Thank you for all your thoughts and prayers. It has been very difficult. We are going through with an autopsy. Her death was unexpected. They feel there may have been some negligence. One day she was...
My Mother passed On Wednesday December 6 at 9:45 a.m. PST. Thanks for all the help and information on this web site. It really provides people with an insight into this insidious disease. It had only...
Thanks for your prayers. We received a call this morning that she maybe only has a couple of hours. I can not get there until tomorrow because of the flight schedule. They moved her to the er where...
I have been reading this forum and I am looking for some answers about this disease. My mom was just diagnosed Oct 23 with ESLD and hairy cell leukemia. She spent 12 days in the hospital Did 5 days...
Thanks for your thoughts. Yesterday the decision was made to send her over to Oahu. They will evaluate her there. I feel that may be the best thing right now. If we get an okay from one transplant...
Well they said she could fly just a commercial airline if someone went with her on a direct flight. They would sigh a fit to fly form. As far as the hospital in Denver it is our only choice in...
I just want to say that this is a very helpful web site. My mother was recently diagnosed with ESLD and also Hairy Cell Leukemia. She went into the hospital on Oct 23 with ascities and a cough. She...