I can't believe it's been 5 years since Mike had his transplant! Congratulations to You both, I hope all his issues are worked out soon. -K...
Try magnesium. I had terrible muscle pain and complained to my hep and he told me to take 400mg a day. I have been for over 5 years, and no pain. Its apparently common to have a mag deficiency with...
"just make something" Words to live by. (I didn't eat anything green either..) Thanks to you both!...
Hello boardies, Been a long time since I've wandered in these parts... I hope everyone is doing well. I have a question for those still enduring a broken liver - or remember what it was like - Have...
Congrats to you both! Keep us up to date, -K...
As HepC said, black and tarry or like coffee grounds is a sign of internal bleeding, and requires an immediate trip to the hospital, but black stools that are neither tarry or like coffee grounds can...
Um... Admited to drinking makes you not worthy? I wish someone told the rest of us, we wouldn't be here then! Honestly that part of your post didn't even register with me, I just saw Hep C and knew I...
WeLcome! One of the mythical "other halves" that we learn about but never meet. So pleased to finally make your aquaintance! Hope you have many HE-free days, -K...
While its true Drs don't suggest paracentisis unless its necessary, as in the case of intractable ascites, when it does become necessary its like a god-send. At least it was for me, to feel all the...
Mefenamic acid is a prescription medicine in the US. It is metabolized by the liver, and can have some serious side effects. it is not recommended for fever, only swelling. I agree about tylenol as...
Liver lesions are basically just scars or some other non-smooth feature, they can mean almost anything, from nothing at all, to cancer (benign or malignant), to fatty liver disease, to cysts, to...
Diuretics can reduce your electolytes, especially magnesium. This can cause cramping, especially in the legs and arms and bad pain. You can try a 400mg per day magnesium supplement, its sold over the...
I first got the idea about melatonin from Dr Melissa Palmer's book, where she suggested it. I spoke to my Hep and GP and they were both cool with it. A quick internet search just turned up...
Fatigue, I know thy well... I was told to stay away from caffine by hep doc and was never a coffee drinker anyway, so I don't use stimulants. What works for me best is just listening to my body. If I...
Sounds like your spider angioma are just benign and occured for a non liver related reason, this does happen. i have had a couple due to liver disease, one went away on its own and the other I poked...
I can't say if black stools are normal for IBS or not, but I suspect not. Black tarry stools can be an indication of internal (upper G.I. Tract) bleeding. The operative word is "tarry". Black stools...
To combat the fear, educate yourself. Its the best cure for it. Once you research and understand the body/liver and how Hep B effects your various systems and the treatments, and of course the...
I will add my voice to the choir of get well wishes. Hospitals suck, get out of that one soon and come back, you are missed! Ziff, I rember all the plotting to get you here online, and you sure were...
I did a bit of reading up and it seems that during the TB treatment your liver levels will be monitored monthly and they can switch you to other treatments if necessary. Considering you have no...
I really don't have any answers for you but I can add one data point: I too have been found to have latent tuburculosis and my hepatologist sees no propblem with me being on imunosupressants after a...
"don't be such a stranger". Oh I am always here lurking and watching (cue image of zombie hiding in the shadows). I will occassionally jump out. boo! -k Lungie: It took me 4 years to go from MELD 22...
Ziff, Just thought I would congratulate you for all the hard work. I know first hand about the pain and anguish you went through. In fact, substitute multiple variceal bleeds for persistent ascites,...
Thanks David, will do!...
Eyes, I too have ALD, end stage unfortunately. My story is different than most because on the day they told me in the hospital that I had ESLD, I quit drinking right there after 30 years and never...
Mae, MGH won't de-list you, I guess the theory being that liver disease only goes one way in the long run, and I will eventually need the transplant as my liver disease is not caused by Hep C, and...
Mae, My MELD is 10. (it was 17 when I listed). I have been listed at MGH for over 3 years. Obviously, this is not an immediate concern, but remains a concern down the road. I really hope when the...
> 8 months post-Transplant, Richard is cutting the Mayo Clinic apron > strings and will continue treatment therapy through Mass General > back home in Boston. I was wondering how difficult this...
Ah hah! One of life's great cooking mysteries solved. If pressed, I would have to admit the chopped up eggs version is probably most popular here too. I just can't stand hard boiled eggs. I think its...
Please forgive this born-and-bred Yankee, but what exactly is Southern-Style Potato Salad? Does it contain okra? Grits? BBQ sauce? Fried green tomatoes? You really set off my imagination mentioning...
Grats Susie, glad your recovery is going well! -K...
World Hepatitis Day, observed on July 28 every year, aims to raise global awareness of hepatitis B and hepatitis C and encourage prevention, diagnosis and treatment....
Grats, David. That is such encouraging news, I often read about all the troubles people have post-transplant and was starting to worry about quality of life. You have given me hope. I agree about the...
Thanks Angie...
Ibuprophen is off limits for me too as is asprin cause I tend to bleed, but I recently asked again and was told no more than 1200 mg of tylenol per day. Everyone needs to see what their doc says...
Alcoholic liver disease is survivable. I have been surviving it for nearly 5 years now. The symptoms you list are all typical of the disease and can be managed either through diet or medications and...
Well, one must avoid tylenol although a small amount is permitted, in my case 1200mg in 24 hours, but my hep would be unhappy if he heard I took it everyday. You are correct in that no pain killer is...
I share your hubbys pain... (bad joke). I have had every test in the book, just did a capsule endoscopy in fact and am waiting on results, but so far, in 4 years they haven't found the source of the...
I have been having cronic abdominal pain since before I was diagnosed with liver disease. In fact, the pain was the reason I went to the Dr and he found the LD. I too have portal hypertension and...
He is the one I see too. He did an umbilical hernia repair on me as well. Real nice guy and good surgeon. I think he is head of transplants there, no? The transplant center doesn't want much to do...
David, Dr. Ukomadu at Brigham Woman's. Its been descibed as a more intimate version of MGH, they both share the same residents and my Doc can admit at MGH as I am sure some from there can admit at...
I have had banding 3 times for esophageal varices. Each time was an emergency situation caused by vomiting blood. Its not fun, so definately get them banded early if possible. I have never suffered...
Re: Norfloxacin, I too suffered SBP over 4 years ago. I have since been on ciprofloxacin (another antibiotic) once a week since then. Its a prophylactic that I was told I should never stop taking, as...
I just double checked and 100 tabs 400mg ea is indeed $146. Seems much cheaper than you found. I have used this place once before for a very expensive prescription. I was able to save $400 dollars...
Thanks for the info, 2k a month is too steep. I will order it online from Canada. I just looked and they sell 100 tablets of 400mg for $146. Should have checked there first, sorry for the bother. The...
Would someone tell me exactly how much they pay for Xifaxan (assuming you buy it at retail price from a pharmacy)? I will probably be having a TIPS this summer and my insurance only pays a small...
If it was the sun, his fever would be going down now that he has been inside for awhile. Its rough not having a hep doctor yet, so if there has been no improvement on the swelling and the fever is...
hi Miz First I will tell you what I personally would do in my case, then I will make some other suggestions. Only you and hubby know his exact situation. I would go to bed or lie on the couch for the...
I have similar pain in my left side, on the mid-line between the front and back of the body. It is either an ache similar to a pulled or bruised muscle or a strong stabbing pain. It comes and goes...
Connie, I tried, but had no luck. Gave up. Carol, thanks for the pointers, I didn't see them. Those people had alot of other nasty things going on and did't really talk alot about their BRTO. Sorry...
Ah thanks. I forgot to plug in my spell checker. Turning on brain now. I thought I recalled more than one Asian member... Oh well, does anyone have a pointer to an English language Asian liver forum?...