Hi to all. Well, I have good news. There is no rejection and no changes to my meds. They said the Hep C is only moderate and it does not appear to be attacking the new liver agressively as feared....
Hi to all. It has been about a week since my last post. I went to the doc yesterday 5/13 and was given the o.k. to return to work on Mon. 5/19. After submitting my letter of approval to HR, my...
Butterfly, So happy to hear some good news from you concerning your husband. I will continue to keep both of you in prayer. Your right, PRAYER DOES HELP. Delivered by the mailman....
Butterfly: Thank you for your kind words. Delivered by the mailman....
JoAnn My meld score was 25 when I was transplanted. I had 3 cancerous tumors largest being 2.5cm. I had become very lethargic. My abdomen was very distended due to ascites and I was in pain...
Exhaused, So glad to hear your husband is doing better. Keeping both of you in thought and prayer. I don't know whether I mentioned it but I have a new grandaughter named Ava Marie. Born on 4/14/08...
Butterfly, Please know that you are in my thoughts and prayers. i know it is very tough, but your husband will be needing your strength also. Stay in prayer and contact with others who are going thru...
Shadow and Tula welcome. I too express condolences on your loss Shadow. Tula, I have been where you are at only it was directed at me directly as the one suffering with this disease. I was told I...
Hi to all. Haven't been here lately, and I hope and pray all is well with everyone. I went to the clinic yesterday and was told everything was progressing nicely. My liver enzymes are continuing to...
Julieadele, I would definetly seek a second opinion. Ask how they evaluated him to come to the conclusion they did. I wish you and your Dad the best. Keep us posted. Delivered by the mailman....
Hi to all. I'm glad I don't have to deal with cooking issues as my wife is a great cook. I just do not like the diet since I am now steroid induced diabetic after transplant. I am progressing well...
Hello Achariene, Welcome to the forum. Please feel free to lay it all on the line hear. One thing we are is great listeners. I know this forum has helped me tremendously. I was diagnosed with...
Butterfly, I too have been wondering what happened to you. Sorry your husband is not responding well, but Grandma is right, you need to take care of you also. You continue to be in Nancy and my...
Grandma, I'm sure your grandaughters had a blast and greatly appreciate Funny Papa's Garden. Keep planting. Delivered by the mailman....
Hi to all. I haven't really seen much chit-chat on this board for a while so I pray all is well with everyone. You know, I think we should stay in contact with other people thru this helpline even...
Hi to all. It has been awhile since my last post and alot has taken place. I have decided not to undergo adjuvant chemo therapy. My decision is based on the fact that there is no data to suggest it...
Grandma, Primary liver cancer tends to reappear in the liver instead of other organs. If it does they tell me there is basically nothing they can do. They can start to treat it then but it is...
Hi to all. Well it has been quite some time since I have visited the forum. I went to see the oncologist on 3/12 and was told that my old liver had 3 cancerous tumors. 2 in one lobe and one in the...
Leslie,----- Thank You!!!!!!! After reading your post, tears started to flow from my eyes. This young man and his family have been on my mind and heart since day one. I'm sorry for your loss but...
Calla, Hang in there. Your brother is in GODS hands. We do not know what GODS will is for him, but there are lessons to be learned thru every up and down. Keep positive and continue to encourage him...
Hi to all and thanks for your continued posts and prayers. June-- please don't ever feel as though you will be one who goes south. Remember that POSITIVE thinking is a vital tool in the recovery...
Hi to all. Thanks Grandma & Butterfly. Things are going well. Pain is decreasing and I'm getting used to the diabetic diet they have me following. Blood sugars are still high and I have to take...
Hi to all sorry I haven't posted lately, but I received a liver transplant on 2/17/08 Now 8 days into new life and things r going well. I am home from hospital and taking massive amts. of medications...
My thoughts and prayers are with your brother, you, and the rest of your family. Keep us imformed. /community/emoticons/sad.gif Delivered by the mailman....
Callipiter, I agree with Shelly, nobody really knows for sure how long one has. In Nov. 2007 they told me I had 6-18 months unless I received a transplant. However, I refuse to let their timetable...
Welcome Callapitter, I agree with pinkgrandma, Your brother is only hurting himself more by not being honest. Sometimes I think we really don't know just how sick we really are. I had been clean and...
Bebe, The fact that you are talking about what is going on shows that you ARE being strong, by doing what you need to do for you right now. It is a hard thing to do, and people might not understand,...
Bebe, Welcome! I wish I had some magic words that would make it all go away, but I don't.I'm sorry to hear about your dad but you have to keep talking about it. I know I must be a pain in the butt to...
Thanks Pink Grandma. She actually called me back yesterday afternoon and apologized for the lack of communication. In the end she said I made a wise choice because the liver was not transplantable...
Thanks June, I spoke with my gastro doc on Mon and he said I probably made the right call. I am very unhappy with my coordinator though. She was to have explained this scenario to my wife and I so...
Medwife, The MELD score is a combination of counts from your blood work which determine where you are placed on the liver transplant list It goes as high as 40 with 40 being the most critical. To...
Hello to all. Just to let you know I received an offer of a donor liver at 1:40 am today. Donor was 51 and had a stroke. He also had a hepatic liver (extent onknown) and a medical history of diabetes...
Thanks to all who have answered my posts. I feel incredibly welcome and comfortable here. I just received a copy of my latest bloodwork done 12/28 07. However, I do not see any result for ammonia...
June, If you go to google.com and do a search on MELD SCORE it will direct you to links that will explain the whole transplant process. I went to one which is associated with UNOS. Since that is who...
June 17 Hi this is the mailman. I do not take any natural or over counter drugs. Drs. told me it might have an adverse effect. Just had my blood work done on 12/28 and CT of the chest on 12/31. CT...
Butterfly, Thanks! I now can understand a little about why I have experienced bouts with equalibrium and confusion. It scares the heck out of my wife. I pray that your husband gets well. My knees get...
Thanks pinkgrandma, butterfly, and connie for answering my post. I'm new to chat rooms and message boards so please be patient with me. I am currently taking Lasix 40mg and Amiloride 10mg once a day....
/community/emoticons/confused.gif Hello to all, I have esld and am awaiting transplant. I also have swollen legs and abdomen but have not had any fluid drained as yet. Hoping someone can help me...