
michael, that is wonderful news! what is their criteria for trial selections? all fingers and toes crossed 4 u. keep up the good work, zoarie...
hey deb, i appreciate your understanding words so very much. i really do not feel singled out. there would be no reason for that, but i think it is confusing for them to change the rules. the pain...
thanks to everyone. ziff i was eager to hear from u as u know the center. i do have medicare and medicaid. the xizafan is $1,000.00 and i pay $3.00. i've got the financial part for medical care...
Yes Susie very helpful. I imagine they all do some things differently but good to hear yours would accept if not too old. Mine r new! I just finished all of them oct 17th 2013. Thank u again for ur...
Is Connie ok? Where is she? I read abt the plural effusions. Is she home? What an inspiration she is. Please tell her I asked after her. She is so loved. Zo...
Jade, Thank u for your understanding and kind words. I don't know if their way of telling me was harsh or not, but it was certainly a jolt that caught me off guard. I don't mind seeing the...